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Old 08-03-2011, 05:57 PM   #1
msleslie
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Posts: 120
Survivorship Plan

Have you heard about the Survivorship Plan which is being piloted in many facilities across the United States? A Survivorship Plan is a comprehensive summary of your tumor characteristics, diagnosis, treatment, medications, medical team, and symptoms. This plan also provides you with a 10yr plan for your follow-up maintenance appointments. It is a great tool that we can share with future doctors and also can be utilized by caregivers if you become to ill to keep up with your health.

I just wanted to take a moment to encourage everyone to own your health - have your Survivorship plan done today.
__________________
6/14/2010 - Self discovered Lump; Age 39
6/24/2010 - Biopsy results confirm breast cancer
Right breast, invasive ductal adenocarcinoma
HER2neu positive, BRAC I & II negative
7/8/2010 - Lumpectomy right breast, sentinel lymph node biopsy, & port-a-cath installed on left
Stage II, Size 3.2cm, Clear Nodes, Clear Margins
8/19/2010 - Chemo begins - Taxotere, Carboplatin, Herceptin & Tykerb all simulanteously; ALTTO trial arm 4
9/9/2010 - Chemo dose #2
9/30/2010 - Chemo dose#3
10/21/2010 - Chemo dose#4
11/11/2010 - Chemo dose#5
12/02/1010 - Chemo dose #6 - WooHoo, it is complete!
12/14/2010 - Simulation & Planning session for radiation
02/18/2011 - Completed radiation treatment (33 rounds)
08/04/2011 - Completed Herceptin & Tykerb
09/30/2013 - ultrasound guided biopsy (following annual MRI)
10/1/2013 - new cancer in left breast. 6mm discovered via MRI
10/28/2013 - bilateral mastectomy - no reconstruction
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Old 08-05-2011, 04:30 AM   #2
mamacze
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Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
Re: Survivorship Plan

Thanks for sharing this idea! I had heard a bit about it on the news; taking charge of your own medical data is good ... knowledge is power, right?!?
Kim from CT
__________________
2001 - Stage 0, lumpectomy, radiation, tamoxifen

2004 - Stage 4, mets to 4 lobes of lungs and liver, lumpectomy, er/pr -, her2 neu+++, Herceptin and Navelbine then Herceptin only.

2005 - Breast Ca vaccinations with the Tumor Vaccine Group in Seattle

2011 - Still Herceptin only and NED


2011, June - STOPPED Herceptin and kicked up my heels!

2012, February - 1 small tumor came back to haunt me in my lungs - back on Herceptin only, tumor stable.


2015, November - tumor on lungs removed (Segmentectomy), back on Herceptin only
Received U of W vaccine clinical "booster" Vaccine


2022 On Herceptin and NED continues - WOOT WOOT!
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