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08-21-2006, 06:37 AM
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#1
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Member
Join Date: Apr 2006
Posts: 13
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My cousin's wife passed away today...
she had just turned 38yrs old last week, she leaves behind two boys ages 10yrs and 5yrs. I had posted a few times about her or asking questions on this website. She was dx last yr with breast cancer, her + er/pr -, apparently the fish test results came back - initially so she was started late on herceptin, but she underwent a mastectomy/rad/chemo and was told she had ned until it came back late last yr into her spine and 9 lesions on her brain.
More of her story is posted by her husband on this website; battleforbundy.com.
Let's all pray for a cure for this horrible disease!
3sweeties.
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08-21-2006, 07:07 AM
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#2
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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I am so sorry for your loss. I went to the website and I could see by the many postings that she was loved.
My thoughts and prayers to her husband and two sweet boys.
Hugs,
Karen
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08-21-2006, 08:31 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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I am so sorry to hear your news.
A big hug and love
sarah
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08-21-2006, 11:17 AM
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#4
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Senior Member
Join Date: Jun 2006
Location: Central North Carolina, USA
Posts: 112
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What was her full intial diagnosis?
I am so sorry to hear about your cousin. What was her full intial diagnosis?
What stage was she?
Was she node neagtive or postive?
What size and grade was her tumor?
You mentione dthat she was PR-. What was her ER status?
__________________
DX 11/14/05, Stage 1C, Her2+ 3.4, ER+, PR+, K167 23%, Node Negative, MX0, Grade 3, 1.8CM, Lumpectomy 12/7/05; 6 rounds dense dose Taxol bi-weekly, 35 radiation, 1 year Herceptin, & Tamoxifen ongoing.
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08-21-2006, 12:08 PM
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#5
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Member
Join Date: Apr 2006
Posts: 13
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astrid
At initial dx early 2005, she was Stage 2, only 1 out of 10 nodes was + for cancer, tumor size was 3cm, er-/pr-. At dx they said she was her- (mistake by pathologist), she underwent mastectomy, radiation and was given chemo; taxol.
Cancer reoccured later last yr and was found in her spinal fluid and 9 mets to her brain, she went to a "wellknown" cancer center and they wondered why she she developed mets to rapidly so they re-ran some tests and found out she was in fact her+, she was started on herceptin, she was given wbr for the brain tumors, had an ommaya reservoir inserted for chemo, at some point in time she was also on depocyte, xeloda etc.
She developed carcinomatous meningitis and ended up being unable to walk, see or hear, she also had developed white matter disease in the brain secondary to the wbr.
3sweeties.
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08-21-2006, 12:36 PM
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#6
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Senior Member
Join Date: Mar 2006
Posts: 1,843
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No words.
So Sorry
RB
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08-21-2006, 12:51 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
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My deepest sympathy to you and her family.
Barbara H.
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08-21-2006, 12:55 PM
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#8
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Senior Member
Join Date: Jul 2006
Posts: 146
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Sympathy
My sympathy to you and your family for losing such a young mother to this terrible disease. I also pray there will eventually be a cure for this disease that hits too many young and old people. I won't go into my details except to say I have also had BC and was in remission for 10 yrs before it returned.
ginkott1@aol.com |
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08-21-2006, 12:56 PM
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#9
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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My hart goes out to you and her family...they have lost a precious gift....may the memories she made sustain all of you for a lifetime.....she is watching over you now
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-21-2006, 01:00 PM
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#10
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Senior Member
Join Date: Mar 2006
Location: Northern Va
Posts: 84
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I am so sorry for your loss. I too pray for a cure to this horrible disease. She was much too young.
__________________
Cheryl
Stage II, Grade III, ER+/PR-, Her2 3.0 amplified, N 0/5, dx 9/05, 39 yrs
Right Mastectomy, immediate tram flap reconstruction
4 AC, 4 Taxotere finished 3/15/06
Currently on Herceptin and Tamoxifen
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08-21-2006, 02:21 PM
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#11
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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I too am so very sorry to hear this sad news.She was taken way before her time and far too young.God bless her family and in particular her children.There just are'nt enough words to say how sad this is.
Tricia
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08-21-2006, 04:04 PM
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#12
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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I am so sorry to hear of your loss. May you have wonderful memories to bath in. It brings tears to my eyes when I hear of us loosing another sister to this disease and even worse with the young leaving behind small children. Sending you all a hug, Sandy
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08-21-2006, 04:17 PM
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#13
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Senior Member
Join Date: Dec 2005
Location: Montgomery Co, Pennsylvania
Posts: 110
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I too, am so very sorry for your loss! So young, so sad!
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08-21-2006, 05:03 PM
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#14
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Senior Member
Join Date: Aug 2006
Location: St. Louis Mo
Posts: 57
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My heartfelt sympathy goes out to you and your family. Kool
__________________
Kool
DX 3/05
Stage IIB 1.3cm w/ lymph node involvement
ER+++PR+, HER2+++ G3
Surgery - Left mastectomy 4/05, Lymph node removal 5/05, breast expander removal 6/05, partial thyroidectomy 7/05, Right mastectomy 1/06
Post Menopausal due to hyserectomy 2/03 (took hormone replacement)
Treatment - A/C, Taxol and Herceptin, Herceptin only (finish 10/06), Arimidex daily.
Age 50
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08-21-2006, 07:31 PM
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#15
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Senior Member
Join Date: Sep 2005
Posts: 312
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My sympathy for the loss of your loved one. So sorry to hear she left so young when she still had a lot more to do and see. And be with her children.
I hope that her story may help others be more aggressive in their demands for second opinions at all stages of treatment. My tumor was looked at by three places including Sloan Kettering. Lets hope others think about this and demand if necessary. Mistakes are human so it doesn't hurt to check at least twice.
Sincerely,
Janet
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08-21-2006, 07:48 PM
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#16
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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So sorry to hear this. Definitely joining you in prayers for your cousin's family and for that elusive cure to end all the sorrow of losing loved ones way too soon.
God bless you,
Chris
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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08-21-2006, 08:38 PM
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#17
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Senior Member
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
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My condolences as well. Bev
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