Go Back   HER2 Support Group Forums > Inflammatory Breast Cancer
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Thread Tools Display Modes
Old 06-20-2010, 06:50 PM   #21
Senior Member
Carol.hope's Avatar
Join Date: Sep 2005
Posts: 90
Re: just placed on hospice

You've been through so much, and you're still here! That doctor may have been feeling like a failure himself, but don't take him personally. You have such a strong spirit, so please find somebody who can be strong for you and let you cry if you need to, then pick yourself up and keep turning over those rocks! Lots of people here rooting for you!

love and good wishes to you,
Lyons, CO

dx June '05 at age 55
Stage 1, 1.5cm
ER+++, PR--, HER2+++
Lumpectomy, A/C, T/H
Herceptin stopped due to low LVEF (35%)
2010: NED, but continuing major chemo brain injury
Carol.hope is offline   Reply With Quote
Old 06-21-2010, 11:31 AM   #22
Senior Member
Rich66's Avatar
Join Date: Feb 2008
Location: South East Wisconsin
Posts: 3,431
Re: just placed on hospice

"That doctor may have been feeling like a failure himself"

That's an interesting perspective. I often wonder how oncs get by..probably putting up emotional barriers, compartmentalization, risk of burnout etc.

Mom's treatment history (link)
Rich66 is offline   Reply With Quote
Old 06-23-2010, 04:10 PM   #23
Senior Member
Bill's Avatar
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
Re: just placed on hospice

Hi Charlotte! You doing ok? Just wanted to say hi and let you know that you're in my thoughts and prayers. Love, Bill
For Nicola
Bill is offline   Reply With Quote
Old 06-23-2010, 11:01 PM   #24
Senior Member
Join Date: Apr 2006
Posts: 131
Re: just placed on hospice

Went back to the Onc. today .total waste of time. He speaks of not wanting to take the port out now... So it looks like like I'll keep this sucker for a while now.. I wish he would make up his mind now. now he says it would be "too dangerous" to try and remove it now.
I sometimes think these Drs. play mind games... He doesn't know , once I figure out the steps and "rules and regulations", I am a force to be paid attention too, and not just put on the shelf and forgotten .
I want to thank each and every one for your nice emails and words of encouragement. please remember me in your prayers. I hold each and every one of you in mine..
On a sad note, my dog died last night. They think he was food poisioned.. outlook doesn't look all that great.... I guess its not safe to let your dog out in the yard.
charlotte is offline   Reply With Quote
Old 06-24-2010, 11:58 AM   #25
Faith in Him
Senior Member
Faith in Him's Avatar
Join Date: Jul 2007
Location: Northern California
Posts: 764
Re: just placed on hospice


I am so sorry about your dog. I lost mine about a month ago.

You are due a break. I'm praying that things turn around quickly for you.
DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
Faith in Him is offline   Reply With Quote
Old 06-27-2010, 09:19 PM   #26
Senior Member
ElaineM's Avatar
Join Date: May 2006
Posts: 3,142
Wink Re: just placed on hospice

I am sorry to hear about your dog.
Keep putting one foot in front of the other. Keep asking questions. Keep searching. Keep looking for another doctor. There has to be one out there who can help you without all the hype.
Take care.
12 years and counting
Lucky 13 !! I hope so !!!!!!
14 Year Survivor
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
ElaineM is offline   Reply With Quote
Old 06-28-2010, 03:56 PM   #27
Mary Anne in TX
Senior Member
Mary Anne in TX's Avatar
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
Re: just placed on hospice

Hi Charlotte! I hope today has been a good day for you. Losing your pal, your dog, had to be so very hard. I tell my little "fur person" that she has to promise to live to be 25 and out live me. She's such a blessing.
You are incredible, girl. Sending you prayers and love,
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
Mary Anne in TX is offline   Reply With Quote
Old 06-28-2010, 10:48 PM   #28
Senior Member
Jackie07's Avatar
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,802
Re: just placed on hospice


Just read all your recent postings. Thank you so much for sharing your thoughts and feelings during this difficult time.

I'll post it here whenever I find the quote (the person who posted the quote) you were looking for.

We'll be praying for you.

Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundless(granules?) nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.


Advocacy is a passion .. not a pastime - Joe
Jackie07 is offline   Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is On

Forum Jump

All times are GMT -7. The time now is 04:42 PM.

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2019, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter