Go Back   HER2 Support Group Forums > Clinical Trials
Register Gallery FAQ Members List Calendar Search Today's Posts Mark Forums Read

Thread Tools Display Modes
Old 09-30-2008, 11:10 PM   #1
Senior Member
Join Date: Aug 2008
Posts: 327
Stage 1 means what, exactly?

I thought Stage 1, negative nodes was a good thing.

But I guess when one has her2 positive it doesn't mean much, right?

I have no vascular invasion. I had a 2 cm tumor, IDC on the right breast. I've had bilateral mastectomies. I am weakly ER positive.

Anyone else out there like me? What are my chances of no recurrence? I'm feeling great and have not begun chemo yet - am afraid to start because it looks like Herceptin doesn't have a long track record and I don't like being a guinea pig......

Would love to hear from others who have my same diagnosis. Thanks,


Dx: IDC right breast, Aug 08, 2 cm tumor, grade 3, her2 positive, weakly ER positive, don't know about PR. Bilateral mastectomies Sept. 9 08, 8 negative lymph nodes, no vascular invasion. Stage 1.
DianneS is offline   Reply With Quote
Old 10-02-2008, 12:42 AM   #2
Senior Member
Join Date: Nov 2007
Location: Brentwood, CA
Posts: 76
I have somewhat similar stats. I was diagnosed as a late Stage 1 (or stage I(c) ) but I had vascular invasion. I, too, had a double mastectomy. I then had 6 months of chemo. See below for my treatment history and stats. Herceptin has been around for about 10 years but it has only been used in early stage HER2 positive cancers since 2006. I think the drug has a good safetly profile. You do need to monitor your heart while you're taking it. I found it very easy to tolerate. I don't think you should feel like a guinea pig due to taking Herceptin. There are girls on this board who were the true guinea pigs as they started taking it 10 years ago....and there still here to tell their story. Check out the Lifetime movie on October 18 called "Living Proof". It is about the making and marketing of Herceptin.
Diagnosed October 2006 at age 37 wtih grade 3 IDC and high grade DCIS
Stage 1c triple positive, no node involvement but
vascular invasion
multifocal disease
Lumpectomy November, 2006
A/C every 3 weeks (started Jan., 2007 and finished March 2007); followed weekly Taxol (finished June 2007) concurrent with Herceptin (finished March 2008);
Bilateral Mast with immediate recon in Sept 2007; finished recon Dec. 2007
Started 5 years of tamoxifen Nov. 2007; started peptide vaccine clinical trial at MD Anderson October 2008 and finished active part of trial in April 2009 (monthly injections of AE37 peptitde (HLA type specific) with GM-CSF or GM-CSF alone depending on if I was in experimental or control group); started Zometa infusions June 25, 2009- 4mg every 6 months for 3 years (taking it "off-label" to try to prevent mets)
Janelle is offline   Reply With Quote

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump

All times are GMT -7. The time now is 06:02 AM.

Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2020, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007
free webpage hit counter