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View Poll Results: Would you like the Her2 Support Group to create a Memorial/Tribute page
Yes 40 76.92%
No 12 23.08%
Voters: 52. You may not vote on this poll

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Old 10-16-2012, 10:36 AM   #1
Nancy L
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Location: La Quinta, Ca
Posts: 253
Re: How do you feel about a Memorial/Tribute Forum?

I think this site did a nice job doing something like this. If you are not aware of this organization dedicated to metastatic BC, I encourage you to see what they are about.

http://www.metavivor.org/AboutUs_Motivat.html
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Old 10-16-2012, 11:41 AM   #2
StephN
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Location: Misty woods of WA State
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Re: How do you feel about a Memorial/Tribute Forum?

NancyL -
All I could find in that site was the following:

http://www.metavivor.org/Awareness_InMemorm.html

which is basically a request for donations in the person's name (which has a short obit) and not a tribute page.

If you found something else, please give the exact link.
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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