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Hi Sandra,
I don't have IBC, but am on Herceptin for BC for the rest of my life. I find it very tolerable, the first 6 months it was given in combo with Navelbine, which did cause some side effects, but after I went into remission the Navelbine was dropped and I have continued on Herceptin only, going into my 3rd year now. You've found a great resource here, check out the Home page by clicking on "Return to HER2 Support Group" above, many great links to lifesaving information.
Lolly
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