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Old 07-24-2010, 10:06 AM   #1
Leslie304
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Join Date: Jun 2009
Location: Hunterdon Cty, New Jersey
Posts: 51
Red face DIEP Flap anyone?

Hi Girls,
Has anyone undergone the DIEP flap procedure? I had a complete mastectomy Sept 09. My onc wants me to wait 2 years before I even consider reconstruction. I'm starting to look into my reconstrcution options but I think my ONLY option will be DIEP flap. I see that this is a huge surgery and I'm wondering if the result is worth it. I really miss being 'complete' but if the recovery is grueling and the scars left behind are awful then maybe it's not worth it ....... If you've done it or considered doing it but haven't yet I'd love to hear your thoughts on the subject pro or con. Thanks and best to all of us!
Leslie
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2009
3-15 Age 48 -found lump
Dx 4/15/09: IBC Stage III w/extensive lymph node involvement HER2+++
5/1/09: Adria/Cytoxan for x 3-no response
6/12/09: Taxol/Herceptin for 1 tx -no response
6/24/09: added Carboplatin to T/H x 3 - no response
7/09 -added F5U -no response
7/29/09: Herceptin/Xeloda/Tykerb no response
8-18-09: 2nd opinion at MDA - IDC not IBC! First Onc disagrees,
BRCA 1/2 Neg
8-19-09: continue on Herceptin/Xeloda/Tykerb-slight response
9-24-09 MRM right breast 10x10 cm tumor! (Huge!) no necrosis - Got clear margins! A miracle!
13 of 18 nodes positive
11-2-09 -12/10 started radiation
12-10-2009 - Finished with radiation!!
2010
1/13/2010-Back on Xeloda x six cycles (have been on Tykerb/Herceptin all along)
4/4/14 - stopped Xeloda/Tykerb one cycle early. Liver enzymes high!
4/20/2010 Clear PET Scan!! NED
6/10/2010 - Finished Herceptin11/8 - Brain METS! CRAP! WBRT only option given. Four mets, separate locations in brain, no SRS
12/10 - Herceptin/Tykerb/Xeloda
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Old 07-25-2010, 06:13 PM   #2
DancerDonna
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Join Date: Sep 2009
Location: Nashville, TN
Posts: 11
Re: DIEP Flap anyone?

There is an entire forum dedicated to those interested in DIEP procedures. I am scheduled to have either a SIEA flap or a DIEP flap soon. The URL for the DIEP forum is http://www.diepbreastreconstruction.org/forum/
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Old 07-27-2010, 01:26 AM   #3
Lauriesh
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Join Date: Oct 2005
Location: Lakeville, Minnesota
Posts: 199
Re: DIEP Flap anyone?

Hi Leslie, I had a diep flap done about 4 years ago and am very happy with the results.

It is a big surgery, but the scars are not bad.

I went down to New Orleans for it, and can't say enough about the surgeons down there.

Feel free to pm me if you want more info


Laurie
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