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Old 07-31-2012, 01:39 PM   #1
capburke
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Information Needs of Younger Breast Cancer Patients during Chemotherapy
Help us better understand the needs of younger breast cancer patients AND donate $5 to this website!

The purpose of this study is to determine if there is a correlation between self-directed learning (such as information sharing on this forum) and quality of life in younger breast cancer patients undergoing chemotherapy. You can participate in this study by clicking on the link below; the survey takes less than 10 minutes and is completely confidential. To support the self-directed learning activities of breast cancer patients and survivors, a donation of $5.00 will be made on behalf of each survey participant to this breast cancer discussion forum/website or to a forum/website of your choice. Survey results and donation totals will be posted within 30 days after the survey closes (September 2012).

To qualify, you must be a woman with breast cancer between the ages of 18 and 50 and currently in chemotherapy (any type).

https://www.surveymonkey.com/s/SDLSurvey

P.S. If you participated in the pilot survey already, you can not participate in this survey. But please forward to other breast cancer patients and we will make donations on their behalf.


Christina Burke – Researcher, DBA Candidate, and BC patient.
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Christina



Dx 1/10 with 3A and have had 2 recurrences to the lymph nodes in chest and neck. Just finished radiation (for the second time!) and I am currently on Xeloda. Clear PET 6/12/12!!!! Hoping to join NeuVax trial in October.
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Old 08-01-2012, 04:26 AM   #2
vballmom
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Re: Information Needs of Younger Breast Cancer Patients during Chemotherapy
Done! Thanks for the link.
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Old 08-01-2012, 05:46 AM   #3
capburke
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Re: Information Needs of Younger Breast Cancer Patients during Chemotherapy
Thanks so much for completing the survey. What a great response from the members of this site!
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Christina



Dx 1/10 with 3A and have had 2 recurrences to the lymph nodes in chest and neck. Just finished radiation (for the second time!) and I am currently on Xeloda. Clear PET 6/12/12!!!! Hoping to join NeuVax trial in October.
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Old 08-01-2012, 07:30 AM   #4
NEDenise
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Re: Information Needs of Younger Breast Cancer Patients during Chemotherapy
Anything that supports this site is worth my time!!
Thanks!
Denise
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1/11-needle biopsy
 2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
 3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
 4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
 8/26/11 finished Taxol!!!
 10/7/11 mastectomy/DIEP recon
 11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
 1/12 Low EF/Herceptin "Holiday" :(
 2/12 EF up - Back on Herceptin, heart meds
 4/2/1212 surgery to repair separated incision from DIEP recon
 6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
 7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
 “ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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Old 08-01-2012, 12:12 PM   #5
Kellennea
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Re: Information Needs of Younger Breast Cancer Patients during Chemotherapy
Done & Done!!
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10/01/10 - Dx at age 44. Found lump after miscarrying & was told it was "probably a clogged milk duct" not so much:
stage II - invasive ductal carcinoma ER/PR+ HER2+
10/01/10 - BRCA test - Negative
11/3/10 -2.5cm tumor removed via lumpectomy, clear margins. sentinal node biopsy - nodes clear!
12/2/10 - port placement
12/2/10 to 3/17/11 - 6 rounds of taxotere, carboplatin & herceptin every 3rd week.
04/20/11 - 6/6/11 - 33 rounds of radiation
4/6/11 to 11/2/11 - 11 additional rounds of herceptin every 3rd week
7/15/11 - port removal
7/5/11 started my 5 year journey on Tamoxifen
9/4/11 -1 yr Chest MRI - CLEAN!!!!
9/5/12 -2 yr Chest MRI - CLEAN!!!!
8/29/12 - Started spotting after being in chemopause 1.5 years. Ultra sound detected 6cm ovary mass & very thick lining. YIKES! Taken off Tamoxifen
9/6/12 - Full abdominal hysterectomy. Pathology report came back clean... thank you baby Jesus!!
9/28/12 - Started Anastrozole
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Old 08-02-2012, 07:01 AM   #6
capburke
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Re: Information Needs of Younger Breast Cancer Patients during Chemotherapy
Thanks so much!!
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Christina



Dx 1/10 with 3A and have had 2 recurrences to the lymph nodes in chest and neck. Just finished radiation (for the second time!) and I am currently on Xeloda. Clear PET 6/12/12!!!! Hoping to join NeuVax trial in October.
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Old 08-02-2012, 10:42 AM   #7
jacqueline1102
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Re: Information Needs of Younger Breast Cancer Patients during Chemotherapy
Survey done.
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10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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