a little good news to share...
Hello friends,
This has been a very sad and difficult week for our community. I'm so very sad but grateful that I had the chance to know Kate, Carol and Michelle. I am also filled with love and gratitude (hope you don't mind me saying that, Joy) for everyone in this community - which is really more like a family.
My heart has been so heavy....
It almost seems inappropriate to share this, but I have to tell you! I just had my 2nd set of scans since starting the Trastuzumab-DM1 trial and after 2 more cycles (of 4 so far), the measurable lesion in my liver has shrunk and is again less metabolically active (now lighting up with SUV lower than the surrounding healthy liver), and the other one that is difficult to measure is still the same with no activity. Nothing new is showing up, which is really great as we hate those kind of surprises!
So things are continuing to move in the right direction
I was in need of hope...and this definitely helped.
love and peace to all
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
Last edited by chrisy; 05-06-2008 at 06:12 PM..
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