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Old 06-11-2015, 07:47 PM   #1
Mtngrl
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Join Date: May 2011
Location: Denver, CO
Posts: 1,427
Cancer and Trauma

People who scored 6 or higher on the 10-point scale developed in connection with the large, scientifically rigorous ACE (Adverse Childhood Experiences) study were twice as likely to develop cancer as people who scored 0. (I read this in a book by Bessel van der Kolk called The Body Keeps the Score. A quick Google search turned up several studies, including this one: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3679131/)

As we all know, being told you have a deadly illness and then undergoing cancer treatment are, in and of themselves, traumatic. For people with a trauma history, a new adverse event can trigger anxiety, depression, PTSD, dissociation, depersonalization, etc. related to past trauma, making the whole thing doubly or triply difficult and trying. Think, for a moment, about what someone who's been sexually assaulted goes through in a CT machine.

And yet identifying and addressing trauma history is not a part of standard cancer treatment.

But you can seek it out. As a starting point, I highly recommend the book I mentioned in the first paragraph. Another very helpful book is Dan Siegel's Mindsight.

Here's the short version: Mind/body dualism is not a helpful way to think about people. The human mind/consciousness is located in the entire nervous system, not just the brain. We are finely tuned sensing/feeling/judging/acting organisms. Our primary biological imperative is physical survival, so those systems operate automatically.

The fight/flight/freeze mechanisms that alert us to danger and keep us safe can get "stuck" in patterns that, over time, change our brains and our bodies on a cellular level in ways that damage our health. The good news is, contrary to what was once thought, the brain and nervous system can get reprogrammed/rewired.

Dr. van der Kolk talks about "top down" and "bottom up" approaches to reintegrating mind/body/spirit/thoughts/feelings. He is not opposed to psychiatric medications, and, as a psychiatrist, prescribes them, but in his book he points out the downside to relying on medication to control behavioral health. Medication can be very helpful, but it is not capable of making long-term neurological changes, but there are ways to do that.

He's convinced, after years of working with people who've experienced trauma, that the body has to be enlisted in the quest for mental health. I would add that we also need other people.

This can take many forms: yoga, martial arts, choral singing, dancing. Acting in a play (especially, he says, Greek tragedies), reciting poetry, praying, chanting are other ideas. Anything that increases mindfulness and strengthens the connection between the brain, the muscles, and the emotions can help. You can learn how to calm yourself down, focus, stay in the Now. You can interrupt a flood of adrenaline and other stress hormones with breathing techniques, visualization, affirmations, and other skills. As a bonus, this also helps with road rage, unreasonable bosses, and bratty children.

I personally think arts and crafts are therapeutic. Color. Knit or crochet. Embroider. Paint. Sculpt.

I also think beauty is healing. Get out in the sun, near water, with trees, grass, flowers, birds.

This post is already very long. But my point is the medical treatment you are getting is necessary, but probably not sufficient. You already know that in terms of diet and the need for physical activity. Your emotions, your thoughts, your mental state, are also things you can change for the better (with the help of a skilled therapist or a wise spiritual adviser). It may very well affect your cancer outcome. It will unquestionably help you live the best life you possibly can.
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Amy
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4/19/11 Diagnosed invasive ductal carcinoma in left breast; 2.3 cm tumor, 1 axillary lymph node, weakly ER+, HER2+++
4/29/11 CT scan shows suspicious lesions on liver and lungs
5/17/11 liver biopsy
5/24/11 liver met confirmed--Stage IV at diagnosis
5/27/11 Begin weekly Taxol & Herceptin for 3 months (standard of care at the time of my DX)
7/18/11 Switch to weekly Abraxane & Herceptin due to Taxol allergy
8/29/11 CT scan shows no new lesions & old lesions shrinking
9/27/11 Finish Abraxane. Start Herceptin every 3 weeks. Begin taking Arimidex
10/17/11--Brain MRI--No Brain mets
12/5/11 PET scan--Almost NED
5/15/12 PET scan shows progression-breast/chest/spine (one vertebra)
5/22/12 Stop taking Arimidex; stay on Herceptin
6/11/12 Started Tykerb and Herceptin on clinical trial (w/no chemo)
9/24/12 CT scan--No new mets. Everything stable.
3/11/13 CT Scan--two small new possible mets and odd looking area in left lung getting larger.
4/2/13--Biopsy of suspicious area in lower left lung. Mets to lung confirmed.
4/30/13 Begin Kadcyla/TDM-1
8/16/13 PET scan "mixed," with some areas of increased uptake, but also some definite improvement, so I'll stay on TDM-1/Kadcyla.
11/11/13 Finally get hormone receptor results from lung biopsy of 4/2/13. My cancer is no longer ER positive.
11/13/13 PET scan mixed results again. We're calling it "stable." Problems breathing on exertion.
2/18/14 PET scan shows a new lesion and newly active lymph node in chest, other progression. Bye bye TDM-1.
2/28/14 Begin Herceptin/Perjeta every 3 weeks.
6/8/14 PET "mixed," with no new lesions, and everything but lower lungs improving. My breathing is better.
8/18/14 PET "mixed" again. Upper lungs & one spine met stable, lower lungs less FDG avid, original tumor more avid, one lymph node in mediastinum more avid.
9/1/14 Begin taking Xeloda one week on, one week off. Will also stay on Herceptin and Perjeta every three weeks.
12/11/14 PET Scan--no new lesions, and everything looks better than it did.
3/20/15 PET Scan--no new lesions, but lower lung lesions larger and a bit more avid.
4/13/15 Increasing Xeloda dose to 10 days on, one week off.
7/1/15 Scan "mixed" again, but suggests continuing progression. Stop Xeloda. Substitute Abraxane every 3 weeks starting 7/13.
10/28/15 PET scan shows dramatic improvement everywhere. All lesions except lower lungs have resolved; lower lungs noticeably improved.
12/18/15 Last Abraxane. Continue on Herceptin and Perjeta alone beginning 1/8/16.
1/27/16 PET scan shows cancer is stable.
5/11/16 PET scan shows uptake in some areas that were resolved on the last two scans.
6/3/16 Begin Kadcyla and Tykerb combination
6/5 - 6/23 Horrible diarrhea from K&T together. Got pneumonia.
7/15/16 Begin Kadcyla only every 3 weeks.
9/6/16 Begin radiation therapy on right lung lesion that caused the pneumonia.
10/3/16 Last of 12 radiation treatments to right lung.
11/4/16 Huffing and puffing, low O2, high heart rate, on tiniest bit of exertion. Diagnosed as radiation pneumonitis. Treated with Prednisone.
11/11/16 PET scan shows significant improvement to radiated part of right lung BUT a bunch of new lung lesions, and the bone met is getting worse.
11/22/16 Begin Eribulin and Herceptin. H every 3 weeks. E two weeks on, one week off.
3/6/17 Scan shows progression in lungs. Bone met a little better.
3/23/17 Lung biopsy. Tumor sampled is ER-, PR+ (5%), HER2+++. Getting Herceptin and Perjeta as a maintenance treatment.
5/31/17 Port placement
6/1/17 Start Navelbine & Tykerb
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