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05-08-2008, 04:47 PM
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#21
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Hi Marcia, we'll all be "with" you on Monday. Like the girls said, if you have concerns about the neck pains, tell your doc. and get a test done. Your appointment is Monday, so to help you relax, and get a good night's sleep, you need to follow Dr. Bill's Cure-All. Before bed on Sunday, take a long hot bath. Light some scented candles, listen to a little George Winston piano music (or Beethoven, or Carlos Nakai, Flute music) and just languish in the bubbles and relax, then go to bed and just drift off to sleep. Tomorrow always takes care of itself. Love ya! Bill
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05-08-2008, 04:48 PM
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#22
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Oh, I forgot, ribs are for tickling!
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05-08-2008, 05:30 PM
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#23
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Senior Member
Join Date: Aug 2006
Location: Poland Ohio just a little south of Youngstown.
Posts: 473
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Debbie, I'll be keeping you in my thoughts and prayers too! Lotsa stuff going on for a lot of us. Everyone be sure to check in.
Hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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05-08-2008, 05:33 PM
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#24
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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hugs
HUGS, HUGS and more Hugs!!!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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05-08-2008, 06:12 PM
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#25
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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We must all be on the same timetable. I have my blood draw on Monday (12th) and my appt the 19th with a Zometa infusion.
I will be thinking of you (I am still on every 4 months - I think I freaked everyone out with that cyst 7 months ago as my rad onc changed back to every 6 months and I went to every yr with him). Oh well - be well. We can swap tumor markers next week.
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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05-08-2008, 06:18 PM
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#26
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Sending hugs to you.........and understanding for those anxious feelings. I, too, see my onc. June 5 and I'm starting to have "symptoms" and as of today think I have cancer everywhere. Along with my blood work this time my onc. will be doing the liver enzyme and other liver tests (not sure what they are) I'm getting afraid and am sure I will have liver mets or something soon.
Oh the anxiety of living with this is hard sometimes.....isn't it? So a hug to you and I'd appreciate one back. 
Thank you....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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05-08-2008, 06:23 PM
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#27
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Awwww, you all have my hugs. Y'all just try not to worry too much.
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05-08-2008, 07:10 PM
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#28
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Big squishy hugs for you Marcia! We all know to well the stress of these appts.
Prayers that all is a-okay!!
Hugs and Prayers,
Lexi
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05-08-2008, 08:16 PM
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#29
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Senior Member
Join Date: Feb 2007
Location: Cordoba, Mexico
Posts: 672
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Marcia,
Lots and lots of cyber hugs for you, and my prayings for you and all the sisters in this board.
Paty
__________________
Dx. June 30th, 2006 at age 43
Lumpectomy rt breast
2.2 cm tumor, 13 nodes all negative
ER-PR+,her2+++
6 FAC
32 Rads
Dx. Lung fibrosis due to radiation
Ended 1 year herceptin in March, 2008
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05-08-2008, 08:31 PM
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#30
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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I will think about you Monday. I too, have an appointment with my Oncologist to see my PET scan (today) result.
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
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05-08-2008, 08:36 PM
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#31
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Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
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Hugs and prayers to all of you sisters who are undergoing check-ups and tests this coming week. I will be thinking of your daily and keeping you in my prayers.
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05-09-2008, 02:03 PM
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#32
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Senior Member
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
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tests and checkups
Good thread.
Marcia, mixed thoughts here, but I think you should not hesitate to ask for the imaging. At the same time, I want to encourage you by saying that I had neck and shoulder pain on the affected side that was bad enough that also caused constant vertigo. So... naturally I was worried about the brain. My PCP agreed to MRI of the brain, which turned out to be fine. A physical therapist who specialized in vertigo taught me a few exercises and although periodically I get the neck and shoulder aches I just do the exercises, and I never get the vertigo and the neck and shoulder aches do go away again.
Thinking of you all, hoping exams and tests go well,
AlaskaAngel
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05-09-2008, 04:05 PM
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#33
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Dear Becky, Marcia and Pink Girl,
May all your numbers be small!
You are covered with prayers !
Love,
Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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05-09-2008, 04:32 PM
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#34
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Senior Member
Join Date: Dec 2006
Posts: 136
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Marcia -
First, yes a hug for your check-up anxiety! Second, I was wondering if you had a port? I had neck and shoulder pain as well for sometime after treatment so of course my first, "6 monther" I had lots of anxiety. What I did discover was that the port was causing my problems. No one would have guessed! Port removed and no pain what-so-ever.
Third, we all know about your anxiety which is why we will all give you a "cyber-hug"!
__________________
Debra
Diag. 11/05 at age 40 triple positive
3.8 cm tumor and 9 mm tumor
Stage IIb/SN positive(no other nodes)Grade 3
Bilat. mastect. 12/05 (Rt.prophylactic) followed with AC/taxol/Herceptin/tamoxifen then switched to arimidex after hysterectomy in 12/06. August 07 switched to Aromasin due to severe jt. pain from Arimidex. Nov. 2011 No more meds and NED!
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05-09-2008, 06:25 PM
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#35
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Just waiting for all those low numbers to show up on the boards!
Scanxiety---BE GONE!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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05-09-2008, 07:34 PM
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#36
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Marcia, Pink Girl and Tricia, Good luck on your follow-ups! I'm praying for you! Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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05-09-2008, 07:37 PM
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#37
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Senior Member
Join Date: Oct 2007
Posts: 1,851
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Jackie and Becky, Good luck to you too with your tests! Joan
__________________
Diagnosed stage 2b in July 2003 (2.3 cm, HER2+, ER-/PR-, 7+ nodes). Treated with mastectomy (with immediate DIEP flap reconstruction), AC + T/Herceptin (off label). Cancer advanced to lung in Jan. 2007 (1 cm nodule). Started Herceptin every 3 weeks. Lung wedge resection April 2007. Cancer recurred in lung April 2008. RFA of lung in August 2008. 2nd annual brain MRI in Oct. 2008 discovered 2.6 cm cystic tumor in left frontal lobe. Craniotomy Oct. 2008 (ER-/PR-/HER2-) followed by targeted radiation (IMRT). Coughing up blood Feb. 2009. Thoractomy July 2009 to cut out fungal ball of common soil fungus (aspergillus) that grew in the RFA cavity (most likely inhaled while gardening). No cancer, only fungus. Removal of tiny melanoma from upper left arm, plus sentinel lymph node biopsy in Feb. 2016. Guardant Health liquid biopsy in Feb. 2016 showed mutations in 4 subtypes of TP53. Repeat of Guardant Health biopsy in Jana. 2021 showed 3 TP53 mutations, BRCA1 mutation and CHEK2 mutation. Invitae genetic testing showed negative for all of these. Living with MBC since 2007. Stopped Herceptin Hylecta (injection) treatment in March 2020. Recent 2021 annual CT of chest, abdomen and pelvis and annual brain MRI showed NED. Praying for NED forever!!
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05-09-2008, 09:51 PM
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#38
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Senior Member
Join Date: Mar 2007
Location: Hilo, Hawaii
Posts: 1,867
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Marcia,
Wishing you a great 6 month ck up on Monday.
I had my 6 month ck up with my onco when I was in CA and it all went perfect. Thank goodness.
For the past month I have been having an occasional very slight discharge and I have been in menopause for several yrs. It is very faint, very light in color and hardly happens. So today I had an ultrasound done and am waiting for those results.
I tell you, I think we are all so tuned in to anything even slightly peculiar!!
Maryanne
__________________
*** MARYANNE *** aka HARRIECANARIE
1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen
2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy
2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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05-10-2008, 08:43 PM
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#39
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Hi folks,
went back to work this past week and due to a shortage of staff (always!) and Mothers Day am working crazy shifts and am pooped!
debra had my port out in August...
I simply cant thank you enough for just being out there and responding. Since by best buddies recurrence news last month...and our loved ones here...its tough believing/acting/feeling like a SURVIVOR. I always have had difficulties referring to myself as a survivor as I dont feel the tallies are all in if you know what i mean?
Big hugs,Marcia
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05-11-2008, 11:56 AM
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#40
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Senior Member
Join Date: Oct 2005
Location: LAND OF YES!
w/home in Boca Raton, Florida
Orig from L.I., N.Y.
Ever hovering IN THE NOW...
Posts: 1,904
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Hey Socco...
Hey Soc -- You have survived the surgery, the chemo, the scans and the tests including the inscanity and anxiety waiting for results. You have beaten the ca into submission. You have survived the reconstructive surgery. You have a Survivor's mentality, Marcia! Claim that. It is yours. You have earned that title. It is who you are! And I wish you more of the same for at least another 50 yrs.
With LOVE and HUGS and wishes for a HAPPY MOTHER'S DAY too!
Andi 
__________________
Andi BB
'95 post-meno dx Invasive LOBULAR w/9cm tumor! YIKES + 2/21 nodes. Clear mammo 10 mnths earlier. Mastec/tram flap reconst/PORT/8 mnths chemo (4Adria/8CMF). Borderline ER/PR. Tamoxifen 2 yrs. Felt BLESSED. I could walk and talk, feed and bathe myself! I KNEW I would survive...
'98 -- multiple mets to liver. HER2+ 80%. ER/PR- Raging, highly aggressive tumors spreading fast. New PORT. 9 mnths Taxotere Fought fire w/fire! Pronounced in cautious remission 5/99. Taxotere weekly for 6 wks, 2 wks off -- for 9 mnths. TALK ABOUT GRUELING! (I believe they've altered that protocol since those days -- sure hope so!!)
+ good old Vit H wkly for 1st 3 yrs, then triple dosage ev 3 wks for 7 yrs more... The "easy" chemo, right?! Not a walk in the park, but not a freight train coming at 'ya either...
Added Herceptin Nov '98 (6 wks after FDA fast-tracked it for met bc). Stayed w/Vit H till July '08! Now I AM FREE! Humbly and eternally grateful for this life-saving drug! NED since '99 and planning on keeping it that way. To hell w/poor prognosis and nasty stats! STOPPED VIT H JULY '08...! REMAIN STABLE... Eternally grateful...Yes is a world & in this world of yes live (skillfully curled) all worlds ... (e e cummings) EVERY DAY I BEAT MY PREVIOUS RECORD FOR # OF CONSECUTIVE DAYS I'VE STAYED ALIVE. Smile KNOWING you too can be a miracle. Up to me and God now...
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