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Old 06-27-2007, 01:13 PM   #1
momdeeco
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Hot flashes

I have really been bothered by hot falshes. I have tried decreasing caffiene, exercising, Effexor XR 75 mg, Clonadine, Lexapo10 mg, and now Paxil CR 25 mg. Only thing that I have noticed is a few extra pounds! I have as many as 20 a day. They are the sweaty, nauseating, anxiety kind of hot flashes. Has anyone tried anything they think really works? I know it is probably minor in the big pictures, but it is disrupting my daily activities.
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Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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Old 06-27-2007, 02:19 PM   #2
Mary Jo
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Hi,

I experienced similar hot flashes while going through chemo (like every 20 minutes and I'm NOT kidding). Was really hell. I'd often say that part was wayyyyy worse than the actual chemo. About 2 months after chemo ended hot flashes also decreased CONSIDERABLY and eventually stopped all together. Just recently they have kicked in again. Not nearly as bad or as often but a "pain" all the same. However, I'm the type of personality that I'll just live with them and let them run their course. Eventually they will stop. I don't like take any "drugs" of any kind so feel better just dealing with them naturally.

Hope they let up soon.

A "chilly" hug I send.

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 06-28-2007, 04:43 AM   #3
kristen
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Cool

Hot flashes.... I have tried alot of the things you have, The Lexapro and Paxil, ran it's course and then stopped working, I then went to Melatonin off the shelf, again worked for a bit then stopped. My doctor has me on Rosarem and it worked for a while, then has stopped, but I am still on it an added Nortriptalyne (SP) and am sleeping great. Have you tried Ativan for the anxiety, I liked those when going through treatment. Works in about 45 minutes and doesn't need to build up in your system?
A friend gave me a "chillo" you can get them off the internet. It works pretty good. It's a pillow that holds water and you put it under your pillow and when you get up from sweating you put your head on it and it will cool you down. I have two fans running on me, so for right now, with the meds and the above, I am finally sleeping through the night. Day time, I still have them and dress in layers. Good luck, Good thread, I'd like to see what others are doing?
I went through it twice, once with chemo, then started again, had LAVH and the HF's are still going strong 1.5 yrs later. YIKES, will it ever end?
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Take care, k
DX: 10/29/03-Stage IIB, 3/12 nodes +, er/pr-,
Grade 3
MRM: 11/07/03
TX: TCH-BRICG Study-6 tx's; 12/15/03
Herceptin; til 12/14/04
Rads: 30 days
BRCA neg
S-Gap: 12/15/04
Oct 05: LAVH
NED
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Old 06-28-2007, 09:08 AM   #4
suzan w
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Red face

I don't have any good advice for the hot flashes...I have them frequently. I am taking arimidex and that is a side effect. When I have one I try to feel thankful that the medication is working!!! For me, the worst ones are at night and it has been really disruptive for sleeping. I have tried prescription sleep meds to no avail. Hot and cold hugs to you!
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age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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Old 06-28-2007, 09:18 AM   #5
Jeanette
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Talking Hot flashed

This is second go around with hot flashes for me. First time going thru menapause, that was a bugger. Now with Arimidex. Not too bad, but a little uncomfortable. I am like mary Jo though, I don't take anything for them. I find it easier to just work thru them. Even before Cancer I never did like to take any pills or medicine. Of course at that time I was as healthy as a horse, or so I thought. I feel that if this is all I have to put up with I can handle it.Blessings and Hugs to you all,Jeanette
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Old 06-28-2007, 04:52 PM   #6
danceswithrain
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Talking Spontanous Combustion

Any one who doesn't believe in it never had the every 20 minutes chemo induced hot flashes. Full fans at night, window open in Alaska (about 49 degrees outside) I'm freezing out my hubby.
Anybody know if it's ok to take Black Cohash on TCH?
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dia 4/07 stage 3 grade2
4.3cm w/enlarge lymph nodes;
er/pr-,HER2+++;Ki67 55%
TCH X3 every 3wks till 8/7/07,
Herceptin till 4/4/08
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Old 06-29-2007, 04:07 AM   #7
Sheila
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Hot flashes....what would life be without them....I have had them for over 2 years now...worse at night. I don't take anything, but did get the hubby to purchase the sleigh bed I always wanted, with a pillowtop mattress....makes sleeping a little easier. I try to avoid hot liquids...plenty of water and cloths to wipe my face with. I was told black cohash was not good if you are ER+....can't remember where I heard it...it seems to counteract the Arimidex Tamoxifen etc.
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is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 06-29-2007, 09:43 PM   #8
sassy
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Neurontin

Almost two years after Dx, my bodoy was trying to come out of menopause, complete with hot flashes and lots of various aches and pains and a real emotional roller coaster. I was switched to monthly Lupron shots from every three month shots which stepped up the roller coaster ride.

My onc suggested Neurontin for the hot flashes. This is a relatively new treatment for menopausal side effects. It is actually an anti-seizure drug.

After working on dosages for a couple of months, I am amazed at the difference in how I feel. The hot flashes are gone, allowing me to sleep better, which I am sure contributes to my feeling better in general. The various aches and pains are much better, however I do still have stiff joints and a hip problem that I will post about in another thread. One negative of Neurontin is increased apetite, so along with the Lurpon and Arimidex leaves me really fighting my already spreading girth.

I would recommend trying Neurontin--it has made a huge difference for me.
________
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Last edited by sassy; 08-22-2011 at 09:20 AM..
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Old 06-29-2007, 09:56 PM   #9
mslinda
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Neurontin

Hi Sassy:
My oncologyst has just prescribed the Neurontin for my hot flashes, aches and pains. I am on 300 mg, and now on my 2 pills daily. I am still walking around in a daze until about noon or so. Sure do sleep well at night. I am concerned about the possible weight gain, as I surely do not need that. I was skeptical when she prescribed it. But decided to give it a try. So far so good as far as the hot flashes go. I am having a lot of hip pain, shoulder and neck. Also been having some dizzy spells and light headaches. Having an MRI on the 5th. of the brain and left shoulder. Not looking forward to the time in that tube.

Take care
Linda
S. Mississippi
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Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05

"Worry looks around. Sorry looks back. Faith looks up."
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Old 06-29-2007, 10:16 PM   #10
sassy
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Linda,

I had a short period of dizziness, etc while trying to figure out what was the best dosage of Neurontin. We finally settled on 600 mg four times a day. It took about two months to get to that level and stay on an even keel. I think it is very important to maintain the level of meds at a constant. If I miss a dose, by 30 minutes later I go into a full body flush!

Weight is certainly an issue for me, but it was before the Neurontin. The Neurontin just hasn't helped in that arena!

Hope all goes well for you.
________
Hey_Hey cam

Last edited by sassy; 08-22-2011 at 09:20 AM..
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Old 06-30-2007, 04:45 PM   #11
Susan M(PA)
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Posts: 20
I can relate to the anxiety and hot flashes, but my anxiety and
mood swings are the worst. I don't tolerate the antidepressants well,
too sedating or nauseating.

Check out www.susanlovemd.com search menopause, lots of info.

www.healthforums.com lots of ladies there who are having
disabling symptoms without breast cancer, but may be helpful.

Can anyone tell me what's the latest on black cohosh
and breast cancer? Are the oncos still saying no, seems
Dr. Love is taking RemiFemin. My GP prescribed and
sold me black cohosh, then again I'm stage I.V. HER 2, ER& PR neg.,
lung mets treated three times since 2002, currently on Herceptin weekly.
Maybe my GP is more concerned with quality of life issues than my onco.

Any thoughts on Black Cohosh? It seems to stop my hot flashes,
but I still toss and turn without taking another med, although family doc says it will help other symptoms.

Susan M(PA)
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Old 07-01-2007, 08:21 AM   #12
momdeeco
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Location: Bartonville, IL
Posts: 70
Has anyone tried acupuncture for hot flashes?
__________________
Karla
8/05 NORMAL MAMMO
11/05 DX AFTER FINDING LUMP AGE 47
STAGE 1 HIGH RISK
1.1 CM/NODE NEG
ER-/PR- HER 2 +++ GRADE 3
12/05 PARTIAL MASTECTOMY
1/06 CHEMO AC DD X 6
5/06 RADS X 30
10/06 STARTED HERCEPTIN AFTER 3RD OPINION
3/07 GENETIC TESTING-GENE VARIANT FOR BRCA 1 AND 2
3/07 STOPPED HERCPTIN DUE TO LOW EF
BSO 8/08 (P53 SIGNATURE--PRECANCEROUS CELLS)
11/08---IN A STUDY/MRI EVERY 6 MONTHS/MAMMO EVERY YEAR
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