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Old 02-06-2011, 07:54 AM   #1
laureen
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What has cancer given you? The good and the bad?

I know what it has given me, a whole list of emotions. New life(my son), tears, fear, hope, new friends, a new perspective, anxiety, lymphedema, etc... Not really sure where I am going with this. Maybe its my form of therapy. Guess I just want to hear all your good and bad too. Being prego sure makes you emotional.
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Laureen (laurie)
Diagnosed 8/10/06 (found own lump)at 35

Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagnosed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David born Feb. 6th 2009
Pregnant with baby #2, due in early june 2011.

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Old 02-06-2011, 08:44 AM   #2
MJo
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Re: What has cancer given you? The good and the bad?

I hope I am more compassionate. I am so very aware of how vulnerable we humans are.
I allow myself to be ordinary. I beat myself up for so long because I wasn't as successful, outgoing (fill in the blank) as I thought I should be. I still am hard on myself, but it's tempered with a willingness to be ordinary.
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 02-06-2011, 09:21 AM   #3
Mary L
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Re: What has cancer given you? The good and the bad?

I think we all change after going through cancer. I too, am more emotional and am hurt very easily, however I feel that I am more caring and giving than I was prior to cancer. It's a very rough journey we all go on and it has to have it's side effects. Mary L
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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Old 02-06-2011, 11:00 AM   #4
ElaineM
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Wink Re: What has cancer given you? The good and the bad?

I have learned alot more about nutrition, science and medicine. I am still learning everyday. I have also learned to be a more compassionate person.
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Peace,
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12 years and counting
http://her2support.org/vbulletin/showthread.php?t=48247
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Old 02-06-2011, 01:21 PM   #5
Patb
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Re: What has cancer given you? The good and the bad?

I try everyday to have a new experience no matter how
small. We put off so many things or things we want to say, no more for me. I experince life more deeply and
want to reach out more to others which sometime backfires but I try. After four + years the sky is still
bluer.
I am still super careful with what I can do to improve
my health and the least little ache I react. Thanks for
good Drs. and new ideas.
patb
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Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 02-06-2011, 02:38 PM   #6
Becky
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Re: What has cancer given you? The good and the bad?

Cancer has given me more gifts in general - it has shown me who my real friends are and taught me how to take care of my self and take time for myself. It has given me perspective of what I want to do with my career and what I want to do everyday.

Cancer made me more scared than I ever was in my entire life but also made me strong and brave. It made me speak up for myself and made me realize that you have to know what you're doing and not just go with the flow on real important matters. I am not afraid.

I appreciate everything - even the utterly stupid Christmas gifts I get from my husband - and don't complain as much as I used to.

Most of all, cancer gave me all of you of whom I would never had met otherwise.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 02-06-2011, 02:58 PM   #7
Jackie07
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Re: What has cancer given you? The good and the bad?

Cancer has given me 'peace'.

I had been 'wronged' my whole life before my life-long brain tumor (and recurrence) was discovered. I was still 'wronged' by my doctors and others when breast cancer (and recurrence) was diagnosed.

Obviously the biological and environmental factors in my life have caused all my ailments. "The Queen is innocent!" is the type of relief I felt whenever a diagnosis was confirmed.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
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hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
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Old 02-06-2011, 03:14 PM   #8
ammebarb
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Re: What has cancer given you? The good and the bad?

What a good question, Laureen! It has been twenty seven years since my bc diagnosis, and the length of time since my diagnosis has given me lots of time to realize all that I've been given. I was soooo depressed for the first few years that I couldn't have come up with a positive....You are all so much better off if you've been able to get to where you know what the positives are. I realize now how much precious time I'd have wasted if I'd never gotten some perspective and began to LIVE. So first positive is, I think, not taking a single moment for granted. I appreciate quite ordinary things....being well enough to grocery shop, make order in my home, laugh with my husband. The extraordinary things include being here to love my grandchildren and to see my grown children find happiness in new marriages. I enjoyed thirty years of kindergarten teaching, with a dedication that came as a result of going through that time after bc diagnosis when I questioned my purpose. I guess when all is said and done, I think I am able to love and be loved more deeply than before cancer, and I know that my faith in my God is increased.

Barb A.
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Old 02-06-2011, 05:24 PM   #9
BonnieR
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Re: What has cancer given you? The good and the bad?

I've learned that today is the first day of the rest of my life. And that life is not a dress rehearsal. This is IT!!!
My cancer center has a group called Spirtual Reflections where we ponder such things as the gifts cancer has given us. The insights, the grace, tolerance, forgiveness, gratitude, etc.
Good topic
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Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 02-06-2011, 07:33 PM   #10
Joanna J
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Re: What has cancer given you? The good and the bad?

Bonnie,What a neat group to be in,that is a wonderful idea.
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found susp.lump Feb 2009
DX Feb 2009 ...Her2+ stage IIa ER/PR- grade 3
partial mast. Right breast,clear margins
chemo (2) carboplatin & Taxotere
could not finish chemo (hospitalized because of infection)
37 rounds radiation
Herceptin (1 yr.)
No clinical trials
Jan.2011 BRAC 1/BRAC 2 Neg
Aug.2011 clear bone/catscan NED
Apr.2012 clear digital mammo
& ultra sound of breasts
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Old 02-06-2011, 08:57 PM   #11
Mary Jo
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Re: What has cancer given you? The good and the bad?

Cancer has taught me what really matters. Cancer has shown me what true happiness is and where it lies. All those things we fret over.....stress over......get anxious over. Just about all of it is for naught!

Cancer has given me a stronger confidence in myself. It taught me how strong I am. It taught me where my true priorities are. It has given me a true sense of peace.

I rest in the confidence of knowing my life is in God's hand's and not mans. What will be will be. Things happen to all of us......cancer......other diseases........job loss........lots of things. We can either grow .... persevere .... and learn from what life throws at us or we can cave and run scared. I ran scared at the beginning........I was VERY AFRAID, but have learned that this life is a gift. A gift that one day will end here on earth but will continue in the glorious Home of Heaven waiting for those of us who believe.

Cancer sucks....yes.....but so does all those "bad things" that touch each of us. No one escapes this life with everything going perfectly. No one. It's those "bad things" that help shape us into the people we are today.

And like Becky said, cancer has given me a whole new group of friends. Wonderful, caring and positive people. You all, here at her2support, are among those.

God Bless each of you as you go through whatever it is you are going through. It's tough for many of you. I wish that were not so.

Love to you all....

Mary Jo
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"Be still and know that I am God." Psalm 46:10

Dx. 6/24/05 age 45 Right Breast IDC
ER/PR. Neg., - Her2+++
RB Mast. - 7/28/05 - 4 cm. tumor
Margins clear - 1 microscopic cell 1 sent. node
No Vasucular Invasion
4 DD A/C - 4 DD Taxol & Herceptin
1 full year of Herceptin received every 3 weeks
28 rads
prophylactic Mast. 3/2/06

17 Years NED

<>< Romans 8:28
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Old 02-07-2011, 12:04 AM   #12
Trish
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Re: What has cancer given you? The good and the bad?

I've experienced extraordinary kindness from strangers. Acquaintances and colleagues have become friends. My friendships have deepened. My family and I take enormous pleasure in the fact of being together.
Unfortunately I have lost the confidence to plan too far ahead,but I do savour many precious ordinary experiences. I've traded long term planning for living (more) in the moment.
Trish
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5/2004 (R) 30mm bre gr3 infiltrating ductal ca 16/18nodes er (2+) pr (3+) HER2 (3+)
6/2004
6 cycles(FEC), Oct 40 rads, Tamoxifen
5/2006
oopherectomy, Arimedex
12/2006
liver mets largest 9cm
1/2007
Herceptin,
3/2007
Taxol + Herc
1/2008
Herc alone
4/2008
Multiple bone mets,Zometa
7/2008
Herc + Gemcitabine
8/2008
Herc+Navelbine/vinoralbine
10/2008
Herc+Carboplatin+Taxol
12/2008
Tykerb+Xeloda
2/2010
Herceptin + trial drug
5/2010
Herceptin+Tykerb
8/2010
Tykerb+Abraxane
9/2010
Abraxane
12/2010
Abraxane+Tyk+Herc
4/2011
Tyk+Herc+Femara
6/2011
Liver and bone mets prog.Abraxane continue Herceptin,Tykerb,Femara and Zometa
8/2011
Probable liver progression and increased neuropathy. Xeloda with Tyk+Herc. Zometa 6 weekly.
9/2011
Liver progression,TM +++. Cyclophosphamide and Methotrexate metro Herc Zometa
10/2011 liver mets prog.Herc, 3 Tykerb +2mg decodron daily,Zometa
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Old 02-07-2011, 09:24 AM   #13
Mary L
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Red face Re: What has cancer given you? The good and the bad?

I am so glad that this topic came up. Just reading what all of you wrote helped me realize that I am so blessed to have survivied and how thankful I am. I too feel able to love more and appreciate every minute of life I live. Thank you. Mary L
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Mary L from PA Diag: Oct 2003 w/6mm mass, IDC grade III ductal carcinoma in-situ, IBC stage IIIB. tx A/C followed by Taxotere(only able to have 2 tx, allergic), mastectomy, 3 0ut of 7 positive nodes. 35 rads. Recurrence 9 months later, skin mets to mastectomy site. Tx Carboplatin/Herceptin. Stayed on Herceptin almost 5 years, had 3 more recurrences when I had to stop Herceptin due to my ejection fraction getting too low. Herceptin stopped and ned 3 years in Oct. 2010.
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Old 02-07-2011, 02:07 PM   #14
Delaney
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Re: What has cancer given you? The good and the bad?

A short lifespan!
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Delaney, dx 2008 lumpectomy,mastectomy,a/c,paxitaxol, tyverb 1 yr.
dx 2010 mets lymph nodes, skin, lung. start taxotere/herceptin.
Stopped taxtere/herceptin, now on tyverb/xeloda.
Lung mets shrinking.
Back on Herceptin with T/X. Partial response.
Skin mets progressing. Radiation scheduled mid february 2011.
Spot found on hip - radiation to hip beginning mid February 2011.
Now trying Gemzar/Tyverb/Herceptin and Zometa.
CT scan Feb 2011 - lung clear!
Brain mets (specks) - radiation mid Feb.
Brain Scan June'11 - Clear
CT Scan June'11 - Good - skin met active - watch and wait.
Surgery to remove skin met. Surgery to back 2012, four titanium rods inserted. Skin mets reappear. On Navelbine, not working. 4 week washout, start Myocet for skin and lung mets August 2012. Brain scan clear despte intermittent blurry vision (something hiding? Am suspicious but hopeful. )On we go, glad to be here.
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Old 02-07-2011, 04:25 PM   #15
tricia keegan
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Re: What has cancer given you? The good and the bad?

Cancer changed my life, but I'm still not sure it was for the good, I've met some wonderful and amazing people I would'nt otherwise have met and made lifelong friends but.....it's also given me a change of focus, much financial hardship and stress so it's hard for me to seperate the good from the bad.

I do agree with Becky's point though that its made me research and be more pro active in my healthcare and not trust any important decisons to my Dr's!
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 02-07-2011, 10:00 PM   #16
Debbie L.
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Re: What has cancer given you? The good and the bad?

I agree with most everything that all of you have said, except for a small quibble with the language.

I don't really think of it, in my own mind, as what cancer has "given" me. It's more along the line of what I took, or gleaned, from the experience (and I'm full of gratitude for all that has been taken or gleaned). To me, that slightly more active tense paints us as less victims or passive recipients and more as active participants. As the years go on, that seems important to me, although early-on I didn't distinguish or quibble in this manner.

Debbie Laxague
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3/01 ~ Age 49. Occult primary announced by large (6cm) axillary node, found by my husband.
4/01 ~ Bilateral mastectomies (LMRM, R elective simple) - 1.2cm IDC was found at pathology. 5 of 11 axillary nodes positive, largest = 6cm. Stage IIIA
ERPR 5%/1% (re-done later at Baylor, both negative at zero).
HER2neu positive by IHC and FISH (8.89).
Lymphovascular invasion, grade 3, 8/9 modified SBR.
TX: Control of arm of NSABP's B-31 adjuvant Herceptin trial (no Herceptin, inducing a severe case of Herceptin-envy): A/C x 4 and Taxol x 4 q3weeks, then rads. Raging infection of entire chest after small revision of mastectomy scar after completing tx (significance unknown). Arimidex for two years, stopped after second pathology opinion.
2017: Mild and manageable lymphedema and some cognitive issues.
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Old 02-08-2011, 05:21 AM   #17
laureen
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Re: What has cancer given you? The good and the bad?

Thanks everyone for sharing, like I said, just some free psychotherapy for me. I loved reading your comments.
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Laureen (laurie)
Diagnosed 8/10/06 (found own lump)at 35

Her 2 +++, er-/pr-
4 A/C 8-29-06 to 11-06
Lumpectomy, node dissection- 11/30/06
Pathology report stage IIIC
1 tumor 3 cm
10 of 15 nodes +
12 Taxol 12/18/06-03/06/07
Herceptin 12/18/06- 12/11/2007 done!!! yeah!!!
33 rads started 3/22/07, done!! yeah!! 5/07/07
Lymphedema diagnosed 2/1/07
BRCA1/BRCA2 negative
port out 1/10/08
pregnant after 6 yeas of trying- due mid feb.
Ryder David born Feb. 6th 2009
Pregnant with baby #2, due in early june 2011.

*reach to recovery volunteer
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*imerman angels
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Old 02-08-2011, 09:13 AM   #18
Gerri
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Re: What has cancer given you? The good and the bad?

Cancer has caused me to not sweat the small stuff. Now, when faced with a problem, I think about whether or not it is worth fighting for/about or just to let it go.

I take much better care of myself and have finally dropped (almost all) the weight I have been lugging around for so many years.

Echoing Becky, I have a group of friends that I never would have met. Oddly, even though we have never met, I really do feel a connection to all of you.
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Gerri
Dx: 11/23/05, Lumpectomy 12/12/05
Tumor 2.2 cm, Stage II, Grade 3, Sentinel Node biopsy negative
ER+ (30%) /PR+ (50%), HER2+++
AC X 4 dose dense, Taxol X 4 dose dense
Herceptin started with 2nd Taxol, given weekly until chemo done
then given every 3 weeks for one year ending on March 16, 2007
Radiation 30 treatments
Tamoxifen - 2 yrs (pre-menopausal)
May 2008 - Feb 2012 Femara
Aug 2008 - Feb 2012 Zometa every 6 months
March 2012 - Stop Femara, now Evista for bone strengthening
**********
Enjoy the little things, for one day you may look
back and realize they were the big things.
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Old 02-22-2011, 07:05 PM   #19
ginnyg898
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Re: What has cancer given you? The good and the bad?

What a great post!

I am a week out of surgery so I am still in the trenches, but I would say so far that this entire experience has made me really appreciate my life, my family, and all the wonderful friendships I have.
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41 Years Old
Dx w/IDC in August '10
No family history
ER+/PR-/HER2+
2.2cm tumor/Stage 2A
No node involvement
Tested negative for BRCA 1/2
Participated in a UCLA clinical trial testing TCH and/or Lapatinib in stage 1/2/3 bc patients that can be removed by surgery.
Underwent neo-adjuvant therapy to shrink tumor prior to surgery.
1st Surgery date: 2/16/11
Pathology report indicated ADH/DCIS in margin.
2nd Surgery: 3/21/11
Clean margins!
Started radiation: 4/11/11
Completed radiation: 7/8/11
1st post-surgical mammogram: 8/16/11 - CLEAR!
6 Weeks of Tamoxifen - Failure to Respond
Started Lupron/Arimidex: 8/29/11
Herceptin until September '11

Recurrence - August 2018
Same profile - ER+/PR-/HER2+
Undergoing neo-adjuvant therapy prior to surgery;
Gemzar, Carboplatin, Herceptin & Perjeta
Chemo through the end of 2018...
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Old 03-27-2011, 09:04 AM   #20
fauxgypsy
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Re: What has cancer given you? The good and the bad?

I have mixed feelings about this right now. I feel that my life has been enriched by coming to know many people here. In some ways I feel stronger. I also feel that I have lost so much. I have learned to know fear. I know that I will die some day of something. Possibly breast cancer. My fear is that I will die sooner than I have to because of the calculating coldness of insurance companies. I have realized that the world is divided into people who have empathy and those who don't care as long as it doesn't affect them directly. I have become more cynical as I see a brave new world of treatment options that are available only to those who can afford them. When I read on this site of women being denied treatments that could save their lives, it makes me so angry. I have always railed against the unfairness of the world but I have come to see a darker side of it than I had imagined possible. It is not that we don't have the resources (that is debatable), it is a matter of profit and what individuals are worth to their governments and to the world at large. I try to be positive and I know that this is not sweetness and light but this is how I feel now. Many people are trying very hard to do the right thing and I do not mean to disparage that effort at all. But it makes me so very angry that people are treated as numbers. To quote Anne Lamott, this is only one six-billionth about me. On another website that has to do with health insurance coverage I had a member of the armed services tell me that there is always collateral damage, and that the people who did not have insurance (or who were denied treatments by the insurance that they did have) were just collateral damage.

So far I have been one of the lucky ones and I have had to fight for what I needed many times. It is wearisome to have clerks in an office somewhere tell you that they know how you feel but "Sorry, we won't pay for that." Or tell you not to get upset when it is your life that they are denying. Maybe my outlook will get better soon. I just feel so powerless.
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In the world of destiny, there are no statistics.
Jan. 26- mammogram and ultrasound- suspicious lump
Mid-February- lumpectomy, infiltrating ductal carcinoma ~4.5 cm and a 1 cm DCIS, did not get clear margins, did not check lymph nodes
ER+/PR+, her2 +++, nuclear grade 3 of 3
February 20-PET scan showed something on liver. No biopsy.
March- Started carboplatin, herceptin, taxol on a four week cycle
May 3- Pet scan, with intent to do a biopsy, found nothing, liver or breast- no biopsy because there is nothing to biopsy
June 21- new onc, very concerned that there had been no biopsy,
June 18th-CAT scan, bone scan-negative
August 7th - Brain MRI-negative
August 9th- mastectomy, all pathology negative
January 2008 still NED! New oncologist -herceptin for full year after chemo- until July, and tamoxifen---negative scans since May '07
July 2008-Finished Herceptin!
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