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Old 02-24-2012, 09:21 AM   #11
michka
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Join Date: Feb 2007
Location: Paris, France
Posts: 858
Re: Bad Pet. I need you.

Hi Sarah. Thank you so much for asking around you. I saw my onc today. It was strange. He kept looking at the Pet/Scan and said he wanted a scan next week and that then we would see. He seems to question some of the spots but did not say that that clearly.(Especially for the lungs(. He then said that if we can have a biopsy of a node he would ask a Dr in Gustave Roussy to do a chemo test on it plus on the slides from my last liver resection. I didn't even know they did that in France but it seems to be a sort of study in IGR in cooperation with a US hospital. I don't know more. Another week to wait. I am trying to keep my mind busy.

My original nationality? Well I am born in NY, in Sloan Hospital, from an American mother and a French father. My grandparents on my mother's side were American. My grandfather on my father's side became American before the war and my father became American just after the war towards 1946. So he was also american 10 years before I was born. My parents moved to France in 1960 when I was 3. So I learned English by speaking with my mother and I worked for american cies for years.. That's why my English should be better! But after 52 years in Paris and a poor brain....
__________________
08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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