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Old 10-20-2007, 10:36 PM   #1
Adriana Mangus
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Pray for my husband, Please

Dear Friends:

My husband - Kent, suffered a massive stroke October 11th @ 8 o'clock in the morning. Thank God I was home and able to call 911 for help.

All these years my husband wondered why I like to read health magazines so much, well, he now needs to thanks the publishing company for putting these helpful articles out there for us to read. I remember one of the first things you need to ask a possible stroke victim is whether they know what day it is, if they do not answer or look confused, next you can ask them to smile, and if the face looks funny, crooked, then you know for sure that that person is having a stroke.

When I asked my husband to read the date off the newspaper he responded October 2nd.. Perhaps his brain was registering 11 as 1+1=2, or possibly it looked to him like a roman numeral II.

In any event, he's recuperating at a Rehabilitation Facility near the house in Poway. The center is wonderful and has excellent nurses and Physical Therapists. I'm praying for my husband's speedy recovery. I would like for him to come home before Christmas. Well see.. He's being fed through a tube and has not regain his physiological? functions. The doctors mentioned to me that's is a normal process of anyone who's suffered a massive stroke such as the one my husand had. He's also unable to communicate, however he does recognize me, my daugher and his brother who came to visit him from the Bay Area (Tiburon).

Thank you for your prayers, I know I can count on you my sisters. God Bless you All.
__________________
1994 - rt brst, .lump, underarm node dissection,chemo+rad 1.2 cms, Grade 3.
28 nodes neg
Er,Pr, Positive HER2 status unknown
2003- Recur to rt lung.July 16 ( B-Day!)
Her2+++ Er,Pr, Negative
2003 - Aug04--Navelbine + Herceptin
2004- 2007--
NED - Herceptin, only
2007 Feb-April Xeloda added to hereceptin
2007-May Back on Navelbine+Herceptin
2008-Feb-Mar 15 Ses Rad to Rt. Lung
2008- Oc 17 Add Tykerb to Herceptin
2009- June-- Discont Tykerb
2009 July 7--Current Taxol + Herceptin
2009 Dec--Discontinued treatment due to progression. Looking into cyberknife.
2010-Aug Accepted to TDM1, no SE, except liver count went up.
2010-2011 September got kicked out of the trial, due to a small spot found on lung.
2011- 2012 September thru early 2013 on Herceptin
2013- March Bone density shows small spot on 5th rib.
2013 - April 4th appt with onc. will post after discussing course of treatment.
2013-March-April Cyber knife to brain and radiation to rib. Chest --base line before chemo-CT-Scan stable for lung issue. CA2729 Normal.
2013 April Herceptin- TDMI
2013 Sept Herceptin + Perjeta . CA2729 within normal range. Brain and Pet scans October 31st. will post results.
2013 October Brain MRI- mixed response. Will see Onc/rad on Halloween.
2013 October/November Brain-MRI nothing new. Repeat MRI next year in May.

2013 December Continue Herceptin and Perjeta. Stable at the moment.
2014 February Brain MRI -clear!
2014 January Added Taxotere to Perjeta+Herceptin.
2014 March Stopped chemo-chest ct-scan next.

2014- March Scans shows tumor's larger, CA2729 higher. Discontinue Herceptin.
2014 April Perjeta+ Halaven
2014 April CA2729 went down 60 points after one cycle. Cough does not want to go away.
2014 June Continue on Perjeta + Halaven-- no more cough. Stable
2014 June Back on Herceptin + abraxane
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Old 10-20-2007, 10:48 PM   #2
Joanne S
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Adriana, I am so sorry to hear this news. I know this is very difficult for you. I have added you and your husband to my prayers. May God give you strength and hold both of you in his loving arms.

God Bless you,
Joanne
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Old 10-20-2007, 10:55 PM   #3
BonnieR
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I was just talking with a friend about what a "partnership" a marriage is. I was feeling badly that my husband is carrying so much of the weight right now. She reminded me that in marriage we take turns doing that.
What a blessing that you were there for your husband.
You are both in my prayers.
__________________
Bonnie

Post menopause
May 2007 Core biopsy, Rt breast
ER+, Pr-, HER2 +++, Grade 3
Ki-67: 90%
"suspicious area" left breast
Bilateral mastectomy, (NED on left) May 2007
Sentinel Node Neg
Stage 1, DCIS with microinvasion, 3 mm, mostly removed during the biopsy....
Femara (discontinued 7/07) Resumed 10/07
OncoType score 36 (July 07)
Began THC 7/26/07 (d/c taxol and carboplatin 10/07)
Began Herceptin alone 10/07
Finished Herceptin July /08
D/C Femara 4/10 (joint pain/trigger thumb!)
5/10 mistakenly dx with lung cancer. Middle rt lobe removed!
Aromasin started 5/10
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Old 10-20-2007, 10:57 PM   #4
G. Ann
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Your husband and you will be in my prayers and the medical staff who are taking care of him. I'm sorry you are having to deal with this. Please take good care of yourself during this stressful time.
__________________
G. Ann
DX 2/04, mastectomy, 2.5 cm tumor, grade 3
Her 2 positive, 60%, 3+/strong, ER/PR-
Stage 2, 0/18 nodes
TX 4 AC (no taxanes, no radiation)
Hysterectomy 10/04
Began Herceptin 1/06, finished 1/07
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Old 10-21-2007, 05:01 AM   #5
sarah
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Dear Adriana,
I know we are all hoping for the speedy recovery of your husband.
hugs and love
sarah
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Old 10-21-2007, 05:24 AM   #6
Sheila
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Adriana
I am so sorry to hear about your husband's stroke. You are both in my prayers. He is lucky you are so knowledgeable. Sending a big hug
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-21-2007, 07:18 AM   #7
lilyecuadorian
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my prayers are on your way for both of you ,I know for sure that he is going to be OK (is just about time his recovery) ......
__________________
Lily
Diag April/06 5 months after give birth my son Max
stage IV mets on liver (5 tumors) 38 year old,
her2+++ and ER+PR+ from32 nodes 4 positives
mastectomy right breast chemo before surgery herceptin/carboplatin/taxotere ,clear and surgery have radiation 20, `& then herceptin and tamoxifen
NED until Aug/07 body only then 'n June 04-06-07 .1 lesion of 1.6 cm on cerebellum ...novalis ,open sugery
5m.m brain met again novalis, 4mm.In the liver. Waiting 2 months now 3 tumors enroll on T-MCC trial start first infusion Nov 5/07 at Dec 17 scan show one tumor despair the 2nd and 3th diminish Doc said great results until March/08 ct scan show progression
03-05-08 start tykerb & xeloda
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Old 10-21-2007, 07:33 AM   #8
Barbara H.
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Thoughts

Adriana,
I am sending you heartfelt thoughts and wishes for his recovery. I couldn't believe it when I read your post. This is a huge unfair bump in the road for you and your family, especially considering all that you have been through. I hope that your ability to recognize so quickly what was going on with your husband will help his recovery.
Thinking of you and your family!
Barbara H.
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Old 10-21-2007, 08:56 AM   #9
DonnaD
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Adriana,
I am so sorry to hear about your husband Kent. My prayers are with you both. Please keep us informed of his progress.

Donna
__________________
Donna
Crystal Lake, IL
Diagnosed 8/4/06 at age 54
Lumpectomy 8/30/06
Stage llA, grade 3, ER/PR-, Her2++
1.7 cm tumor, 1+ lymph node out of 9
Completed 4 A/C, & 4 Taxol with Herceptin
36 rads completed 5/16/07
Mammograms, 7/07 clear
fractured ribs in radiated area 10/07
Finished Herceptin 12/27/07
Mammogram,CT,tumor markers 1/08 - small lung nodules in radiated area, repeated tests 3/08 stable
Mammogram,CT ,tumor markers 6/08 stable
NED 2 years!!
3 years !!!
4years!!!!
4 years, 10 months and 8 day NED, calling it 5 years!!!
Official 5 years 8/30/2011
8/31/ 2012 - 6 years!!!!!!
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Old 10-21-2007, 09:15 AM   #10
Patb
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My prayers are with you and your husband. Sending positive thoughts
your way.
patb
__________________
patb

Diagnosed June, 06, Stage I, Grade3, ER+PR- Her2positive, No Nodes. A/C X 4. Radiation 33 with boost, Herceptin every two weeks until Nov.
07, Arimedex for 5 years. Mugas and Echo and chest xRay. Bone scan of whole Body, and Back of Brain and spine MRI.
CT scan of Lungs every six months
due to two small places. December
2009, bone scan due to bone pain.
Follow up test in 2010.
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Old 10-21-2007, 11:04 AM   #11
Julie2
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I wish and pray for a speedy recovery for your husband. Please be strong.

Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
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Old 10-21-2007, 11:27 AM   #12
dhealey
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Location: moved to Lancaster, Pa in June, 2010
Posts: 576
Both you and your husband are in my prayers for a speedy recovery! Please take time to take of yourself also. Keep faith and stay strong
__________________
Debbie in North Carolina
Diag 10/2006-high grade invasive ductal carcinoma- mastectomy L breast
2.5 cm tumor ER/PR pos-Her2+++
4 rounds A/C, 4 rounds Taxol
Herceptin every 3 weeks until Jan. 2008
6/18/07 prophylatic mastectomy R breast
8/2007 started aromasin/stopped arimidex (side effects)
12/07 stopped aromasin due to side effects (now what?)
Finished herceptin 1/8/08
started tamoxifen for 2 years then will switch to femera
allergic to tamoxifen started femera 4/2008
June 20, 2008 portacath removed
Learnig to live life to the fullest!
Stopped Femera due to side effects
July 28, 2008 start trial for breast cancer vaccine
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Old 10-21-2007, 11:57 AM   #13
tousled1
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Praying for a speedy and full recovery for your husband Kent.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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Old 10-21-2007, 04:58 PM   #14
mslinda
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Adriana:
I will be praying for you and your husband. I am so sorry this has happened to him and to you.

Linda
S. Mississippi
__________________
Diagnosed 12/23/04
Biopsy 12/28/04
Lumpectomy 1/04/05
IDC, ER-PR-, HER2Neu+++
7mm tumor, Stage 1, Grade 3
6 CAF's
38 Rads
Finished 10/05

"Worry looks around. Sorry looks back. Faith looks up."
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Old 10-21-2007, 05:32 PM   #15
kareneg
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Location: Lincoln, Rhode Island
Posts: 371
Dear Adriana,

My prayers are with your husband and you in this diffucult time, I will pray for a speedy recovery.
__________________
Love and Hope
Karen

IDC
DX 1998 STAGE I ER+/ PR+
AC CHEMO TILL FEB 1999
Tamxofin till 2001
2001 exstensive liver mets and mets to lungs
Started weekly taxol
Jan 2002 found out I was strongly HER2POS+++ started herceptin continued with taxol and herceptin till June 2002 then from June 2002 till Jan 2005 just herceptin and Arimidex
2005 Navelbine herceptin had RFA Then back on taxol with herceptin
April 2006 progression again went on clinical trial with tykrerb/herceptin progressed on the started Xeloda/ herceptin
Feb 2007 started Doxil
August 2007 Taxotere,Carboplatin and Herceptin exstensive mets to liver and pancreas
October 2007 Had to stop Carboplatin due to sever allergic reaction
Jan 2008
Stopped Taxotere due to progression now on Gemzar and Herceptin
March 2008 Starting Carboplatin, Abraxane, and Herceptin.
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Old 10-21-2007, 06:21 PM   #16
nitewind
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I'm keeping you and your husband in my prayers. So sorry you're going through this.
Hugs
__________________
Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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Old 10-21-2007, 06:43 PM   #17
StillHere
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Adriana, I hope your daughter is close by, or at least in daily contact with you, so you can support each other during this trying time. Do remember to take of yourself as well as Kent. Sending you positive vibes for a speedy recovery. Peace Karen
__________________
04/05 Onset 49, DCIS, solid, Hist 2/3, Nucl 2/3, 7cm R Brst
04/05 E & P + HER2+++
05/05 Mediport
05/05 Cytoxan & Adriamycin every 3wk x4
08/05 Taxol every 2wk x 4, Herceptin every wk x1yr
10/05 Bilat Mast - my Choice
10/05 3/19 lymph nodes Pos, Stage IIIa
11/05 Rad x 37 Rx, R Brst & Axcilla
02/06 Herceptin stopped (L vent HF 40)
03/06 Started & Stoped Arimidex after 2 mos.-QOL side effects
05/06 Started Tamoxafin
06/06 Bilat Free Flap Reconstruction
12/06 Cardiomyopathy reversed-HF normal
01/07 Bilat Saline Implants
07/07 CA 27-29 steadily rising from 28 in 12/06 to 46 in 7/07
07/07 PET Scan NED, but inflamation at prev surg site.
09/07 Started Femara
10/07 CA 27-29 down to 39
06/08 CA 27-29 down to 32
09/08 Lg joint pain & QOL side effects from Femara, will live w/ to keep CA markers within normal range.
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Old 10-21-2007, 07:53 PM   #18
Bev
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I hope the quick treatment he received will help speed Kent's recovery. Being awake is a good sign. Keep us updated.

Best wishes, Bev.
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Old 10-22-2007, 07:16 AM   #19
Vi Schorpp
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Posts: 385
Prayers to you and your husband

I'm grateful you were there when he had his stroke. My husband had also had a stroke, and it wasn't apparent at first. When I told him I was going to shower, he made no sense and I realized what had happened. Luckily we got him to the hospital in time for the clot-busting drug (which is a big decision in itself). Once he was home from the hospital and doing outpatient rehab, I did a quick doctor visit for myself (in the same hospital) and came to pick him up from his appointment. At first he seemed "normal," but then he began trying to stack all the papers on the nurse's station to bring home and just acting strange somehow. Something just wasn't right. We brought him back to the ER, and he had suffered another stroke. I was surprised that no one in rehab had picked up on his behavior, but they didn't know him like I did.
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Old 10-22-2007, 12:07 PM   #20
Jean
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Posts: 3,154
Prayers are happening...

How lucky for your husband that you were so wise and knew what to do.
Sending you many many prayers for a speedy recovery!

Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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