HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 01-11-2006, 01:36 PM   #1
StephN
Senior Member
 
StephN's Avatar
 
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
Unhappy Lola M's passing

Lola's dear husband, Bob, shook himself through his grief to come to this site and find Lola's last post to use as a means of transmitting news of her passing. I am pasting in his message for those who missed it:


"Lola Ann passed away at 8:55pm on Monday evening, the 9th of Jan. She died peacefully at home with her husband, Bob and his son, Paul at her side. She has been fighting with MDS and GVHD for several months now after leaving Seattle. She spoke often of this board and others she was on to me. So I wanted to let all of you know. Her memorial Service will be held at 1pm on Saturday afternoon, on the 21st of Jan. The service will be at Shilo Hills Fellowship on 207 E. Lincoln Rd , Spokane, WA. 99208
Thank you all for your support of Lola.
Bob Mattfeld"

Lola was one of the very small number (2 or 3%) of cancer survivors who develop chemo-induced MDS - a kind of Leukemia. She was a great contributor to this site until that happened, then she spent her time trying to find others with her same rare condition and what to do about it.

She and her husband Bob ended up coming across the state to Seattle to consult at the Cancer Care Alliance which is part of the Fred Hutchinson Cancer Research group. There are very few specialists in the entire country who treat this problem, and she felt lucky to find one here who would take her case.

Her entire journal can be read at:
http://www.caringbridge.org/cb/input...e=lolamattfeld

She was doing pretty well after the transplant when she posted on getting Herceptin again. After that she fell and hurt her back, which was terribly painful. They finally were released from here and went back home for Lola's last weeks. She did have a nice Christian holiday surrounded by children, grandchildren and friends.

Her spirit was one of amazing strength and positive energy. She knew her chances were not great to come through this bone marrow transplant with complete success, but she put herself through it with great courage and grace. The strength it took to bear what she did especially after the complication of the back injury was monumental.

When I met Bob and Lola I could see how much love they had for each other. I could see that he would do anything in the world for her - and did. His heart is aching even though he has comfort in the Lord and knowing his beloved Lola is no longer in pain or physical distress.

She is resting in Peace.

Last edited by StephN; 01-12-2006 at 12:23 PM.. Reason: Add Bob's message
StephN is offline   Reply With Quote
Old 01-11-2006, 02:03 PM   #2
jag
Senior Member
 
Join Date: Sep 2005
Posts: 26
lolas passing

Very Sorry To Hear Of Lolas Passing...she Was A Strong Lady ...though I Never Met Her I Admired Her Courage...god Bless Her Family..
jag is offline   Reply With Quote
Old 01-11-2006, 02:09 PM   #3
Julie2
Senior Member
 
Join Date: Sep 2005
Posts: 556
I am sorry to hear Lola's passing . I happened to read many of her posts and she even replied to some of my posts. We surely miss her. My heart felt condolenses to her family and friends.

Julie
__________________
Diagnosed in Sept 2004 while pregnant with the second child. Stage 3b, tumor 4.5cm, 4 auxillary and supraclav node positive. Her2+++ FISH 9.4 and er-,pr-.
Had dose dense neoadjuvant AC,Taxol then mastectomy,radiation+xeloda+Herceptin.
Julie2 is offline   Reply With Quote
Old 01-11-2006, 02:20 PM   #4
lu ann
Senior Member
 
lu ann's Avatar
 
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
Lola is past the hardest part of dieing. Her family and friends have just begun. I know so many others who have died and wonder what they are doing in heaven. Every day we live, we get closer to that reality. I hope and pray that I have as much courage as those who have gone before me. We will truly miss her strength and grace. Lu Ann.

Last edited by lu ann; 01-11-2006 at 04:59 PM.. Reason: spelling error
lu ann is offline   Reply With Quote
Old 01-11-2006, 03:09 PM   #5
Barbara H.
Senior Member
 
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
What sad news!!!! I remember Lola's posts on this site well. She was such a fighter and support even during her difficult times. My condolences go out to her friends and family.
Barbara H.
Barbara H. is offline   Reply With Quote
Old 01-11-2006, 03:25 PM   #6
Lolly
Senior Member
 
Lolly's Avatar
 
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
I too remember Lola's wonderful spirit and cheerful posts, and especially the great picture of her and Bob in their bathing togs. I'll miss her and really appreciate Bob letting us know the sad news of her passing. My thoughts and prayers go out to her family.

<3 Lolly
Lolly is offline   Reply With Quote
Old 01-11-2006, 04:42 PM   #7
Nicola
Senior Member
 
Join Date: Dec 2005
Location: King & Queen County Virginia
Posts: 59
Lola M's passing

Although I unfortunately did not know Lola or have the pleasure of reading her posts as I am fairly new to the site, my heart goes out to Bob and all of their family and friends. I know that God is holding Lola in His loving arms and that He will comfort you all and give you strength during this very difficult time. My prayers are with you.

Hugs & God Bless,
Nicola
Nicola is offline   Reply With Quote
Old 01-11-2006, 05:56 PM   #8
al from Canada
Senior Member
 
al from Canada's Avatar
 
Join Date: Jul 2005
Location: Ontario, Canada
Posts: 722
that's the problem with this site....

you loose friends occassionally. Lola and I e-mailed back and forth numerous times, especially after her recent diagnosis, and I am very saddened by her loss. My heart goes out to her family, and especially Bob, who I have never met but can't even come close to imagining how he feels today!

Maybe that's why I felt an urgency to query people?? Lately when I have thought of Lola, I always concluded that she was researching in her new support group. We all knew she was sick, as so many of us are but... this is like a bolt of lightning!

All my best to Bob and her family
Al
__________________
Primary care-giver to and advocate for Linda, who passed away April 27, 2006.
al from Canada is offline   Reply With Quote
Old 01-11-2006, 06:49 PM   #9
Julie
Member
 
Join Date: Sep 2005
Posts: 22
I have followed Bob and Lola's journey for months now, through their sometimes painful, always eloquent journal entries. Truly devoted to each other, both fought hard for a cure, and both showed tremendous grace and strength when they learned the outcome was not what they had hoped for.

I was shocked when I checked the journal yesterday and saw that Lola had passed. I got tears in my eyes and thought, "It's too soon".

But it's always too soon.

Prayers for peace, strength and acceptance to Bob and his family, and for a cure in 2006.
Julie is offline   Reply With Quote
Old 01-11-2006, 07:06 PM   #10
Sandy H
Senior Member
 
Sandy H's Avatar
 
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
I am sadden to hear of Lola's passing. I knew she wasn't doing well but didn't realize she was this bad. When we loose one of our sisters on this board it is like one of our family. I never met her only on this board. She and I had e-mailed off the board sharing our strong faith although not for a while as she was trying to stay ahead of this disease. Finally she is free now, to enjoy eternal rest with no more pain and struggles of this world. Prayers go to Bob and the family for strength to endure the next several days of grief and yet happiness knowing she is without pain and in a much better place. God bless. Sandy
Sandy H is offline   Reply With Quote
Old 01-11-2006, 07:12 PM   #11
TriciaK
Senior Member
 
TriciaK's Avatar
 
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
I, too, have been touched by Lola's passing, and feel a special admiration and appreciation for Bob in letting us all know so we could grieve, too, and send our love and condolenses to him and the family. We all know none of us will get out of this world alive, but Lola has enriched our lives through her valient fight and in allowing us all to share it with her through her entries. I add my prayers to all these others. Hugs, Tricia
TriciaK is offline   Reply With Quote
Old 01-11-2006, 07:13 PM   #12
lu ann
Senior Member
 
lu ann's Avatar
 
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
A Real Story of Love

I just finished reading the entire journal and I can't see what I am writing because I am crying so hard. You just have to read it for yourself. Lu Ann.
lu ann is offline   Reply With Quote
Old 01-11-2006, 07:22 PM   #13
Celina
Member
 
Join Date: Sep 2005
Location: Quebec, Canada
Posts: 20
Firstly, Steph..thank you for letting us know about her passing.

Through her own struggles, she was such a great support to me and my sister when we needed it most. I knew that she was quite ill, but at last I read she had completed her transplant and I suppose I thought all was successful. This is very sad news.
Bob, my thoughts are with you and your family. God Bless you all.
Celina is offline   Reply With Quote
Old 01-11-2006, 08:08 PM   #14
Yorkiegirl
Senior Member
 
Yorkiegirl's Avatar
 
Join Date: Oct 2005
Posts: 823
Since I am fairly new to this group , I didn't know Lola.

I am so very, very sorry to hear of her passing.

I have tried to read her journal, and find I have to stop and go back again.

What a wonderful woman she was.

Many prayers for her family during this difficult time.


Vicki
Yorkiegirl is offline   Reply With Quote
Old 01-11-2006, 09:45 PM   #15
Lisa
Senior Member
 
Lisa's Avatar
 
Join Date: Sep 2005
Posts: 285
It's so hard to lose a family member. We spend time praying and trying to help one another. Yet, we only have a skeleton idea of who each other is. What did their homes look like, their families, how about their pets, their color of car, etc? And yet, we all can empathize with the good and bad we go through since we're all in this very shaky boat together.


My impression of Lola was a very strong woman who was facing a huge double-whammy. It's a shock that she is "suddenly" on the other side, watchin all of us.

Steph, if you can, please send our sympathies to her family.

Love and light,

Lisa
Lisa is offline   Reply With Quote
Old 01-12-2006, 05:33 AM   #16
IRENE FROM TAMPA
Senior Member
 
IRENE FROM TAMPA's Avatar
 
Join Date: Oct 2005
Location: TAMPA, FL
Posts: 568
To Lola's Bob and family

I was so sorry to hear of Lola's passing.

I always looked forward to reading Lola's post whenever I saw one. She had such a great sense of humor which always started my day off with laughter.

She will surely be missed by all.
__________________
Irene from Tampa
1996 - INFILT DUCTAL CAR.W/ LYMPH NODE INVOLVEMENT. ADRIA/CYTOXIN/5FU
1999 - RECURR. TO AUXILA AND 2 TUMORS IN LIVER
TREAT: STEM CELL REPLACEMENT/HERCEPTIN.
2002 - RECUR TO LIVER
TREAT: NAVELBINE, THEN GEMZAR, THEN XELODA.
2004 - TUMORS STILL IN LIVER
TREAT: RFA TO LIVER
STABLE UNTIL
2004 - TUMOR PROGRESSION IN LIVER.
TREAT: RESECT HALF OF LIVER.
2005 - RECURR TO LYMPH NODE OUTSIDE OF LIVER.
TREAT: TAXOL/CARPO/HERCEPTIN. FAILED ON
THIS TRIO. STARTED ON ABRAXANE.
2006 - PROGRESS WITH 2ND TUMOR GROWTH.
TREAT: AUG. BEGAN ON TYKERB/XELODA
TRIAL. CONSIDERED STABLE TO DATE.
2007 - TAKEN OFF OF TYKERB/XELODA TRIAL DUE TO
PROGRESS STARTING TYKERB/AVASTIN.
NOV 2007 - SCANS SHOW PROGRESS TUMOR GROWTH
IN ABDOM. AND TWO NEW TUMORS IN NECK AREA.
BEGAN HERCEPTIN/AVASTIN/TAXOTERE
Feb 08 - Ixempra/Xeloda
June 08 - Her/DM1 trial

"I WANT TO BE AN OUTRAGEOUS OLD WOMAN WHO NEVER GETS CALLED AN OLD LADY. I WANT TO GET SHARP EDGED & EARTH COLORED, TILL I FADE AWAY FROM PURE JOY."
IRENE FROM TAMPA is offline   Reply With Quote
Old 01-12-2006, 06:01 AM   #17
Sheila
Senior Member
 
Sheila's Avatar
 
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
To Bob and Lola's family

I too will miss Lola's spunky spirit, you could hear her laughter in her posts...she brightened many days for me and others...and moved us all with her strong faith. She is now watching down on all of us.
With Sympathy
__________________
"Be kinder than necessary, for everyone you meet
is fighting some kind of battle."



Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
Sheila is offline   Reply With Quote
Old 01-12-2006, 06:32 AM   #18
jeff
Guest
 
Posts: n/a
What a huge loss, of someone whose truly amazing character came through so clear through the mists of the internet. I learned so much from Lola's example and am so sorry to hear of her death...

Jeff
  Reply With Quote
Old 01-12-2006, 10:50 AM   #19
Cindi
Senior Member
 
Join Date: Oct 2005
Posts: 50
I will miss Lola's posts. She was a very courageous lady. I will pray for her family during this time.

Thank you Steph, for the fine note you wrote about Lola. A true tribute.

Cindi.
Cindi is offline   Reply With Quote
Old 01-12-2006, 10:59 AM   #20
AlaskaAngel
Senior Member
 
AlaskaAngel's Avatar
 
Join Date: Sep 2005
Location: Alaska
Posts: 2,018
Lola

Lola made so many friends. I can't know all that the news must mean to you, Steph, all I know is that you were there for her. That is such a gift to share. Thank you for being there like a guardian angel and helping Lola and her husband when they were strangers to Seattle and to much of the medical maze.

As ever,

AlaskaAngel
AlaskaAngel is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 07:16 AM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter