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08-05-2006, 07:04 AM
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#1
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Webmaster
Join Date: Feb 2005
Location: Home of the "Flying Tomato"
Carlsbad, CA
Posts: 2,036
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Michele U - 3 Years NED
And presented herself with a present:
What's his/her name?
Regrds
Joe
__________________
A Proud webmaster to the internet's most informed, educated, COMPASSIONATE and caring group of breast cancer survivors.
Illegitimi non carborundum
My Album
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08-05-2006, 07:43 AM
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#2
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Senior Member
Join Date: Nov 2005
Posts: 943
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Beautiful horse! Go Michelle, you are an inspiration. Everyday alive with this her2 bc history is a celebration!!!
__________________
Robin
2002- dx her2 positive DCIS/bc TX Mast, herceptin chemo
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08-05-2006, 11:03 AM
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#3
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Senior Member
Join Date: Sep 2005
Location: france
Posts: 1,648
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Beautiful horse Michele and congrats!
sarah
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08-05-2006, 11:18 AM
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#4
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Gorgeous horse!
If I recall - last year it was a puppy! Hope they like each other. Next year a giraffe?
Way to GO, Michelle.
When are you coming out here??
StephN
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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08-05-2006, 05:20 PM
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#5
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Senior Member
Join Date: Nov 2004
Location: Henderson, NE
Posts: 413
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Her name is Pilgrim. I know Steph, last year Puppy this year Horse. I wonder what it will be next year!! Horses bring me such happiness, I rode last night in the pasture and it was beautiful. I just thought, WOW, I would have NEVER guessed this 3 years ago!!!!!!!!!
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08-05-2006, 05:48 PM
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#6
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Michele, What a beautiful horse. I know Pilgrim will bring you much happiness. She looks so sweet. Now go out and enjoy her and try not to have TOO MUCH FUN. lol (I am jealous!)
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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08-05-2006, 06:04 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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Now we need a picture of Tinkerbell (I think I remember this is her name) on Pilgrim with you.
Congratulations on 3 years.
Kindest regards
Becky
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08-05-2006, 09:58 PM
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#8
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Senior Member
Join Date: Feb 2006
Posts: 1,014
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Wow, that horse is stunning. I am so happy you have been NED for 3 years...congrats. I hope you enjoy that lovely animal..sherryg683
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08-05-2006, 11:27 PM
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#9
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Senior Member
Join Date: Sep 2001
Location: California's Gold Country
Posts: 404
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WARNING! This horse stuff can get seriously addicting!
Michelle, Pilgrim is too cute! Care to join me at the Washoe Valley Ride next year?!
Love, Kim in CA
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08-06-2006, 01:21 AM
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#10
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Michelle,
Great looking horse. Congratulatins on being NED.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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08-06-2006, 07:52 AM
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#11
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Senior Member
Join Date: Feb 2005
Location: Wisconsin
Posts: 159
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Beautiful horse. Perhaps no one will related to the way I rewarded myself--a full-size arcade Galaga game. I was in college in the early 80s when this game was popular in the bars and I always loved it. So now I can play to my hearts content in my own house :-)
It seems to me that being outside in the fresh air with a horse is a bit better than being in a dark room with a video game, but I do get out on my road bike once in awhile....
__________________
BLOG:
http://valleygirlvnp.blogspot.com/
Dx 11/04, Age 42, ER-/PR-, HER2+++
3 months weekly Herceptin, Taxol. Carboplatin
Significant tumor shrinkage
Mastectomy 3/05; Stage 3b, 9 cm tumor, 5/8+ nodes
3 more months weekly Herceptin, Taxol. Carboplatin
7/05 30 radiation treatments, IMRT planning approach
Started 1 year of Herceptin 9/05
9/06 Began quarterly triple doses Herceptin. Brain & breast MRIs semi annually.
* * * * * * * * * * * * * * * * * * * * * * * * * * *
6/08 Right breast, intraductal carcinoma, high nuclear grade associated with comedo necrosis; extensive diffusely involved the entire biopy specimen. ER+, PR-, Her2 unknown at this point, 07/08 mastectomy.
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08-06-2006, 04:54 PM
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#12
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Senior Member
Join Date: Sep 2005
Location: Ohio
Posts: 212
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Michele, Pilgrim is so beautiful! Congratulations on your 3-year anniversary! It's kind of like having two birthdays to celebrate now! And next comes your tattoo..
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08-06-2006, 06:27 PM
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#13
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Michelle,
Congrats on your three year anniversary! Your horse is beautiful and it sounds like fun to be able to go out in your own backyard to ride anytime. I wish you so many more happy and healthy years ahead!
Love,
Lexi
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08-06-2006, 08:43 PM
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#14
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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What a beauty
Michelle,
What a wonderful way to celebrate your 3rd year NED!
Pilgrim is just beautiful - how wise of you to treat yourself to such a splendid
gift. Enjoy and God Bless.
Jean
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08-07-2006, 11:14 AM
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#15
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Senior Member
Join Date: Apr 2006
Location: Wilmington, Del.
Posts: 1,126
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Wow! I don't know a thing about horses, but that looks like a beauty to me. Does it have a name -- like an appaloosa or a pinto or something. It looks red, but maybe that's the light. MJO
PS What kind of dog do you have?
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08-07-2006, 06:49 PM
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#16
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Michelle
Pilgrim is beautiful...how relaxed you must feel riding her...there is something about animals that makes us serene.....congrats on 3years,,,many more to come, although I don't know what the next animal gift will be????
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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08-08-2006, 06:51 PM
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#17
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Senior Member
Join Date: Sep 2005
Location: Madison, Connecticut
Posts: 638
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Dear Michele,
It is so nice to see the day-to-day joys in your life and what a wonderful way to celebrate three years NED....next year a Llama?! (and I thought eating chocolate was a big deal?!) You are incredible!
Love Kim from CT
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08-08-2006, 07:03 PM
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#18
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Senior Member
Join Date: Dec 2005
Location: Walnut Creek, CA
Posts: 438
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What a beautiful horse!!! Congratulations on 3 years NED.
Karen
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08-08-2006, 07:12 PM
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#19
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Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
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She is beautiful and I love her name. I know you will enjoy her. Animals can give you so much love and all unconditional. Thanks for sharing your joy with us. hugs, Sandy
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