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Old 12-19-2012, 03:10 AM   #1
linn65
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Left Masectomy done 12/18/12

Left breast removed, 4 or 5 lymph nodes removed, 2 drain tubes and have not slept all night.....I think I am always confused! I guess Dr. Removed nodes that looked diseased, but he told my family I had beautiful tissue. That's nice wonder what that means? I kind of peaked at my scar it looks like 12 Inches long.
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Old 12-19-2012, 07:37 AM   #2
conomyself
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Re: Left Masectomy done 12/18/12

Congratulations, Linn, for getting through the mastectomy. Such encouraging news that the tissue looked healthy, and he only had to remove a few nodes!

Wishing you a happy recovery!
__________________
7/30/2012 Diagnosed with metastatic breast cancer
8/3/2012 CT scan mets to liver (major!!), lungs, spine, and skin
8/8/2012 Biopsy results: invasive ductal carcinoma
ER+/PR+/HER2+ amplification 4.8 (whatever that means)
8/13/2012 Brain MRI (clear); bone scan verified CT scan
8/14/12 started Taxotere/Carboplatin/Herceptin, 2 rounds (added Neulasta after 9/4 treatment)
9/4/12 CA 15-3: >3000
9/15/12 CA 15-3: 840
9/15/12 started Taxotere/Perjeta/Herceptin, 4 rounds (no Neulasta)
10/29/12 CT scan showed dramatic improvement in all areas - largest liver met 2.5 cm, largest lung met 10 cm
12/17/12 Started Perjeta/Herceptin, 2 rounds
12/17/12 CA 15-3: 17 Yay!!!
1/21/13 CT scan showed improvement - largest liver met 1.9 cm, largest lung met 2 mm
1/29/13 CA 15-3: 12 Started Herceptin only
3/12/13 CA 15-3: still 12 yay!! Back to Perjeta/Herceptin
3/29/13 CT scan more improvement - largest liver met 1.2 cm, some lung mets disappeared!
3/7/14 started Tamoxifen
6/27/13 - 1/2015 CT scan stable
Began a diet of only single ingredient foods and went nearly NED excepts for some tiny lung spots - ask me if you want to know more...
1/2015 - 1/2017 CT scan stable
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Old 12-19-2012, 07:40 AM   #3
Gaver
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Re: Left Masectomy done 12/18/12

way to go Linn !!!!

i dont know what treatment your oncologist has lined up for you but look at it this way !! surgery-- check -- done !!!
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Warm regards,

Geetanjali,Gaver's daughter one of the strongest women I know n a cancer fighter
---------------------------------------------------
11/10/2012 mom was diagnosed with a 3 x1.5 cm malignant lump in upper quadrant left breast with a 1x1.5 swollen left axilla node
12/10/2012 confirmed carcinoma left breast lump through FNAC
15/10/2012 CT Scan clear Bone Scan clear no Mets anywhere (Thank God)
16/10/2012 Core Biopsy Results show Stage IIB Grade III ER + 95% PR + 5% N Her2NEU +++
23/10/2012 MRM done Entire breast along with level I n level II Axilla nodes removed.

31/10/2012 sample biopsy 01/13 nodes positive

TCH regime Taxotere(Docetaxel) Carboplatin Herceptin

T C & H for 6cycles n H alone for another 11cycles after that[/B]

6 Cycles TCH--done 12 cycles H done
05 cycles H to be done


~~Eowyn,The Return Of the King,LOTR : "Courage,Merry,courage for our friends "
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Old 12-19-2012, 10:31 AM   #4
Paula O
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Re: Left Masectomy done 12/18/12

I'm glad things went well, Linn. That's great! I'm sure your doctor told you to try to keep using that arm--combing your hair, brushing your teeth, reaching for things, etc. I met a lady who babied that arm, hardly used it and ended up with very limited range of motion a year later. It gets easier in time and you want to keep good range of motion by using it.

Hope you recover very quickly. What's the next step in your treatment plan for you?

Paula
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Old 12-19-2012, 11:38 AM   #5
BonnieR
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Re: Left Masectomy done 12/18/12

Lymph nodes not necessarily removed because they looked diseased. Even if they are just taking the Sentinal Node, others get removed along with it. Keep the faith!
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 12-19-2012, 12:03 PM   #6
'lizbeth
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Re: Left Masectomy done 12/18/12

Linn65,

Glad you are through the mastectomy. Look at that, your doctor thinks you are beautiful inside and out!

I always ask for copies of the pathology report. You are still becoming educated on cancer.

Your surgeon performed a Sentinal node biopsy (SNB) which is standard of care during a mastectomy. This is to check for the spread of cancer into the axilla (armpit). If the SNB is negative for cancer - that is a better prognosis.

If the SNB is positive for cancer the next step is to perform another surgery, an axillary node dissection. I had to have this additional surgery and I was not a happy camper. I told my surgeon that I was still using those lymph nodes, lmbo, the poor guy - I was not an easy patient.

The pathologist found 2 more positive nodes in my second surgery for 3+/15 nodes. This information was used to determine the treatment for my stage of cancer: Stage IIb.

All the treatments are written up in NCCN guidelines and are the "Standard of Care" that doctors follow.

At the beginning of treatment it is easy to stress over anything and everything. That is natural. It can a very traumatic time.

And the standard of care is changing more and more. Don't worry too much if it seems you have a "bad" prognosis. It is difficult to put everything into perspective in the beginning. The truth is for most breast cancer patients - you have a greater chance of living a long healthy happy life than not. And if the "worst" would happen there are some great treatments with more on the verge of FDA approval and available in clinical trials.

Ugh drains, lol, not my favorite part.
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Diagnosed 2007
Stage IIb Invasive Ductal Carcinoma, Pagets, 3 of 15 positive nodes

Traditional Treatment: Mastectomy and Axillary Node Dissection followed by Taxotere, 6 treatments and 1 year of Herceptin, no radiation
Former Chemo Ninja "Takizi Zukuchiri"

Additional treatments:
GP2 vaccine, San Antonio Med Ctr
Prescriptive Exercise for Cancer Patients
ENERGY Study, UCSD La Jolla

Reconstruction: TRAM flap, partial loss, Revision

The content of my posts are meant for informational purposes only. The medical information is intended for general information only and should not be used in any way to diagnose, treat, cure, or prevent disease
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Old 12-19-2012, 06:30 PM   #7
snolan
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Re: Left Masectomy done 12/18/12

You are offically cancer free! Sleeping is always hard in the early stages. For comfort I used a pillow wedge kept the pressure off my chest for a while. Keep working on your range of motion. If you feel you are having trouble aske for a referal to a physical therapist that deals with womens issues ie lymphadema specialist. Even though you don't have lynphadema they deal with all issues dealing with mastectomies. The first few days are the hardest but it will get better. Good luck.
Suzanne
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dx: DCIS 6/8/10, HER 2+ 7/26/10; Stage I Age 41
Double mast w reconstruction
6 TCH w 1yr herceptin
Tamox.
25 radiation tx
Removal of expander on L due to infection. Tried to save it had 3 bouts of antibiotics and went to see plastic surgeon 2-3x wk to get drained. Saving it was my idea not his. But lost it anyway.
Reconstruction set for December 21st,2011
Finished chemo 12/2010
Finished Herceptin 8/26/11
Reconstruction 12/21/11
Expanders exchanged for silicon 3/19/12
Nipple reconstruction 5/18/12
Nipple tatooing- 7/9/12- All done yay!
11/22/12-Went back to get scar tissue stretched to even the outside of breast, didn't work due to it being radiated skin.
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Old 12-20-2012, 06:24 AM   #8
Becky
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Re: Left Masectomy done 12/18/12

Well, as others have said, the surgery is behind you now. Lymph nodes are always removed so don't let that concern you. They have to check. Use the arm. There are exercises you can do.

1. Put your hospital tray in front of you way up close. Put your hands flat on the tabletop. Slowly move your hands away from you as far as you can sliding them forward. Bring the hands back to the starting place and do it again. Do this 5 times. Repeat this exercise a couple of times a day. Another exercise is

2. Face a wall and put your hands flat on the wall. Slowly move your hands up the wall until they are over your head. Repeat 5 times. Do this a couple of times a day.

In 2 days, repeat 7 -10 times still doing it a couple of times a day. This helps you not form too much scar tissue. Scar tissue doesn't stretch as much as regular tissue.

Don't overdo either - at least not today. Maybe do these 3 times each today. Use the arm gently as others have suggested - brush your hair etc. But do use them. It will hurt today and tomorrow. Let pain be your guide but you have to use that arm. The American Cancer Society also has exercises (these 2 as well as others) for this purpose.

I am sure you are going through alot of emotions but we are here for you. If you cannot sleep, get a prescription for something that will help you - just a couple of pills. Sleep is important for healing. Make sure you get a copy of your pathology report (and any tests you get in the future) and keep a file so you have a record.

Remember - although you are in pain, you have no tumor left in your body. Haha - that tumor is gone! If chemo is in your future, it is just to make sure any sneaky cells did not escape. The culprit (tumor) has been laid to rest.

Big hug to you
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 12-26-2012, 11:21 AM   #9
linn65
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Re: Left Masectomy done 12/18/12

I already knew I had cancer in my lymph nodes they did a biopsy. I had per adjunctive TCH first and I lost my hair at day 16. Finished chemo, then left masectomy.

Next is goofing to get pathology report which was supposed to be today along with taking drains out. But snow has delayed that and doctors office is closed. Hopefully, they will reopen Thursday.

Next, Herceptin and radiation.....In 6 months remove right breast and start reconstruction on both then.
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Old 12-26-2012, 11:38 AM   #10
linn65
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Re: Left Masectomy done 12/18/12

Okay , I tried to add treatment regimen thus far...
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myleftlump.wordpress.com - started blogging my
IDC breast cancer
7/2012 diagnosed with multiple solid lesions
7/20/12 biopsy done. ER+ 30 PR -, HER+++,k167 80% Grade 2
9/2012 biopsy on lymph node - showed malignant

9/2012 Pre-adjunctive TCH chemo.

12/6/12 MRI after Pre-adj.
Results: Modest Decrease in size of left breast malignancy As well as the associated satellite lesions and auxiliary Adenopathy compared to prior study. Doctors hoped for better but good response it didn't grow.

12/18/2012 left masectomy with axillary nodes
Size 3.2 CM, Nottingham score 9/9
Grade 3, no evidence of in situ carcinoma
Areas of angiolymphatic are identified
Carcinoma is 0.5 cm from inked deep
Margin of excision
Attached axillary lymph nodes: metastatic
Carcinoma in 6 of 8 nodes.
Size of largest node 1.5 cm
Extracapsular
ER + 73%, PR+2%, HER2+

2/27/13 6 weeks of IMRT radiation finished

2/2013 Started on Tamoxifan 5 years.

8/2013 will take last Herceptin, 17 treatments total every 3 weeks.

BRCA1 & BRAC2 - Negative

August 28, 2013 DIEP flap on the left breast.
February 2014 Nip & Tuck
March 14, 2014 nipple reconstruction and removed port.
August 14, 2014 lump in lymph nodes under arm and above clavicle. Stage IV
August 28, 2014 herceptin And projeta starting and port put back in.

3/18/15 stopped arimidex.
3/18/15 progression....Tdm1
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