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07-20-2008, 06:46 PM
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#61
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Senior Member
Join Date: Nov 2007
Location: Connecticut
Posts: 2,077
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Thank God the MRI was clear. Thanks Jen, for keeping us informed and give your Mom a big hug for me.
__________________
For Nicola
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07-21-2008, 07:53 AM
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#62
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Senior Member
Join Date: Apr 2006
Location: FLORIDA
Posts: 148
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I Just Saw This Thread, How Relieved I Was To See The Scan Came Out Okay. I Always Read Sheila's Post And I Think She Is Amazing. I Hope She Is Feeling Better Every Day.
__________________
SHEILA (45)
09/2005--BREAST CANCER/8 POS NODES --A/C, MASTECTOMY,TAXOTERE, RADS, TAMOXIFEN,HERCEPTIN
02/2007--B/C METS TO OVARIES--HYSTERECTOMY, FASLODEX
12/2007--ENLARGING LYMPH NODES IN ABDOMEN--IXEMPRA, THEN TYKERB
08/2008--COLON TUMOR--A/C AGAIN,
12/2008--ABDOMEN TUMOR--AVASTIN/NAVELBINE FEMARA
05/2009--MET TO SPINE (L2) RADS
CURRENT TREATMENT
07/2009- START ZOMETA MONTHLY, XELODA & ABRAXANE......SURVIVING THE BEST I CAN
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07-21-2008, 09:40 AM
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#63
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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Such great news! Time for celebration and appreciation! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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07-21-2008, 10:09 AM
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#64
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Senior Member
Join Date: Jul 2006
Posts: 59
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WONDERFUL news! I am hoping that that Sheila sontinues to feel better and better!
Hugs Sheila!
Marcia
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07-21-2008, 11:45 AM
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#65
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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I am so relieved
Where do I start to thank you all from the bottom of my heart for all the prayers and well wishes....you are a testament that prayers DO work....what started out as "not feeling well" for 3 days, landed me in the ER in Chicago for a stat brain MRI....I called to see if my onc. would order an MRI for this Thursday when I have a treatment, and when she wasn't in, I was handed over to to other oncologists at Rush, Dr. Raou and Dr Cobleigh, who decided that the nausea, dizziness and headache required immediate emergency intervention. After the MRI, EKG, Chest xray, IV fluids and numerous bloodtests, they did not know what caused the symptoms... I was kept in an observation room in the ER...even fed dinner, until they decided I could go home. I was soooooo relieved...the nausea and dizziness have finally gone but I am still having the headache....couldn't drive for a few days, and my computer decided to crash, so I truly was housebound and sealed off from the world....well the Her2 support world...which is SO important to me. My daughter called me that night and told me she had posted asking for prayers...i think she notified the board before my family!!!! She knows what the women and men on this site mean to me!
Again, thank you all so much.....you are the substance that makes this all bearable....and I am so glad to be back with you!!!!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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07-21-2008, 12:13 PM
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#66
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Senior Member
Join Date: Oct 2005
Posts: 3,519
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we couldn't do it without you, dear Sheila! I am so happy that you are feeling better. I wonder if it is a middle or inner ear thing... I had something milder but similar last summer. Scared me silly. My doc and I talked it over and it turned out that it was something I was having allergic reaction to that caused my middle ear to have swelling, in turn causing dizziness, queasiness and mild headache. I took my Allegra for a couple of weeks with regular Motrin for anti-inflammatory, and over a course of a about a week the symptoms started to subside considerably. Also, I am guessing that whatever I was reacting to (pollens or molds in the air) also started to disappear...
__________________
Brenda
NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)
Nov'03~ dX stage 2B
Dec'03~ Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~ Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~ micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~ micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg
Apr'07~ MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~ Started Tykerb/Xeloda, no WBR for now
June'07~ MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~ MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~ PET/CT & MRI show NED
Apr'08~ scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~ MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~ dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~ Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~ new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~ new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~ 25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.
"I would rather be anecdotally alive than statistically dead."
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07-21-2008, 12:22 PM
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#67
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Senior Member
Join Date: Jan 2008
Location: "Love never fails."
Posts: 5,808
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So glad to hear from you, Sheila. It's always good idea to have everything checked out. Don't let the false alarm hinder your decision next time when you need medical attention again.
Before my first brain tumor diagnosis, I had two family doctors who believed that it was all just in my head. Turned out there was indeed something in my head. And it took more than a year - till my headaches were so huge that when I woke up one morning, it was like someone chopped my head in the middle. Still, it was dismissed as 'migrain' and/or job stress - until I saw a neurologist who is a native from India, and he uttered the words: "Chronic headache; insertion headache" and sent me for a CAT scan.
Keep a diary will be a good idea. (I am telling myself again - if I don't write it down, I won't remember it.)
__________________
Jackie07
http://www.kevinmd.com/blog/2011/06/doctors-letter-patient-newly-diagnosed-cancer.html
http://www.asco.org/ASCOv2/MultiMedi...=114&trackID=2
NICU 4.4 LB
Erythema Nodosum 85
Life-long Central Neurocytoma 4x5x6.5 cm 23 hrs 62090 semi-coma 10 d PT OT ST 30 d
3 Infertility tmts 99 > 3 u. fibroids > Pills
CN 3 GKRS 52301
IDC 1.2 cm Her2 +++ ER 5% R. Lmptmy SLNB+1 71703 6 FEC 33 R Tamoxifen
Recc IIB 2.5 cm Bi-L Mast 61407 2/9 nds PET
6 TCH Cellulitis - Lymphedema - compression sleeve & glove
H w x 4 MUGA 51 D, J 49 M
Diastasis recti
Tamoxifen B. scan
Irrtbl bowel 1'09
Colonoscopy 313
BRCA1 V1247I
hptc hemangioma
Vertigo
GI - > yogurt
hysterectomy/oophorectomy 011410
Exemestane 25 mg tab 102912 ~ 101016 stopped due to r. hip/l.thigh pain after long walk
DEXA 1/13
1-2016 lesions in liver largest 9mm & 1.3 cm onco. says not cancer.
3-11 Appendectomy - visually O.K., a lot of puss. Final path result - not cancer.
Start Vitamin D3 and Calcium supplement （600mg x2)
10-10 Stopped Exemestane due to r. hip/l.thigh pain OKed by Onco 11-08-2016
7-23-2018 9 mm groundglass nodule within the right lower lobe with indolent behavior. Due to possible adenocarcinoma, Recommend annual surveilence.
7-10-2019 CT to check lung nodule.
1-10-2020 8mm stable nodule on R Lung, two 6mm new ones on L Lung, a possible lymph node involvement in inter fissule.
"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY." Irene from Tampa
Advocacy is a passion .. not a pastime - Joe
Last edited by Jackie07; 07-21-2008 at 01:54 PM..
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07-21-2008, 01:28 PM
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#68
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Senior Member
Join Date: Oct 2007
Location: Portage, IN
Posts: 198
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Sheila
Glad you are home and feeling better.
__________________
10/15/07: Diagnosed at age 46 lymph node removal (2)
ER/PR - Her2 +++
11/07: Port Installed
11/07 - 1/08: AC
1/30/08: Right Mast Stage lllC
2/28/08: Start Taxol and Herceptin weekly.
5/15/08: Finished Taxol
8/12/08: Finished 33 Rads
1/29/09: Finished Herceptin
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07-21-2008, 04:35 PM
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#69
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Senior Member
Join Date: Jun 2006
Location: South Florida
Posts: 477
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Sheila,
Thank goodness. It is even better than usual to hear from you. I hope that your headache goes away soon and glad to hear that the other symptoms have gotten better. What a scare... thanks for checking back in so soon, you have brightened many people's day / week with your news.
Love, Hope, Peace, Carolyn
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07-21-2008, 04:43 PM
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#70
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Senior Member
Join Date: Aug 2006
Location: Sheboygan, WI
Posts: 2,582
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Hi Sheila,
I've been waiting and waiting to hear from you and here you are. Oh, I'm so relieved. How incredibly scary for you (and us ) but thank the Lord Almighty that all came out fine and here you are back among us.
You were missed and you are loved.....
Mary Jo
__________________
"Be still and know that I am God." Psalm 46:10
Dx. 6/24/05 age 45 Right Breast IDC ER/PR. Neg., - Her2+++ RB Mast. - 7/28/05 - 4 cm. tumor Margins clear - 1 microscopic cell 1 sent. node No Vasucular Invasion 4 DD A/C - 4 DD Taxol & Herceptin 1 full year of Herceptin received every 3 weeks 28 rads prophylactic Mast. 3/2/06
17 Years NED
<>< Romans 8:28
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07-21-2008, 09:58 PM
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#71
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Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
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We are all so very thankful for your good news and you will still be in our prayers. Hugs to you and your loving daughter.
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
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07-22-2008, 05:09 AM
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#72
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Senior Member
Join Date: Nov 2007
Location: New Jersey
Posts: 889
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Sheila, glad to see you back. Hope you figure out what was causing everything. Bummer about your computer. I keep my old slow turtle of a computer down my basement for those kind of emergencys. Nothing worse than being cut off from your lifeline. Hang in there girl! Jacquie
__________________
dx aug 03 invasive dcis 1 cm
er/pr/her2+
bcs 8/4/03
bcs 8/21/03 0/16 nodes
tx 4x ca 36 rad tam
postmenopausal 06 aromasin
sept 07 biopsy node in neck
muga/pet/cat/bone mets to lungs nodes and liver stage iv
tx hki-272
tx not working switched to taxol herceptin
Taxol not working switched to navelbine
navelbine is causing bad neuropathy
starting gemzar
gemzar quit on me now on Ixempra due to increasing number and size of liver mets
another progression starting tykerb/xeloda
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07-22-2008, 03:22 PM
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#73
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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Shiela and Jennifer, I've just read all 4 pages of this thread---it is so typical of the love and concern of everyone on this board. Thank you, Jennifer, for posting. It means so much to us to know about such things concerning someone we love, and then to get all the feedback and finally hear from Sheila that all is well---quite a roller-coaster! I will keep you in my prayers, too. On a light note, Sheila, you can now tell people what I tell them when they say "You should have your head examined"! My answer is "It has been examined and it's fine, thank you!" As for the dizziness, sometimes it is inner ear and can even be meds. I am so dizzy any more that I have to use a cane for balance. My heart meds seem to be my problem so I take them at night. It sounds like you have good doctors and they should be able to find an answer, but sometimes it is just one more "insult-to-injury" that we have to put up with. So glad you are better! Hugs, Tricia
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07-22-2008, 09:20 PM
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#74
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Sheila,
I've been reading your posts since your computer got back up and your head was given the all clear. Not only is it great to see you back, but I noticed your sense of humor roared back at full volume! A gift to all of us since we know laughter releases all sorts of good chemicals into the bloodstream (and is the best medicine).
I can relate to the vegas showgirl wigs - I had an "in" with the local cancer center where they did the look good feel better, and actually got about 4 different wigs at the same time! Two of them were my old conservative (but short) hair, one turned out to be a bit of a June Cleaver look (not my style) but my redhead was dynomite! Even my husband didn't recognize me.
Anyway, do take everyone's advice, put your feet up and relax a bit,
You know, we'd be lost without you!
__________________
Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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