Kadcyla - 2nd treatment need advice please

[PatE]

Hello
My last pet scan showed progression in my lymph nodes, 5 active areas so my Onc put me on Kadcyla. I had my 2nd treatment last Wednesday, Wow guess I had my head in the clouds but I did not expect to suffer like this.

After1st treatment from day 3-8 I could barely function, my body hurt pretty much all over but mostly in my lower back and hips. I can only stand for a few minutes at a time. Taking Aleve and Tylenol but really doesn't help much. Appetite is very low, I also suffer from GERD which makes eating even more difficult. Feeling very weak and depressed, cried most of the day yesterday and I am not typically someone to cry. It's just that after almost 7 years of fighting this monster I am just plum worn out.

Any suggestions as to how to handle these side effects would be most appreciated, I know there are ladies out there who have been on this drug for years so there's got to be a way through it.

My infusion was 30 minutes so I thought next time I would ask for slower drip, on 100 mg - any thoughts on asking for a lower dose.

Wishing good health for us all

Many blessings & thanks
Pat