I have a few photos that will give a little idea of our activities at the 2011 San Antonio Breast Cancer Symposium.
Number 1 - Her2 group has pow wow to work on ways to tweak the web site, raise new money, and get input from various perspectives.
Number2 - Chrisy sits among luminaries in the breast cancer world (with Musa Meyer and Dr. Edith Perez on the right). She is on a panel at the Genentech Advocates Briefing answering questions from the patient/advocate viewpoint. We were busting our buttons for her!
Number 3 - End of Advocate's Briefing - Her2's with JoDulay, center, Associate Manager of Genentech Advocacy Relations.
Number 4 - Brenda with her surgeon.
Number 5 - AliceM and Debra Druther intently listen to preview of the results on Pertuzamab trials.
Number 6 - Dr. Hope Rugo closes out the last session speaking about the challenges and successes in treating metastatic breast cancer in year end review. This shows just a tiny part of the really huge room with thousands of chairs. They have about 10 of those Jumbotron screens throughout that hall.
__________________ "When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
HER2 Group Busy in San Antonio - pics, etc.
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