~Ned Is Over~Aggressive Brain Met Activity~PLEASE READ MY BRAIN SPECIALIST FRIENDS
I guess maybe he was not NED at all but we did acheive that status according to all those scans to come to that conclusion. The brain is a tricky thing and the scan on 8/16 showed 6 mets ranging from 9-6mm. One of them appears to some 'blooming artifact' suggesting minimal internal hemorrhage. This met rpresents the one with most surrounding edema. The total report was disheartening for us and totally unexpected.
part of that report:
"New metastic disease in the brain. One foci in left centrum semi-ovale demonstrates signal characteristics suggests small hemorrhage. This represents the lesions with the most surrounding edema. Despite these lesions, no mass effect is apparent at this time. There is also a lesion seen in the inferior aspect of the pons."
Ed got a call from the nurse bumping up our appointment and I was the one who called. She only told me that "The doctor asked us both to be there to console one another, it is not the best of news"
WE ARE SEEING THE DOCTOR TODAY AT 1:00pm eastern time! The only reason I got this report was that I was NOT going to wait overnight.
I have no tears left today.
I am asking for any advice, suggestions, thoughts or questions for the doctor.
I am sorry if I made anyone sad reading this but now we are desperate and limited with options.
Tell me what is on your mind after what you have read here today. I will take him anywhere and do anything I need to do. Give me some ammo My Heros!>>Love and Hugs>>Believe51
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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