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Old 06-25-2012, 11:49 AM   #1
Emelie B
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Join Date: Jan 2010
Posts: 170
Wanted to share

Hello to all you lovely ladies and gentlemen,
I just wanted to let you know that I am now in the Denver Hospice care program and have a wonderful team of support people. I love, love my nurse Peg. She comes by my house once a week and she was truly meant to be a hospice nurese. Such caring and compassion. She makes my day. I am on oxygen most of the time now and anything she thinks I need is delivered to my door. It makes it so much easier on my family. I am allowed to drive just short trips. So no more Walgreens where they know my car now when I pull into drive-up! I also use a liquid morophine when I need a boost in-between the long acting pill form I take once every twelve hours. When I need the liquid for quick relief (usually in 10-15 minutes) I put the 2.5-3 ml on a sugar cube because it tastes absolutely terrible, and I add the magic ingredient-2-3 drops of Grand Marnier. Just like that "spoon full of sugar".
So, as my time goes by I am now putting the last pieces into place and I wanted to share what I read every night with you. It gives me great comfort and I hope it helps anyone who needs to feel "carried too".
Best regards to all,
Emelie

Footprints
One night I dreamed I was walking
Along the beach with the Lord,
Many scenes from my life flashed across the sky.
In each scene I noticed footprints in the sand.
Sometimes there were two sets of footprints.
Other times there was only one.
This bothered me because I noticed
During the low periods of my life when I was
Suffering from anguish, sorrow or defeat,
I could see only one set of footprints.
So I said to the Lord, “You promised me,
Lord, that if I followed you,
You would walk with me always.
But I noticed during the most trying periods
Of my life there has only been
One set of prints in the sand.
Why, when I needed you most,
Have you not been there for me?
The Lord replied,
“The times when you have seen only one set of footprints
It was then that I carried you.”
__________________
Nov. 2006-IDC with Her2 +++
A/C for 3 rounds
Dec. 2006- Herceptin and Taxotere
March 2007-MRM with 8 of 14 lymph node involvement
May 2007-36 Rads
Sept. 2007- Stopped Herceptin
Jan. 2010- CT scan shows enlarged lymph nodes in sternum and lung involvement
Feb. 2010-PET scan shows mets to liver, lung, lymph nodes and bone
Feb. 2010- Started Herceptin/Taxol and Zometa
April 2010-PET scan clear. Herceptin and Zometa
June 2010- Stopped Herceptin continue Zometa and still NED
August 2010-Back on Herceptin and Zometa every 3 weeks
August 13, 2010- Had another port placed
August 24, 2010- PET scan clear. Herceptin and Zometa every three weeks
Nov. 2010-PET scan clear
Feb. 2011-Brain MRI clear
March 2011- PET scan clear
May 2011- PET scan clear
Sept. 2011- PET, Mammo, Bone Scan all clear- Herceptin only
March 2012-Recurrence in lungs and tumor around pota hepatis artery. Added Navelbine to herceptin
April 2012- Entered palliative care
June 5, 2012-Entered hospice care
Planning my memorial
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