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Old 10-15-2009, 11:07 PM   #1
Believe51
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Location: RHODE ISLAND (Ed getting me a latte on 2nd Cancerversary Cruise 2008) 'BELIEVE': To accept as true or real, To have faith in, To presume ALWAYS BELIEVE
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Unhappy ~Mighty Oak Has Earned His Wings And Halo...

My Mighty Oak just passed at 1:25 on October 16, 2009. I write in my fighting color because although an end to his body, his soul and mine will continue to fight breast cancer.

I thank you all for joining us on this horrific journey, for sharing your love and education. We could have never done this without you all. I know I am already forgiven for my abscence from my family for the time to come.

I will post funeral plans as I know some have inquired. I am so relieved for him, his fight has been anything but simple. For the lives I am about to save and prolong at work in the cancer foundation, I do it in his honor....in all of your honors, for the memories of those we have loved and lost.

Please accept a special thank you for the newbies and quiet family that have stepped to the plate to let their voice be heard at the times I have needed it the most. For the outpour of help and offers of rides....for loving me through the worst moments of my life. I love you all!

Thank you Ed, for teaching me things even moments before your death. I will be alright until we meet again and that all comes from loving you! I will continue to make you proud! I love you forever!
Marie...aka Believe51!!!
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9/7/06Husband 50yrs=StageIV IBC/HER2+,BoneMets10/06TaxotereX10,'H'1X wk,Zometa,Tamoxifen4/12/07Last Tax5/18/07Pet=Rapid Cell Activity,No Organ Mets,Lytic Lesions,Degeneration,Some Bone Repair5/07ChemoFail6/01/07Pleural Thoracentisis=Effusions,NoMalignantCells6/19/07+7/2/07DFCI
6/25/07BrainMRI=BrainMets,Many<9mm7/10/07WBR/PelvisRad37.5Gx15&Nutritionist8/19/07T/X9/20/07BrainMRI=2<2mm10/6/07Pet=BoneProgression
10/24/07ChemoFail11/9/07A/Cx10,EndTam12/7/07Faslodex12/10/07Muga7512/13/07BlasticLesions1/7/08BrainMRI=Clear4/1/08Pet=BoneImprovement,
NoProgression,Stable4/7/08BrainPerfect5/16/08Last A/C8/26/08BrainMets=10(<9mm)9/10/08Gamma10/30/08Met=5mm12/19/08Gamma5mets5
12/22/08SpinalMets1/14/09SpinalRads2/17/09BrainMRI=NoNewMets4/20/09BoneScan5/14/09Ixempra6/1/09BrainMRI=NumerousMets6/24/09DFCIw/DrBurstein6/26/09Continue
Ixempra/Faslodex/Zometa~TM now lower7/17/09Stop Ixempra By Choice9/21/09HOSPICE10/16/09Earned His Deserved Wings And Halo=37 Month Fight w/Stage 4 IBC, Her2+++,My Hero!!
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Old 10-15-2009, 11:11 PM   #2
hutchibk
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Re: ~Mighty Oak Has Earned His Wings And Halo...

My heart is just shredded and broken, but the minute I read this I got a vibration through my body, and I know our newest angel has already started his new job... he let me know.

Marie, all the love in the world. Prayers, comfort and peace through the next few days, weeks, months... your Mighty Oak is standing tall and protective over us all, especially you.

Today is my dear big brother's birthday, and I know that Ed is going to a fantastic party today... I know you know that it's a good one. My brother will make sure they say a toast to us. My bro was a mighty oak as well... standing 6'10" tall. He too was my protector and I know he is always keeping a good eye on us.
__________________
Brenda

NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."

Last edited by hutchibk; 10-15-2009 at 11:15 PM..
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Old 10-15-2009, 11:20 PM   #3
sarah
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Our deepest sympathies.
big hugs and love
sarah
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Old 10-15-2009, 11:30 PM   #4
mcgle
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Though not a religious person, I send my send my sincere condolences for your loss. Ed's suffering is now over, Marie, and I wish you well for the future.

Mcgle (UK)
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Old 10-16-2009, 12:26 AM   #5
Karen W
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie, I am so sorry to hear about Ed. He knew he was loved and he loved you back. Both of you hold a special place in my heart and will never be forgotten.

Sending Strength, hugs and healing prayers.

Karen
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Old 10-16-2009, 02:02 AM   #6
RhondaH
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie My thoughts already on FB and again, HUGE HUGS from me...
__________________
Rhonda

Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)

2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)


" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
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Old 10-16-2009, 02:21 AM   #7
tricia keegan
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie, I saw your sad news on FB where I replied also.
I'm so sorry..there are no words to express my sympathy and sadness. xxx
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Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
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Old 10-16-2009, 02:24 AM   #8
Brenda_D
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Re: ~Mighty Oak Has Earned His Wings And Halo...

So sorry to hear. You are both in my prayers
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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Old 10-16-2009, 02:30 AM   #9
michka
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Post Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie, I send you love and hugs to help you find peace. I have tears in my eyes because Ed and you fought with all the love you had for one another. The way you write all your posts is exceptional and translates what a fine person you are. I understand all the feelings you have and admire the way Ed and you went through these terrible months. Marie, we love you here. I hate this sickness. Michka
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08.2006 3 cm IDC Stage 2-3, HER2 3+ ER+90% PR 20%
FEC, Taxol+ Herceptin, Mastectomy, Radiation, Herceptin 1 year followed by Tykerb 1 year,Aromasin /Faslodex

12.2010 Mets to liver,Herceptin+Tykerb
03.2011 Liver resection ER+70% PR-
04.2011 Herceptin+Navelbine+750mg Tykerb
06.2011 Liver ned, Met to sternum. Added Zometa 09.2011 Cyberknife for sternum
11.2011 Pet clear. Stop Navelbine, continuing on Hercpetin+Tykerb+Aromasin
02.2012 Mets to lungs, nodes, liver
04.2012 TDM1, Ned in 07.2012
04.2015 Stop TDM1/Kadcyla, still Ned, liver problems
04.2016 Liver mets. Back on Kadcyla
08.2016 Kadcyla stopped working. mets to liver lungs bones
09.2016 Biopsy to liver. no more HER2, still ER+
09.2016 CMF Afinitor/Aromasin/ Xgeva.Met to eye muscle Cyberknife
01.2017 Gemzar/Carboplatin/ Ibrance/Faslodex then Taxotere
02.2017 30 micro mets to brain breathing getting worse and worse
04.2017 Liquid biopsy/CTC indicates HER2 again. Start Herceptin with Halaven
06.2017 all tumors shrunk 60% . more micro mets to brain (1mm mets) no symptoms
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Old 10-16-2009, 03:01 AM   #10
Mary Anne in TX
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie's & Ed's struggles, triumphs, and never-ending efforts have already blessed so many. I too believe that his arrival must have brought great celebration above! For your tasks at hand, I offer my love and prayers. You're one terrific lady.
Much love to you Mighty Marie as you begin your new journey.
ma
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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Old 10-16-2009, 03:35 AM   #11
christie
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Dearest Marie,

I have always admired you and Ed, the loving relationship you both shared and the way you supported each other encouraged me a lot. Praying for you , for strength at this difficult time. But as believers we dont have to feel sad because you will surely meet Ed once again. God bless you Marie
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Old 10-16-2009, 04:21 AM   #12
DanaRT
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Dearest Marie,

My deepest condolences.

You are a brave strong woman.

Love,
Dana
__________________
-Dana-

]
Diagnosed - Nov. 2, 2007 at 45
Lumpectomy - Nov. 13, 2007
Tumor 1.2 cm
Stage 1 Grade 3
ER/PR - Her2 +++ (3.8)
Taxotere/Carboplatin/Herceptin- 6 rounds
Neulasta
Radiation 33 treatments - will be done 6/6/08
Herceptin through 12/08
12/07 MUGA 61%, 4/08 MUGA 60%, 7/08 MUGA 64%
three wonderful daughters, a terrific husband,
Life is Good
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Old 10-16-2009, 04:23 AM   #13
Savta
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie,
My thoughts and prayers are with you in these difficult hours. Ed's strength and courage was a beacon to all of us that followed you on your journey.
May the love and memories of better times support you in the days to come.
And know we will never forget either of you.
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Old 10-16-2009, 05:06 AM   #14
Pam P
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie - I've been checking in every day expecting to see this news, knowing it was coming, but so dreading to see it. Today reading your message I am filled with peace - a sad peace. Your fight - Ed's fight was horrific yet couragous and your including us in it on this site gave me such a model of grace, love and perserverence. I thank you both for that and for the continued fight and advocacy you will do to fight this disease. My sympathy to you, dear brave, gracious, and compassionate Marie. I know you will have and feel Ed's spirit walking with you in the days ahead. Pam
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Pam
6/01 IBC er+ her2+stage IIIb; mastecomy
7/01 AC, taxol; radiation
2/02 tamoxifen
9/02 stage IV bone mets femara
1/03 taxotere/herceptin/aredia
6/03 herceptin, aredia & faslodex
1/04 navelbine, herceptin, aredia
2/05 herceptin/aredia
7/05 xeloda/herceptin/aredia
3/07 xeloda/tykerb/aredia
5/08 taxol/avastin/aredia
2/09 gemzar/herceptin/zometa
7/09 Taxol/Carbo/Herceptin, zometa
10/09 navelbine/herceptin & zometa
2/10 herceptin & tykerb & zometa
4/10 add xeloda &aromasin
10/10 dx with dermatomyiositis triggered by cancer
11/10 restart herceptin, tykerb, zometa
12/10 surgery-place rod in R femur to stabilize bone
1/11 radiation to R femur - 20 tx
2/11 2nd surgery - rod in Left femur
2/11 tx eribulen -- suspended dx brain mets
3/11 brain mets wbr 20 tx
4/11 halaven; discontine 8/11 not working
8/11 radiation to left femur 20 tx'
8-9/11 rad to lower spine
9/11 abraxane/herceptin/zometa
9/12 xeloda/herceptin/zometa
12/12 ablation of liver
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Old 10-16-2009, 05:29 AM   #15
nitewind
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie, I don't know what to say. You've allowed us to be part of your lives and all your triumphs, challenges and a part of seeing real devotion and love.
I cried when I opened this thread earlier this morning and I had to come back to it. Your wonderful Ed is no longer in pain and suffering so badly. He, and you, fought a good fight.
You are a true warrior and you have all of our respect and love. Stay strong, sweetie, we love you so much.
sue
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Susan
Age: 61
dx: 5/25/06
2 cm/ 0 nodes
Lumpectomy rt breast on 7/26/06
ER/PR- / Her2+++
A/C x 4
finished taxotere 2/07
finished 33 rads
Herceptin finished 12/07/07 Yippee!
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Old 10-16-2009, 05:36 AM   #16
lisajones4
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie - I am so so sorry for your loss. I was so inspired by your love for Ed and the continued strength and fight you both have showed through this journey. You and your family are in my thoughts and prayers. We love you.

Lisa
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Old 10-16-2009, 05:37 AM   #17
Becky
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Re: ~Mighty Oak Has Earned His Wings And Halo...

For Marie

When I pass to my reward.
Whatever that may be,
I'd like my friends to think of me
As one who loved a tree.

I may not have a statesman's poise
Nor thrill a throng with speech
But I may benefit mankind
If I set out a beech.
If I transport a sapling oak
To rear its mighty head
Twill make for them a childhood shrine,
That will not soon decay.
Of if I plant a tree with fruit,
On which the birds may feed,
Then I have fostered feathered friends
And that's a worthy deed.
For winter when the days grow short
And spirits may run low
I'd plant a pine upon the scape
T'would lend a cheery glow.
I'd like a tree to mark the spot
Where I am laid to rest
For that would be the epitaph
That I would like the best. Tho it's not carved upon a stone
For those who come to see
But friends would know that resting there
Is he, who loved a tree
-- Samuel N. Baxter
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Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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Old 10-16-2009, 05:38 AM   #18
MJo
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Re: ~Mighty Oak Has Earned His Wings And Halo...

You must be exhausted. Please take good care of yourself. God bless Ed.
__________________
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IDC, Stage I, Grade 2
Oncotype DX Score 32
Her2++ E+P+, Node Neg.
Lumpectomy 11/04/05 Clear Margins
3 Dose dense AC (Couldn't tolerate 4)
4 Dose dense Taxol & Herc. (Tolerated well)
36 weeks Herceptin (Could not complete one year due to decrease in MUGA score)
2 years of Arimidex, then three years of Femara
Finished Femara May 2011
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Old 10-16-2009, 05:45 AM   #19
Sheila
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie
Thank you for sharing your precious Ed with all of us over the past couple years, your strength, and committment are such an inspiration
Yet another angel watching over us from above~~~
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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Old 10-16-2009, 05:47 AM   #20
Yorkiegirl
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Re: ~Mighty Oak Has Earned His Wings And Halo...

Marie my heart is just breaking for you. My prayers go out to you during this most difficult time.

Ed has his wings and will certainly be watching over you always.

sending many hug's to you.
__________________
Vicki
Texas
Biopsy Dx'd 3-23-05 Age 48
MRM 4-5-05 w/ 2 tumor's 5cm, and 6 cm (right side)
IDC (poorly differentiated infiltrating ductual carcinoma)
5+/16 nodes
Stage III A
Grade 3
ER/PR-, Her2/neu ++
Ki67 78%
Begin Chemo 5-2-05 4XAC Dose Dense , 4X Abraxane Dose Dense (ended August 05)
28 Rad's ended October 13 2005
Started Herceptin Weekly August 2005 for one year
Had a Simple mastectomy left side after Mamo showed incresed micro-calcifications. Jan. 17 2006.
Brain MRI Feb.2006--All Clear
August 28, 2006 Last Weekly Herceptin.
October 2006--Colonoscopy, 6 Polyp's removed--all B9
PET Scan July 2007
Abdominal MRI Oct. 2007---2 Right Kidney Cysts
Core Biopsy-- Lump on Scar Line 1-10-08---B9
Brain MRI 6-2008--All Clear
PET/CT Scan 6-2008
Sept. 8 2008, 4CM area removed from mastectomy scar line. Proved to be B9.
PET/CT Scan-- July 2009 --All clear
August 17,2009 ---Had Port Removed
6 Years NED -- April 5,2011
DX'd with Melanoma left arm 10-10-2011
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