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05-27-2009, 08:53 AM
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#21
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Such good news!! Hoping for better news each day!! Please give her hugs from all of us!!
Lexi
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05-27-2009, 01:54 PM
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#22
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Oh WOW! Phew! You made my day! Thanks for letting us know, Jennifer! You must be very relieved too! Give Joy a great big hug for all of us.
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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05-27-2009, 04:03 PM
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#23
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Senior Member
Join Date: Feb 2006
Posts: 437
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good good news. I hope Joy is feeling better and is back with "us" soon.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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05-28-2009, 07:40 PM
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#24
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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It sounds like Joy has climbed over the top of this mountain and I couldn't be happier to read your news. I have been thinking about Joy and wonder how her transfusion went; is she getting any energy back? How is the fluid accumulation - I hope the diuretics are keeping it at bay.
Jennifer; reading your words about the worry that is rocking Joy brought me back to my own dark days when I learned my cancer was in all 4 lobes of my lungs and my liver. A friend gave me this poem - A Blessing for a Friend on the Arrival of Illness - it was incredibly insightful and helpful for me. I share the link for you to listen to; please share it with Joy if you think it may comfort her.
http://odeo.com/episodes/22146100-SO...val-of-Illness
It goes without saying that Joy's Her2 warriors are joyfully praying for her to climb out of the woods - she is a real pro at it - tell her we are looking forward to seeing her post again. And thank you to you, kind sister for keeping us all up to date.
Love Kim from Ct
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen
2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.
2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle
2011 - Still Herceptin only and NED
2011, June - STOPPED Herceptin and kicked up my heels!
2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.
2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine
2022 On Herceptin and NED continues - WOOT WOOT!
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05-28-2009, 08:44 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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OH, you meant a quick update about your sister, Joy! I thought you meant you were going to update our sense of joy...and so it seems that both were true!
Jen, I could SO hear her saying "I only look 3 months pregnant instead of 6" And it made me smile almost as much as hearing she got some good news and is continuing with her treatment.
Continued prayers
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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05-28-2009, 09:06 PM
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#26
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Senior Member
Join Date: Jun 2007
Location: RHODE ISLAND
(Ed getting me a latte on 2nd Cancerversary Cruise 2008)
'BELIEVE': To accept as true or real, To have faith in, To presume
ALWAYS BELIEVE
Posts: 2,999
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What a relief Jennifer, I am so happy about the news, how 'Joy'ous this is for us all. Although I did not post I want you to know that I said special healing prayers for her on Wednesday. Ed will be going for his second Ixempra infusion next Thursday and so far so good. I also pray that she is headed off on the right tract now and racing towards beating the heck out of cancer with her normal humorous self. Keep up the good work Joy, you are doing great.
Wanted to know how the transfusion went? How is the pain level now? Jennifer, you are so special for keeping us updated this well as our Warrior fights back. Make some time for yourself when this situation becomes more stable.>>Believe51
__________________
9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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05-29-2009, 04:40 AM
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#27
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Guest
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blood results good!`
Hi Marie and everyone else! Joy's tranfusion went well, she was at the hospital a long time! But she did get her labs back from Tuesday when she had her second Ixempra, her CA 27-29 dropped 30 points, her bilirubin was cut in half and normal, other liver tests also in normal range, AST still high around 300 it's been that way for awhile, her onc says Nueslasta and other things can affect that number though. She has quite a bit of nausea and bone pain from Zometa and the other drugs, the last 2 days were pretty rough. But the good labs were encouraging and I hope they provide some encouragement for anyone else on Ixempra! I have been telling Joy about all your posts and prayers and it means a lot to her! Thank you all so much! Take care, Jennifer
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05-29-2009, 07:36 AM
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#28
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Senior Member
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
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Thanks for the update! great news!
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05-29-2009, 07:48 AM
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#29
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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Great news! Sweet Joy is in my prayers.
Karen
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05-31-2009, 06:44 AM
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#30
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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This is wonderful news that Joy is feeling better.
Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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05-31-2009, 02:04 PM
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#31
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Senior Member
Join Date: Oct 2007
Posts: 57
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Jennifer and Joy,
Glad to hear Joy's good results. Hope that Ixempra is an effective chemo for her. I just had my first Ixempra Friday and it was pretty tolerable. I am receiving Neulasta shots after every Ixempra to help keep my white cell count up. (Neulasta helped keep my white cell counts up during my last chemo.) Wishing you the best, Lida
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05-31-2009, 05:26 PM
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#32
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Great news! Glad that Joy is getting better, will keep her in my prayers.
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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06-11-2009, 11:10 AM
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#33
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Senior Member
Join Date: Dec 2005
Location: indianapolis, indiana
Posts: 1,544
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adding more prayers from here!
__________________
dxd 9-04, lumpectomy,
st 1, gr 3, er,pr-, her2 +,
2 tac,33 rads,6 cmf
1 yr herceptin,
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