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Old 03-01-2013, 03:08 PM   #1
NanaJoni
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Join Date: May 2010
Location: Elizabethton, TN
Posts: 418
Re: Not sure what to think of the info I got today

Leah - so glad your dr was reassuring today (and is kind enough to know you needed a hug). I have some scarring from radiation treatments on top of a lifetime of ashthma and bronchitis which also scars. So SOB is a chronic problem with me. I notice that, aside from Herceptin, you are finished with all the "big" treatments and may be experiencing (and I have heard of many others) the "end of treatment" anxiety. It's as if a safety net has been pulled out from under you. No more big guns to fight the cancer. And, believe me, that can lead to anxiety - I also had some minor tingling in hands and feet especially feet at night when doing long-term Herceptin. I started taking 100 mg of B6 every day and it really minimized the tingling. As always, ask before taking but 100 mg is a standard dose and shouldn't cause any problems if you go that way. Give yourself some time to relax and enjoy being done with chemo and radiation. Let your body and spirit heal as spring comes.
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Joni -64 yrs old -
3/01/10: found lump in rt.breast
3/12/10: mammogram/ultrasnd/biopsy-invasive bc & DCIS; 2 tumors (2cm er-/pr-/HER2-& 1.8 cm er-/pr-/HER2+); grade 3;poorly differentiated
3/24/10:sent.node biopsy clear
3/31/10:bi-lateral mx.;atypical ductal hyperplasia-lft side
4/21/10:wound revision-infection/scarring 4/28/10:seromas both sides
5/21/10:port installed,TCH chemo (6 x 3 wks); Herc,-1yr; 33 rad tx after chemo
07/2010: port not working-2nd port didnt'work;3rd port opposite side.
07/2010: 2 weeks after 3rd port surgery, threw 3 pulm. emboli-IVC filter installed; warfarin
08/2010: hospitalizations w/3 of chemos; decision to stop after 4th-on to radiation in Oct 2010;Herc cont.
12/03/2010 - finished 33 rads Hooray!! cont. Herc. every 3 wks
4/2011 - pneumonia ??? Nope-radiation pneumonitis. No more Herc.
5/2011 - NED!!! port out.
8/2011 - clean PET & CT scans.Still NED
7/2012 - Still NED/very blessed.
2/2013 - 6 mos checkup-all clear. CA2729 down frm 13 to 11.
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Old 03-02-2013, 10:18 AM   #2
caya
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Location: Thornhill, Ontario Canada
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Re: Not sure what to think of the info I got today

Wow Leah, your doc is amazing - also love that "if you were my sister" line- I wish all docs would remember that...
BTW, I developed SOB about a year ago, only noticed it when I was climbing up stairs, or going for long walks. With BC of course I immediately thought the worst, my GP did send me for a chest Xray, which was clear, but she also sent me for a special breath test, where you blow really hard and long into this tube and they measure ... well guess what, turns out I now have asthma - I strongly feel this is a late s/e from Herceptin. So I have an Advair disk and emergency puffer - I only use the disk occasionally, and the puffer maybe 3 x in the past year. More parting gifts from BC treatment, but hey, it is what it is.

Keep well.

all the best
caya
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ER90%+/PR 50%+/HER 2+
1.7 cm and 1.0 cm.
Stage 1, grade 2, Node Negative (16 nodes tested)
MRM Dec.18/06
3 x FEC, 3 x Taxotere
Herceptin - every 3 weeks for a year, finished May 8/08

Tamoxifen - 2 1/2 years
Femara - Jan. 1, 2010 - July 18, 2012
BRCA1/BRCA2 Negative
Dignosed 10/16/06, age 48 , premenopausal
Mild lymphedema diagnosed June 2009 - breast surgeon and lymph. therapist think it's completely reversible - hope so.
Reclast infusion January 2012
Oopherectomy October 2013
15 Years NED!!
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