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Old 09-14-2008, 08:27 PM   #1
gracie's mom
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Question Side Effects question -please help

Hi- First let me thank you for this website. I truly appreciate it. I was diagnosed 7/14/08 with invasive ductal carcinoma. I am HER pos but not estrogen pos. I am having chemo first and then surgery. Taking THC-once every three weeks and Herceptin every week. Good news is tumor shrunk after first THC treatment. However after the THC treatment and the Neulasta shot I have blood in my urine for a couple days? Has anyone else experienced this- I am worried about the chemo damaging my kidneys. I go for my third THC this Tuesday and will speak to my dr again. I had urinalysis after it happened the second time and xray which showed stones in my ureeter. But I didn't have kidney stone pain and have no history of them.

Ok- sorry this is long but here is last question- do these medicines cause fluid retention or feet swelling?

Thanks so much and take care.
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Gracie's Mom's Motto:

I gain strength, courage
and confidence
by every experience in which
I must stop and look fear in the face...
We must do the the things
that we think we cannot do.

Eleanor Roosevelt
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Old 09-15-2008, 06:44 PM   #2
Mary Jo
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Bumping this back up for "gracie's mom" Hopefully someone can help her with her question and concern.
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Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 09-15-2008, 06:54 PM   #3
Sheila
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Gracies Mom
First of all, if you have stones, it is very common for you to have blood in the urine....some of the stones, depending on their composition, have little cusps on them, that irritate the tissue and cause the blood. The stones are usually only painful when they are moving...or stuck, like in a ureter as it is a long narrow tube leading from the kidney to the bladder. Stones can be "blasted" with ultrasonic waves depending on their makeup... has the Dr recommended anything or are they just waiting to see if you pass them...this depends on size also. As far as the swelling, if you are getting steroids as a premend, and I am guessing you are if you are getting Taxol or Taxotere, you can get peripheral edema...swelling in the feet and legs...Are you drinking LOTS to flush your system, of the stones and the chemicals in the chemo?
Hope this has helped. I would ask the Dr. to see what the plans are for the stones!
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Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 09-15-2008, 08:07 PM   #4
gracie's mom
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Smile Thanks All

Thanks so much for the info. I am on Taxotere. I am seeing my Onc. tomorrow and will discuss. thanks for your help and info. I will keep in touch. God bless all and take care. I am soooo thankful for this website/support and each of you.
__________________
Gracie's Mom's Motto:

I gain strength, courage
and confidence
by every experience in which
I must stop and look fear in the face...
We must do the the things
that we think we cannot do.

Eleanor Roosevelt
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