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Old 08-01-2012, 09:29 PM   #1
NEDenise
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Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
Good News...Bad News...Okay News

Hello Again,
First, if you're reading this, thanks for checking in and caring how I'm doing. I really appreciate it...more than I can tell you.

Good News: Lungs and Liver clear!! Cyber high fives all around!

Bad News: Found a bone met on right hip.

Okay News: Bone met might be able to be biopsied...and might be ER+...which would open up new treatment options. (I've always been ER- before)

Other News: As of tomorrow...
Starting
Zometa (to harden bones),
Tykerb (lapatnib...because it can cross the blood brain barrier),
and
Herceptin (because Tykerb works better when it has a "buddy" along)

Had
spine MRI today (2 straight hours in a hot, stuffy tube) ...results in a day or two...fingers crossed for no new lesions.

Waiting to
MRI hip spot to see if it can be biopsied.

Gammaknife still slated for Aug 10.

Still no symptoms from mets...so things are good. Love the neurosurgeon! Seems to understand and support my treatment decisions.
One step at a time...praying, trusting, researching all my options...trying to keep things as normal as possible for the kids.
Thanks again for the prayers and support...You guys rock!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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