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Old 03-21-2010, 02:32 PM   #1
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Join Date: Sep 2005
Location: Ridgewood, NJ.
Posts: 3
Over 8 years and counting

I haven't posted in over a year, and just wanted to let you know I am still healthy and happy! Can't believe it. There is always hope, although it can certainly look pretty grim, especially in the beginning!
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Old 03-21-2010, 02:58 PM   #2
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Location: Hunterdon Cty, New Jersey
Posts: 51
Re: Over 8 years and counting

Hi Juliet,
Congratulations on 8 years! I hope to join you in that category!! Did you have inflammatory breast cancer? If so, I'd love to talk more with you. Thanks! yingling304@comcast.net
Best to you,
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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Old 03-23-2010, 04:40 PM   #3
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Location: Northern Calif.
Posts: 981
Re: Over 8 years and counting


That's terrific!! I am so happy that you are doing well. Thanks for coming back to share with us!!

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Old 03-23-2010, 05:20 PM   #4
Midwest Alice
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Location: Southern Indiana
Posts: 455
Re: Over 8 years and counting

Great news!!!
Thanks for coming back. You give us hope!!

Hugs and congrads,

04/08 age 50 III IBC Her2+++ ER/PR-8cm 14/14 Double M, Body and Brain CT/PET clear, ? on spine,Muga 53
06/08, 4 A/C, Neulasta
08/08, Herceptin/tax 12 every week
10/08, CT/PET clear, ? on pelvis, hips, MUGA 43, started Enalaprial for heart, Herceptin every 3 weeks
11/08 33Rads; 12/08 MUGA 48
2/09 MRI spine and bone scan, old mets to spine, Chest x-ray, blood work, IV NED,regular CPAP use,Zometa x6, first -flue like symptoms 2 days;Herceptin x3; stage 2 lymphoedema..sleeve and glove
4/09 Brain MRI - CLEAR; MUGA 54
7/09 chest ultrasound,
10/09 PET, brain and spin MRI NED Herceptin only. MUGA 59!!!
1/11 Hip replacement 7/11 Hip 2 replacement
4/12 4 years!! Herceptin
6/12 start reconstruction finish in 12/12
2/14 Herception - 6 years!!!

1 Corinthians 10:13 "No temptation has seized you except what is common to man. And God is faithful; he will not let you be tempted beyond what you can bear. But when you are tempted, he will also provide a way out so that you
can stand up under it."

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Old 11-11-2010, 07:14 AM   #5
Mary L
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Location: PA
Posts: 297
Re: Over 8 years and counting

Hi Juliet. I am a new member and I am also an 8 year survivor of stage IIIB IBC I was so happy when I saw your story on the IBC site. There are not alot of us around. Actually, we are truly blessed. I was diag. 2003 and given the usual chemos, mastectomy, followed by rad. It came back 9 months later apparent by the raised, red inflammation that was spreading across my mastectomy site I had two options, one was very drastic surgery that more than likely get all the cancer cells or try this new cancer drug, Herceptin. I started the Herceptin along with Carboplatin the next day. In 3 weeks the inflammation was fading and in 3 months it was all gone. I stayed on Herceptin for 5 years only stopping when my heart tests showed that it was affecting my heart. I had 3 recurences when I was off the Herceptin but when I went back on he cance would disappear. I have been cancer free and off herceptin for 3 years this Oct. 2010. I would love to hear from you. Also congratulations on your 8 year survival! Mary L
Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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Old 11-20-2010, 09:31 AM   #6
Join Date: Jul 2010
Location: Seattle
Posts: 8
Re: Over 8 years and counting


Congratulations, I hope to get their too. I seem to be in a bit of deep hole right having been just diagnosed with brain mets. I will try and connect with Leslie but would love to hear from others who made in through this part of the journey.

Momma Sharon

1/7/10 Diagnosed IBC while BF twins a pleomorphic infiltrating lobular carcinoma; 12x9 cm; ER+, PR+, HER-2/neu++; Ki-67 80%
1/25/10 MRI of brain/scan of bone neg-
1/27/10 PET Scan-hypermetabolism in left breast axillary; right mediastinal, left and right supraclavicular and internal mammary lymph nodes
1/29/10 Port Placement, started 24 weeks of chemotherapy with: Trastuzumab- Herceptin, Paclitaxel- Taxol, and Vinorebine- Navelbine
7/9/10 Finished 24th chemo treatment
7/15/10 PET/CT showed excellent response in nodes and breast; possible bone mets
7/16/10 Began Herceptin@ 3 wks and Zometa @6 wks plus Lupron and Femera
7/29/10 Diagnosed with HER+,ER-,PR- skin mets; started Doxil & Cytoxin; no response
11/5/10 PET/CT mets to bone, liver, lung, adrenal; started Xeloda
11/12/10 Brain MRI-Brain Mets, stopped Xeloda, started WBRT 11/16 and Tykerb on 11/19
12/6/10 completed 15 rounds WBRT
12/19/10 restarted Xeloda

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Old 11-25-2010, 11:53 PM   #7
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Posts: 5
Re: Over 8 years and counting

Hi juliet,
Welcome back!!!!
I'm also here new and doing study on cancer treatment.
Types of Cancer
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Old 11-28-2010, 08:42 PM   #8
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Posts: 3,142
Wink Re: Over 8 years and counting

Congratulations Keep up the good work.
12 years and counting
Lucky 13 !! I hope so !!!!!!
14 Year Survivor
"You never know how strong you are until being strong is the only choice you have." author unknown
Shared by a multiple myeloma survivor.
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Old 10-23-2016, 03:30 PM   #9
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Join Date: Sep 2013
Posts: 65
Re: Over 8 years and counting

Hi Juliet,
I haven't posted in awhile either.
I am 3 years out, still on aromatase inhibiter.
Lymphedema and some neuropathy from treatments, but I am alive and for the most part doing very well.
So grateful for this site when I was just diagnosed! It was a God Send!
age 60, postmenopausal
8/13 suspicious mammogram, left breast
9/13 core biopsy
9/13 dx invasive ductal carcinoma
9/12/13 lumpectomy with SNB, ER/PR/HER2 +, nodes negative, clear margins, 2 cm tumor, stage 1a, grade 2
10/21/13 port surgically implanted
10/28/13 first chemo today, TCH
3/3/14 Started H alone every three weeks
3/10/14 Started radiation
4/29/14 Completed radiation
10/28/14 Completed Herceptin
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