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Old 04-20-2007, 02:05 PM   #1
Luvcr
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Join Date: Apr 2007
Location: Ohio west of Cleveland
Posts: 6
Smile Tykerb

Looking for others on Tykerb. Have been on Herceptin for 8 1/2 years - now have mets to mediastinal lymph node and will start Tykerb next week.
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Old 04-21-2007, 07:20 AM   #2
Melinda
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Join Date: Jan 2007
Location: Media (Wawa to be exact), PA
Posts: 104
Tykerb

The HER2support board has a wealth of information on tykerb. Our sisters there have been anticapting its arrival and some are now on it. Instead of the NEWCOMBERS BOARD.... click on the HER2 SUPPORT. Hope this helps.

http://her2support.org/vbulletin/showthread.php?t=27768

Melinda
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DX BC 12/06
tumor .9
Lumpectomy 1/8
Mammosite radiation completed 2/10
Stage1/Grade 1
clear Margins /Nodes Neg
ER+
IHC +2 Fish +
ONCO 23
Started TCH on 3/2 for 6 rounds of TC once every three weels and a year of Herceptin every 3 weeks -
Finished everything and now on Aromasin
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Old 04-24-2007, 08:12 PM   #3
Muldoonmom
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Join Date: Jul 2006
Location: Coconut Grove, Florida
Posts: 25
Tykerb

Hi!
I just started tykerb last week. I've been on herceptin for 7 1/2 years and recently had pleural effusions in the right lung, adjacent lymph node mets, and probably a few small mets in the base of the right lung. I also have bone mets to the right rib and left scapula - these are old and stable.
My onc stopped the herceptin and I'm continuing taxotere (2 more cycles) with the tykerb. Then we'll do scans and decide what to add in place of the taxotere.
What about you??
Debbie
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Debbie
8/96 - Diagnosed Stage I - 1.8 cm tumor in left breast
0+ lymph nodes, ER+/PR-
Lumpectomy, radiation, CMF x 9, Tamoxifen
6/99 - Stage IV - 1.2 cm tumor in left lung, HER2 NEU +
VATS thoracotomy, Herceptin and Arimidex
2000 - Bone mets to left scapula and right ribs
Herceptin; Taxol x 9, Zometa
2/2001- Rt. lung - 6 mm tumor
Mini-thoracotomy
2/2001 - 12/2006
Xeloda-10 months, Navelbine-10 months,
Gemzar, Abraxane, Taxol/Carboplatin x 10, Aromasin, Faslodex,
Zoladex, Tamoxifen
2001 - Radiation to left scapula for pain managenent
9/2004 CyberKnife to right rib
7/2006 - Pleural effusion - thoracentesis performed twice
1/2007 - Pleuradesis and Taxotere x 5
4/2007 - Stopped Herceptin after 8 years (weekly).
Started Tykerb with Taxotere but stopped after 10 days
5/2007 - Stopped Taxotere, restarted Tykerb and Herceptin
Currently on Tykerb, Herceptin, Zometa
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