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Old 09-30-2005, 05:39 PM   #1
Lolly
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"Our Deepest Fear"

"Our deepest fear is not that we are inadequate. Our deepest fear is that we
are powerful beyond measure. It is our light, not our darkness, that most
frightens us. We ask ourselves, who am I to be brilliant, gorgeous,
talented and fabulous? Actually, who are you not to be? You are a child of
God. Your playing small doesn't serve the world. There is nothing
enlightened about shrinking so that other people won’t feel insecure around
you. We are born to make manifest the glory of God that is within us. It’s
not just in some of us; it’s in everyone. And as we let our own light
shine, we unconsciously give other people permission to do the same. As we
are liberated from our own fear, our presence automatically liberates
others” -- Nelson Mandela, 1994 Inaugural Speech
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Old 09-30-2005, 06:07 PM   #2
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You made me cry. I have been searching for Gods meaning in this for months.
Thanks for your post.
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Old 09-30-2005, 07:13 PM   #3
Amy
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I love this Lolly....Thanks

Amy
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Old 09-30-2005, 07:16 PM   #4
Diane H
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A beautiful message, Thank you---
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Old 09-30-2005, 08:07 PM   #5
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wow i want to print this and frame it as a reminder to me. this really hits deep for me.
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Old 09-30-2005, 08:14 PM   #6
Lolly
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I'm happy it touches you all as much as it did me. This was sent to me the other day by a friend when he heard I was going through treatment again. Some of you may remember Paul, who used to post on the first Her2 support site. His mom is a Her2+ survivor, and he has been a real ally in this fight.
Good idea Sonya, I think I'll print it out and frame it also! Thanks!

<3, Lolly
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Old 10-01-2005, 04:28 PM   #7
TriciaK
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Lolly, This quote is really great, even more so coming from one with your courage and strength. You are an inspiration to all of us. Thank you so much, and God bless you. Hugs, Tricia
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Old 10-03-2005, 05:44 AM   #8
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Thanks so much, Lolly! It's so true and we need to keep hearing it and thinking like that! God Bless- Cathy
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Old 10-03-2005, 10:20 PM   #9
sherri
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Nelson Mandela is my hero and he is so right. The power of mind is without limit. Thank you for sharing this.
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Old 10-06-2005, 07:44 PM   #10
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Thanks for sharing this, Lolly, I love it! Also wishing you the best as you continue your treatment...you have a great attitude and a wonderful fighting spirit. Thanks for letting your own light shine and inspiring the rest of us...
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Old 07-05-2012, 11:40 PM   #11
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Re: "Our Deepest Fear"

Thank you, mom. We all love and miss you very much.

Re-posting for your Her2 sisters who also love and miss you. Great, great words.
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Old 07-06-2012, 09:08 AM   #12
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Re: "Our Deepest Fear"

And we do miss her so much. When this was first posted, I cut and pasted it into my "Words of Wisdom" document that are great posts, poems etc from women on this site.

I hope you and the rest of your family are doing well.
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
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NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 07-06-2012, 10:06 AM   #13
Andrea Barnett Budin
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I remember lolly well

She was a woman of grace and wisdom. Lovely in every way. Her shining smile lit up everyone she touched. We were each blessed to have her in our lives.

Nelson Mandela is so remarkable in his inconceivable grace (having endured decades of injustice and imprisonment). The wisdom of his ideas is a precious gift to the world. But I would humbly say that I think we doubt more than fear our innate abilities to shine.

I totally agree that we are born to make manifest the glory of God that is within us. I believe the God particle (the energy of our mysterious Creator) composes our Soul, or Spirit. Once we align ourselves with that entity, which is at our core, we are on the path to creating wondrous accomplishments, for the benefit of many.

We are each a radiant, glorious, sacred Soul. When we look at others, we should see a "thou" (as Joseph Campbell explains). We should psychologically realize that each living being is a beautiful and likely struggling Soul. We should view that being with due respect, regardless of their station in life.

As we let our own light shine, as President Mandela says, we unconsciously give others permission to come to know their own Light, and then to go forth and share it. It is our responsibility to live with Love, Generosity, Awe, Gratitude and Kindness. Not to judge, or be intolerant as we view Others. We are each unique and each precious.

I wish All would reach for Grace and find the most precious part of who they truly are, their shining Spirit. It offers you strength and courage beyond what you previously thought possible. It is full of eons of wisdom and wants to guide and protect you as it empowers you in untold ways. It wants more for you than you do! And lovingly urges you to reach further than you feel you should or could.

Blessings to All,
Andi
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'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...

'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...

Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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Old 07-06-2012, 04:03 PM   #14
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Re: "Our Deepest Fear"

Lolly was a great source of support and comfort to me and I miss her greatly.

Love to Lolly in Heaven and the rest of her family.
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dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14YEARS NED!
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Old 07-06-2012, 04:35 PM   #15
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Re: "Our Deepest Fear"

Reposted that quote on my FB - then forgot where I'd got it!

Always loved reading Lolly's postings and seeing the smile in her profile picture. Thanks for bringing back the memory.
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http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2

NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
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Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement (600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa

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Old 07-06-2012, 04:53 PM   #16
jml
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I miss Lolly~Re: "Our Deepest Fear"

I was a little startled when saw this post, but quickly realized it was a re-post, but it brought back so many loving memories of sweet Lolly.
She was among one of my 1st friends on this board when I was diagnosed and joined ~10 years ago.
I miss her and hope that her family is doing well~

Keep the Faith~

Jml
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Old 07-06-2012, 05:13 PM   #17
Ceesun
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Re: "Our Deepest Fear"

I remember her, too, from when I first came on the board. May God bless her soul and sustain you.
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Old 07-07-2012, 10:20 AM   #18
suzan w
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Re: "Our Deepest Fear"

Thank you for this re-post. I, too, remember Lolly as one of the first to respond to my early posts. Her courage and knowledge gave me hope. I miss her. This re-post reminds me that she, as well as all the others in my life who have continued their journey to the 'beyond' are very much still here with me.
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age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year

as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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