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Old 05-01-2016, 10:00 PM   #21
agness
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Join Date: Aug 2014
Location: Seattle, WA
Posts: 285
Re: Five Years Stage IV

Congrats! Great advice too. Here's to many more.
__________________
  • Dx 2/14 3b HER2+/HR- left breast, left axilla, internal mammary node (behind breast bone). Neoadjuvant TCHP 3/14-7/2. PCR 8/14 LX and SND. 10/21-12/9 Proton therapy to chest wall.
  • Dx 7/20/15 cerebellar met 3.5x5cm HER2+/HR-/GATA3+ 7/23/15 Craniotomy.
  • 7/29/15 bone scan clear. 8/3/15 PET clean scan. LINAC SRS (5 fractions) Sept 2015. 9/17/15 CSF NED, 9/24/15 CSF NED, 11/2/15 CSF NED.
  • 10/27/15 atypical uptake in right cerebellum - inflammation?
  • 12/1/15 Leptomeningeal dx. Starting IT Herceptin.
  • 1/16 - 16 fractions of tomotherapy to cerebellum, break of IT Herceptin during rads, resume at 100 mg weekly
  • 3/2016 - stable scan
  • 5/2016 stable scan
  • 7/2016 pseudoprogression?
  • 9/2016 more LM, start new chemo protocol and IV therapy treatment with HBOT
  • 11/2016 Cyberknife to temporal lobe, HBOT just prior
  • 12/2016 - lesions starting to show shrinkage
  • 8/2017 - Stable since Dec 2016. Temporal lobe lesion gone.
  • Using TCM, naturopathic oncology, physical therapy, chiro, massage, medical qigong, and energetic healing modalities in tandem. Stops at nothing.
  • Mother of 2 boys - ages 7 and 10 (8/2017) and a lovely partner with lots to live for.
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Old 05-05-2016, 10:11 PM   #22
Mtngrl
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Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Re: Five Years Stage IV

Oddly, one of the effects of NOT having a more speedy demise is figuring out what to do with myself year after year. I live my life, of course, and I try to make it count for something. One thing I feel passionate about is helping others who are dealing with cancer. I realize the very fact I'm still around might help light other people's paths.

I'm grateful for every day, and every breath. I am aware that everything could change abruptly, but it no longer haunts me. In a strange way, having death perching on my shoulder and whispering in my ear for five years has been liberating. It helps me keep everything in perspective.

Amy
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Old 05-11-2016, 11:09 PM   #23
Pray
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Join Date: Apr 2011
Location: Michigan
Posts: 1,173
Re: Five Years Stage IV

So happy for you and your family! Thank you for posting.
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dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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