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06-02-2009, 02:54 PM
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#1
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Harriecanarie?
Are you back? If you are, I missed your announcement and your in-depth description of your "vacation". I hope it was a good trip for all of you.
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For Nicola
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06-02-2009, 04:04 PM
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#2
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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She's back Bill ... posting in another thread about ear wax.
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PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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06-02-2009, 04:24 PM
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#3
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Mmmm, er..., thanks Lady Pink. I'll look for that post after I finish my home-made super-delicious buffalo wings. Uh, thanks again.
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For Nicola
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06-02-2009, 05:07 PM
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#4
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Ok, now I'm hungry - despite all the talk about ear wax and bo.
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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06-02-2009, 10:41 PM
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#5
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Hi!!! I'm back!! Yes, I just posted a thread on ear wax and BO yesterday!!
Had a great trip!
1. headed to Ca for my 6 month ck up with my onco...and all is great!
2. then headed to Portland OR and got to see the city as well went to my son's grad at Willamette Univ. Grad was great, campus was amazingly beautiful (1st time I saw it) and Portland is a fantastic city!!! Very diverse, public transpor was unreal, and very eco-friendly.
3. then my whole fam headed up to Alaska for a wk's road trip from Anchorage to the Kenai Penninsula. Was really fun the 4 of us on a vacation together, the weather was fantastic, and the state is beautiful!! It was not fishing season, so NO fishing. And since it was not fishing season, there were not many people there. Fishing season starts in a few wks so we just missed it.
Funniest thing that happened: my daughter and I were walking on this trail to go to the glacier and I decided to make this animal muffled call that I made up so my husband and son would think it was an animal. Well lo and behold his huge moose comes prancing real fast out of the trees TOWARDS us!! Later I learned that the call I made sounds very much like a female moose in heat!!
Was a great trip. Since we knew it was not going to be crowded, we just jumped in our rented SUV and winged the entire trip up there. Was fun. Stayed at some great places and had some awesome food too!!
Love, HarrieCanarie
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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06-03-2009, 05:04 AM
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#6
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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I am glad to read your post, Harrie. Glad you had a great vacation, and I am glad you got a good report from your doctor. I go for scans Friday.
Amelia
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06-03-2009, 09:21 AM
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#7
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Glad you had a good time. Funny story about mr. moose. LOL
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dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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06-03-2009, 09:30 AM
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#8
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Senior Member
Join Date: Jul 2006
Posts: 869
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Sounds terrific! Ceesun
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06-03-2009, 09:34 AM
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#9
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Hey Harrie, you can add that to your resume .... experience in making
"female moose in heat" calls ... you never know ...
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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06-03-2009, 03:57 PM
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#10
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Senior Member
Join Date: Aug 2007
Location: Stayton, Oregon
Posts: 69
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Hey Harrie,
If you went to your son's graduation at Willamette University, weren't you in Salem, Or? If you were, you were only 20 minutes from me. Would have been so great to meet a "sister", even though I know you must have been extremely busy. Maybe on another trip? Fondly NanaKaren
__________________
Dx 7-21-05
1.7 cm invasive ductal carcinoma
Her2 +3 strongly positive
micromet in sentinel node
Sept.05 Lt.lumpectomy/bilat.reduction
Oct.05 4 rounds of AC/12 rounds of Taxol with Herceptin
Radiation 5 weeks
Herceptin only until Jan.07
Started Femara-stopped
Started Aromisin-stopped
Currently on Arimidex with a great deal of pain
Stopped Arimidex
Taking Tamoxifen
Karen
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06-03-2009, 04:18 PM
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#11
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Senior Member
Join Date: Oct 2006
Location: I live in Christmas, MI - located on the shores of Lake Superior.
Posts: 606
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Sounds like you had a wonderful time..wonderful!
__________________
Barb
10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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06-03-2009, 11:58 PM
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#12
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Ah Karen!!! I would have loved to have met you!! We stayed in So Salem at the Phoeniz Inn. Oh my gosh... Willamette Univ has this beautiful stream running right through campus with all these gorgeous trees and flowers all over!! We were only in Salem for 2 days and then we left for Alaska. We were in Portland about 4 days before we headed to Salem for the graduation. Weather was gorgeous on our entire trip!!
Back in Hawaii now and it is HOT!!
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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06-04-2009, 02:35 PM
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#13
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Senior Member
Join Date: Jan 2008
Posts: 154
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BOO! 
Glad you back and that you had a great time!
__________________
Diagnosis and Treatment: DX 12/07/07
Male Diagnosed with DCIS at age 39
Mastectomy on right breast
Tumor Stage pt1b NO MO
DCIS Tumor size 1.5 x 1.x .6cm
Infiltration tumor size .25X.17 cm
Bloom-Richardson Grade 3(score 8)
Nuclear Grade 3 with comedo necrosis
Estrogen+/Progestrone+/HER-2/Neu +++
FISH ratio 4.31
Lymph node removal scheduled 1/07/08
17 nodes tested and all negative 1/08/08
Started Tamoxifin 1/29/08
Oncotype DX score 52 (off the charts, according to my onc!!!)
Starting TCH 3/14/08
BRCA I Positive BRCA II Negative
Finished TC 6/27/08 continue Herceptin
8/1/08 Herceptin stopped due to low Muga score
Mastectomy on left breast 11/10/08
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06-04-2009, 11:44 PM
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#14
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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YIKES DUGA!!!! Are you trying to give me a heart attack??!!
(hope you're doing good buddy.....good to hear from you....)
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
Last edited by harrie; 06-04-2009 at 11:46 PM..
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06-08-2009, 10:37 PM
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#15
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Senior Member
Join Date: Sep 2008
Location: Eugene, Oregon
Posts: 347
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Hey Nanakaren, I'm in Eugene. Lemme know if you're around here sometime and we'll "sister" it up!
__________________
"Dancers Against Cancer" in the Eugene, OR Komen Race for the Cure 2010
Diagnosed 8/7/08 with stage 3 invasive ductal carcinoma, micropapillary pattern, Her2 3+, ER+,PR-, grade II, positive lymph nodes.
Received 6doses of Taxotere, Carboplatin with Herceptin continuing for a year...DONE.
1/28/09 Left Modified Radical Mastectomy, Right Simple Mastectomy.
Surgery pathology: No invasive carcinoma present and 17 lymph nodes removed all negative! Only small amount of carcinoma in situ in left breast.
March/April '09, Radiation to left chest wall.
Currently involved in Neratinib clinical trial.
"Well being I won
and wisdom too,
I grew and joyed in my growth;
from a word to a word
I was led to a word
from a deed to another deed." (Odin)
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06-13-2009, 10:26 AM
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#16
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Senior Member
Join Date: Aug 2007
Location: Stayton, Oregon
Posts: 69
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Freyja,
I would love to get together sometime. See my PM. Karen
__________________
Dx 7-21-05
1.7 cm invasive ductal carcinoma
Her2 +3 strongly positive
micromet in sentinel node
Sept.05 Lt.lumpectomy/bilat.reduction
Oct.05 4 rounds of AC/12 rounds of Taxol with Herceptin
Radiation 5 weeks
Herceptin only until Jan.07
Started Femara-stopped
Started Aromisin-stopped
Currently on Arimidex with a great deal of pain
Stopped Arimidex
Taking Tamoxifen
Karen
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06-13-2009, 01:39 PM
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#17
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Harrie.....
Sounds fantastic....thank God for those wonderful times in our lives! So glad you had awesome family time AND a terrific 6 month check up!
Hugs ....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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