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Old 01-26-2010, 05:28 PM   #1
madubois63
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Any one had thyroid cancer?

Papillary thyroid cancer is self contained in the thyroid. The best way to treat it is to take out the thyroid completely and to take synthroid? for the rest of your life.

I know this has nothing to do with breast cancer. My sister has just recently discovered that she has PTC. My family is floored by this. Isn't my crap enough?? My poor mother, she's got 2 girls with cancer. She is exhausted. I am bed bound because all the steroids I took caused my femur (hip) bones to collapse. I haven't walked since September. I am working on strengthening my lungs in order to go under anesthesia for the hip replacements. Once I get clearance ---- new hips!!! Until then, I do exercise in the bed or in a wheelchair. I have an ambulette take me to my appointments.

So that is where I am. I hope someone can put my mind at ease. I'm use to me being sick. but this is my sister...

Love to you all...
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Maryann
Stage IV Inflammatory BC 1/00
Mod Rad Mastectomy 24nod/5+
Adriomycin Cytoxin Taxol
Tamoxifen 4 1/2 yrs
Radiation - 32 x
Metastatic BC lung/liver 10/04
thorocentesis 2x - pleurodesis
Herceptin Taxatiere Carbo
Femera/Lupron
BC NED 4/05
chemo induced Acute Myeloid Leukemia 5/06
Induction/consolidation chemo
bone marrow transplant - 11/3/06
Severe Host vs Graft Disease of liver
BC mets to lung 11/07
Fasoladex Herceptin Zometa Xeloda
GVHD/Iron overload to liver
Avascular Necrosis/morphine pump 10/10
metastatic brain tumor
steriotactic radiosurgery
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Old 01-26-2010, 05:35 PM   #2
kimber
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Re: Any one had thyroid cancer?

Hey, it is great to "see you" again! I have had thyroid cancer. The same kind as your sister. It really is the "best kind" of cancer. I did have my thyroid removed - or so they thought and have been on and will remain on Synthroid for the rest of my life. It did turn out that a portion of my left lobe remains. It now has multiple nodules which get needle biopsy via ultra sound annually. If it turns out that the cancer has returned they will go back in and remove the rest.

Your sister will be fine. Really! If you or she has any questions - please email me.

I am wishing you and your sister well!!

kim
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dx 5-05 @42 years old
IDC stage IIA
ER+ (100%) ER+ (75%) HER2+
double mastectomy
4DD AC - 16 weekly Taxol
6 months Herceptin - stopped due to MUGA
35 chest wall rads
Tamoxifen
Lat flap with silicone implant reconstruction on left side due to radiation. "Normal" silicone on right. Finished all reconstruction 6-07!!!
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Old 01-26-2010, 06:37 PM   #3
Margerie
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Re: Any one had thyroid cancer?

I had the same also. A multinodular goiter was found when I had my CT done to set up for rads, biopsy was in "gray area" I demanded to have thyroid removed as I was not in the mood to worry about/monitor any more lumps. They found "incidental" papillary thyroid cancer. It was VERY small, but in a completely diifferent place than the nodules they biosied. I too take throid replacement and I am doing very well. Once the dust settled and I realized how much less aggressive thyroid cancer is, I really didn't sweat it. I was so worried it was bc mets! Anyway, I hope your sister does well with her treatment and give her and your mom a hug from me.
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Dx 10/05 IDC, multi-focal, triple +, 5 nodes+
MRM, 4 DD A/C, 12 weekly taxol + herceptin
rads concurrent with taxol/herceptin
finished herceptin 01/08
ooph, Arimidex, bilateral DIEP reconstruction
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Old 01-26-2010, 08:18 PM   #4
Cannon
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Re: Any one had thyroid cancer?

Me too. Thyroid cancer caught early is almost 100% CURABLE. Mine was 2 years prior to breast cancer. My sister had exact same thing one year after me. The treatment is MUCH easier than chemo and radiation -- the hard part is becoming hypothyroid before the treatment. It took months of building up the synthroid levels before I felt human again. I send all my hopes and prayers that this is a small bump in the road for you and your family.
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Dx 8/06 Age 43 Stage IIIA multifocal throughout breast, largest tumor 5 cm, grade 3, comedo, ER+PR+HER+++
Neoadjuvant A/C 4X Dose Dense
11/06 Bilateral Mastectomy (no choice on the right, my choice on the left)
Taxol+Herceptin weekly x12, continuing with Herceptin, finished one year in 12/07
33 Rads
Femara for 5+ years, staying on (started with Arimidex, switched after about a month, much happier)
Abnormal brain MRI shows no cancer, but "extensive white matter diease" - unknown cause
BRCA negative - lots of cancer in my family
survivor of thyroid cancer
also have Crohn's disease
CT and bone scan say NED as of 5/13
dx with severe cardiomyopathy 5/12 (likely due to chemo and Herceptin), ejection fraction in low 20's, now up to 40, went to 50, latest read 12/13 is back down to 35
1/13 Acute pancreatitis - are you kidding me?
9/13 started Humira for Crohn's. starting to have some energy again
B12 and Vit D both needed supplementation
Cataracts in both eyes noted 6/12 - surgery in the next 2-4 years?
4/14 Kidney stones/blockage/infection - related to Crohn's Disease
5/14 My aunt passed away - she was diagnosed after I was with Stage I - not Her2+, then Stage 4 for about one year
6/14 Scans - still NED, thank God. However, broken rib (I didn't notice) lots of bone degeneration osteopenia/osteoporosis. I also still have cardiomyopathy secondary to chemo.
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Old 01-26-2010, 10:42 PM   #5
chrisy
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Re: Any one had thyroid cancer?

Wow, I had no idea this was so common. Very encouraged by the responses.

Mostly MA I wanted to compliment you on your hot new photo!

Take care, beautiful one (inside AND outside)
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June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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