ER/PR negative survivors

[anna4969]

Me too, ER/PR - Her2 + stage 3a, 9 cm. tumor and close to 8 lymph nodes involved. Near complete response after neoadjuvant chemo and lymph nodes all clear. It will be 4 years this coming January. Like some of the gals said, I would highly recommend a vaccine as well. I received one at MD Anderson in Texas. I traveled many miles and am thankful every single day that I had the opportunity to get it. It is not to say that vaccines are the cure but it is one more thing you could do and they are quite safe. You might want to do a little investigating as I do know that some of the vaccines do not want you to be past 6 months since your last Herceptin. My vaccine was given in tandem with Herceptin but most are after you have completed your 1 year. Take care and we are here, us Her2 positve only girls.

[christy86m]

Thank you all so much for your replies!! I noticed one member mentioned tamoxifen which I thought was only for ER/PR + patients but what do I know. I need to figure out how to add my clinical story to my name tag.

I also read the note the member wrote about maybe needing to start the vaccine within 6 months of being off Herceptin. Ironically I am 2 weeks shy of my last Herceptin. Makes me nervous to read the vaccine helps more of the low Her2 + patients (I am Her2 +++). I am BRCA1 and BRCA2 negative with zero family history. I live in Ohio but I'm currently trying to get approved (insurance) for CancerNext genetic testing.

I also read about the tamoxifen thickening a members uterine lining. I am having that anyway with no tamoxifen - but did have infertility and PCOD - and now hyperplasia so the uterus is going to have to go.

No boobs - no uterus. I will have to start going by Chris instead of Christy.

I have a physically supportive husband and two amazing young boys (5 and 7) but this is a lonely existence.

Thanks again for replying - it has meant the world to me.

Christy aka Chris