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10-04-2006, 04:36 PM
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#1
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Senior Member
Join Date: Sep 2005
Posts: 285
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Hate to ask, but I need prayers
Friends,
I hate to ask, but I could use everyone's prayers. Perhaps I'm jumping the gun, but I'm really afraid that today's PETSCAN (where I threw up all over myself while driving there) is going to reveal some bad news. I've been fighting liver mets for 3+ years now, and I think they've decided to fight back with a punch.
I'll report my results tomorrow.
Love and light,
Lisa
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10-04-2006, 04:39 PM
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#2
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Senior Member
Join Date: Sep 2005
Location: melbourne, australia
Posts: 267
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i'll be sending positive thoughts from Australia.
Christine
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10-04-2006, 04:41 PM
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#3
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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You are in my prayers.
Love, hugs and healing prayers being sent your way.
Karen
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10-04-2006, 04:49 PM
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#4
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Senior Member
Join Date: Nov 2005
Location: Lincoln, Rhode Island
Posts: 371
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You have my prayers Lisa.
__________________
Love and Hope
Karen
IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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10-04-2006, 04:54 PM
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#5
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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My prayers are with you, too!
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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10-04-2006, 05:01 PM
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#6
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Lisa,
You have my prayers. I pray your scans will show nothing new.
Hugs and Prayers,
Lexi
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10-04-2006, 05:09 PM
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#7
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Senior Member
Join Date: Sep 2005
Posts: 161
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I'll be sending positive thoughts your way.
__________________
Diag. Oct. 2004 age 54 left breast
Stage 1 grade 3; 6mm IDC; unknown amount of DCIS
with comedo necrosis; node neg.
Nottingham Grade 7/9
ER 91% PR 62%; Her2 3.6 by ICH; KI-67 35%
Nov 2004 Lumpectomy; SNB failed so had
full axillary clearance;
Dec 2004 2nd lumpy for clean DCIS margins.
Jan/Feb 2005 4 A/C dose dense;
33 rads finished 6/2005;
Began 5 years Arimidex in 6/2005
No Herceptin
9/2007 Quit Arimidex due to severe side effects.
NED
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10-04-2006, 05:13 PM
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#8
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Lisa,
Never hate to ask for prayers. Sometimes I think we have it backwards - we say "all we can do is pray" as if that is a small thing.
You most certainly have my prayers, with much love
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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10-04-2006, 05:16 PM
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#9
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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I am always thinking of you Lisa.
Big hugs and well wishes
Becky
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10-04-2006, 05:16 PM
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#10
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Senior Member
Join Date: Sep 2005
Location: Simi Valley, CA
Posts: 94
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Thinking of you too, Lisa, hope you're wrong and all you get is good news tomorrow.
Jen
__________________
Jen
DX 10/04 IDC Grade 3
ER/PR-, Her2+++
4/20+ Lymph nodes
Stage 3a
Age 38, CA
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10-04-2006, 05:23 PM
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#11
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Senior Member
Join Date: Dec 2005
Posts: 274
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Prayers for you
Dear Lisa,
I will say an extra special prayer for you tonight.
God Bless.
Sincerely,
Liz J.
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10-04-2006, 05:42 PM
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#12
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Senior Member
Join Date: Aug 2006
Location: So California
Posts: 223
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Prayers
Lisa:
You will definitely be in my prayers! I HATE this disease.
Lisa
__________________
Leslie's Sister (Lisa)
Diagnosed 5/17/06
Left breast Stage II
5 cm. Her2Neu+++, ER-, PR-
1 positive node out of six,
double mastectomy 6/9/06;
TCH started 7/12/06
last chemo 10/25/06
herceptin ended 6-11-07
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10-04-2006, 05:45 PM
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#13
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Hi Lisa, I will definately include you in my prayers. Why do you think your Pet will be bad, the throwing up was probably nerves. Here's hoping and praying that you will get good news...sherryg683
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10-04-2006, 05:50 PM
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#14
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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You Got It
Dear Lisa -
Every good wish for the Almighty's help for you. We know that you hve been battling as hard as anyone can. Are your liver functions up or other blood work changing?
This disease is the pits, and I know HOW NERVOUS I was before my CT scan today. Had my visit with new med onc and so had "the works" to start fresh with her. Took forever for her to come to my room, as I had only seen the practicioner who had examined me. I was just sure there was some problem cropping up. Turned out that they were just double checking with the radiologist to make sure. All is well, as the two spots they see are stable.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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10-04-2006, 05:58 PM
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#15
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Senior Member
Join Date: Sep 2005
Posts: 290
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Always ask
Dear Lisa,
Chrisy nailed it with her post. We should always ask for prayers from others. The power of of combined prayers is incredible, as it is a display of faith by our Creator's children. It says, "We know You are there, we know You love us, and we put ourselves in Your loving hands."
I have seen the power of prayer first hand on several occasions in my life, and it never fails to leave me in complete awe. And if the news tomorrow is less than "good", it is part of His plan for you. Except it, whatever it may be, and leave the hard stuff for Him. Have faith and continue to trust that He is in control. I will pray for you after I send this post. God Bless you and keep you Lisa.
Sincerely,
Tom
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10-04-2006, 06:17 PM
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#16
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Senior Member
Join Date: Dec 2005
Location: Montgomery Co, Pennsylvania
Posts: 110
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Lisa, you are both in my prayers tonight!
God bless,
Maggie
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10-04-2006, 06:19 PM
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#17
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Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
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Lisa...
DONE...Please try to keep positive thoughts. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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10-04-2006, 06:46 PM
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#18
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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Lisa, you are the bravest person I know. I'm so shy I could never be the human pink ribbon. Said my prayers. I think they have swear words in them right about now. God is love. I am so hoping all works out. Just found out one of my triple neg friends has mets. So sad.
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10-04-2006, 06:52 PM
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#19
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Senior Member
Join Date: Sep 2005
Location: Vancouver, Canada
Posts: 329
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I send you positive energy and you are in my thoughts.
Big hug to you,
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10-04-2006, 06:55 PM
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#20
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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My prayers are with you as well. God's speed.
Barbara
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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