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Old 12-05-2008, 02:30 PM   #1
chrisy
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Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
Smile Scanarama update

Hi,

I'm just now recovering from my "scanarama" day Monday. I left the house at 5:30 am and got home at 7:30 pm. The story is even longer than the day, so I won't bore you with it now...suffice it to say, it was a day filled with blessings and cursings and I was REALLY hungry by the time I got home after only eating a granola bar all day! Good thing I wasn't cranky but I definitely needed nurturing...

And the results are in...

ECHO showed a drop in EF, still well in normal range BUT my onc nurse and I both think it is a bogus read, and it is probably not really changed from last time.

PET/CT was great, still "less clearly seen" on the CT and "not metabolically active compared to surrounding tissue" on the PET!

So, renewed license to breathe...and continue with the DM1 trial! I'll be listening at SA for the update!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial

5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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