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05-13-2010, 03:05 PM
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#1
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Remembering Carol, on year on:(
I don't know if anyone will recall her posting but we were put in touch through this site and thanks to Chrissy who mailed me that Carol needed help, she could'nt get herceptin in Scotland and was already stage iv so wanted to move to her husband's home in Ireland.
I was glad to help and we became firm friends and I visited her in hospital and kept in touch throughout the next two years until she sadly passed.
Carol was the bravest lady I ever met and taught me so much, this disease stole so many years of life from her and her two young children.
I'm remembering her with fondness this week as her first Anniversary comes up and am very thankful to have have know this special lady and made a differnce to her and her family's life...albeit for a short time.
Carol was buried under a tree overlooking a lake deep in the countryside, her house over looked the cemetary.
I was glad to meet her husband and children who surprised me by knowing exactly who I was and said " You're Tricia from her2" !!!! 
I just wanted to take a moment to share a special memory and remind everyone just what a special site this is...it really can change lives and did for Carol
Here's Carols story for anyone interested
http://her2support.org/vbulletin/showthread.php?t=23076
Tricia x
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
Last edited by tricia keegan; 05-14-2010 at 12:33 PM..
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05-13-2010, 04:18 PM
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#2
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Senior Member
Join Date: Dec 2006
Posts: 415
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Re: Remembering Carol, on year on:(
What lovely memorial in honor of Carol.
Thanks for sharing that with us Tricia.
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05-13-2010, 04:22 PM
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#3
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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Re: Remembering Carol, on year on:(
Tricia,
Thank you so much. Carol will be missed.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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05-13-2010, 05:15 PM
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#4
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Senior Member
Join Date: Sep 2009
Location: Kensington, CT
Posts: 394
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Re: Remembering Carol, on year on:(
Tricia,
What a beautiful story which touched my heart. You and Carol were given the gift of friendship. Thank you for sharing about Carol.
Kris...
__________________
06/08/09 - 55, IDC, IIIA, ER+/PR-/HER+++
Nottingham 6/9 - Grade 2 5.2cm, several nodes
06/23/09 - Neoadjuvant - TCH Herceptin til June
10/07/09 - Finished Chemo
10/27/09 - Mastectomy RB
Path Report: RB No residual tumor pCR,
2 of 15 pos - .5mm largest micromets
12/18/09 - Radiation started (28)
02/05/10 - Finished Radiation
01/11/10 - Started Femara
06/22/10 - Finished Herceptin.. My son's 22nd BD. Hope it's a sign! Hoping for the best.
11/15/10 - Started Walter Reed BC Vaccine trial at
1/04/11 - Sibley Mem. Had to withdraw due to met
01/23/11 - Stage IV - Brain Met 1.6cm 1.7cm
02/03/11 - Gamma Knife (2 fracts to minmize necrosis)
03/01/11 - Gamma Knife
6/11 - Necrosis
7/11 - Necrosis stopped & Tumor progression
8/11 = Now think it's really necrosis
9/11 - Avastin every two weeks -- It's working!! Necrosis is shrinking.
12/11 - Necrosis gone AVASTIN worked.
12/11 - Bone &CT found
Oct '10 - Ran Hartford 1/2 Marathon to Thank Dr. Slamon for Herceptin!
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05-13-2010, 05:45 PM
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#5
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Senior Member
Join Date: Feb 2006
Posts: 437
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Re: Remembering Carol, on year on:(
thank you Tricia. Carol was certainly a beautiful person, and you a good friend.
__________________
Linda
Dxed Stage IIIC May 05, 12 pos nodes
er/pr -neg,Her -pos
LVI
Right partial mast & partial axillary dissection-June14,2005
Right modified mast-no clear margins- June 30, 2005
DD AC x4
Taxotere X4 with Herceptin
Rads x 35( 5 fields )
Left prophylactive mast( atypia & hyperplasia found ),
put on Tamoxifen x 1 yr; D/ced due to endometrial thickening
bilateral recon (saline implants)May 06
Nipple recon July 06
metformin 2010
removal of implants due to severe encapsulation, insertion of gummies 2013
Reclast Q yr
NED!!!
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05-13-2010, 09:26 PM
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#6
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Re: Remembering Carol, on year on:(
Tricia,
Yes, I remember Carol - how thoughtful of you and kind.
You are such a loving lady.
I will certainly say a prayer in her memory.
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-14-2010, 07:57 AM
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#7
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Senior Member
Join Date: Jul 2007
Location: Canada
Posts: 2,193
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Re: Remembering Carol, on year on:(
I remember Carol too. You were both very lucky to meet and
develop a strong friendship. There are some good things that come
from this crappy disease.
__________________
PinkGirl
Dx Aug/05 at age 51
2cm. Stage 2A, Grade 3
ER+/PR-
Her2 +++
Sept 7/05 Mastectomy
4 FAC, 4 Taxol, no radiation
1 year of Herceptin
Tamoxifen for approx. 4 months,
Arimidex for 5 years
Prophylactic mastectomy June 22/09
" I yam what I yam." - Popeye
My Photo Album
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05-14-2010, 08:09 AM
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#8
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Re: Remembering Carol, on year on:(
Tricia
I remember Carol...she was a true blessing you received from this disease.....I always say that through all the bad things, this disease has brought me hope, love and strength through the paths i've crossed along this journey
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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05-14-2010, 12:29 PM
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#9
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Remembering Carol, on year on:(
Thank you everyone, I posted this last night and thought I'd lost it to cyber space so went to bed and just saw that it did go though okay
I just felt the need to give her a mention here, we've lost many on the site far too soon and I think it's fitting to give a mention around an Anniversary time, especially when without this site we would never have met.
I was humbled to help someone in Carols situation as could imagine needing that help myself and could relate to how she felt as stage iv.
She taught me a lot unintentionly and will always have a special place in my heart and it was my privelidge to know her albeit for a short time. xx
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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05-14-2010, 02:00 PM
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#10
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Re: Remembering Carol, on year on:(
Tricia,
Thanks for the post.
Amelia
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05-15-2010, 11:08 AM
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#11
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Senior Member
Join Date: Jun 2007
Posts: 216
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Re: Remembering Carol, on year on:(
Tricia,
Just to say what a lovely person you are, such a nice tribute for Carol.
Janie
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05-15-2010, 01:29 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Re: Remembering Carol, on year on:(
Dear Tricia, I was so touched by your post about Carol, and read all the posts you referenced. What a beautiful person she must have been, and what a very loving person you are to have helped and befriended her. I have a special place in my heart for you, and not just because you are a namesake! I have a great great grandmother who I've been told came from Ireland, and I've always wanted to go there. I don't know exactly where she was from but hope someday to find out. I have some wonderful stories about what an incredible woman she was and I hope I have inherited some of her strength and determination. Whenever I think of Ireland now I think "I have a friend there who is also named Tricia K." , and I always watch for your posts. Thank you for your tender remembrance of your friend Carol! Hugs, TriciaK
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05-15-2010, 04:57 PM
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#13
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Senior Member
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
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Re: Remembering Carol, on year on:(
JanieR, thank you so very much for your kind words, this post was to have been about Carol rather my own intervention into her life but I very much appreciate the thought
Tricia K, more than a namesake and I so look forward to your posts too
something should have told me you were part Irish with that fighting spirit you display, which I'm sure has bc running for the door and scared to come near you again!!!!
I hope you get to visit soon and am sure you'd enjoy our country, our histories are linked with so many Irish people fleeing to your country way back and were made welcome and given the chance and opportunity to make a life. It's a similar story here now, in that the Irish in general welcome any new race or visitor's here, especially the American people who helped us in the past.
I really hope I get to meet you one day here and show you around our capital city of Dublin. I think you'd like it, and thank you for your thoughtful words to me about Carol xx
Tricia
P.S...Your surname is not Keegan by any chance ??
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
Last edited by tricia keegan; 05-15-2010 at 04:59 PM..
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