 |
12-26-2006, 07:21 PM
|
#1
|
|
Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
|
Leaving for Florida!
Just letting everyone know that I will not be posting for a week or so as my husband and I along with our pug, Yoda will be leaving for Destin, Florida on Thursday for two months. We are so excited to be able to do this. First time to be snowbirds!! I have my laptop so will be checking in as we are driving its 1700 miles and plan to take several days to get there. I will be seeing an oncologist in Fort Walton Beach while I am there. Wishing you all a Happy New Year. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
|
|
|
|
12-26-2006, 07:25 PM
|
#2
|
|
Senior Member
Join Date: Sep 2005
Location: Grand Rapids, MI
Posts: 1,516
|
Sandy...
have a WONDERFUL time this winter. Take care and God bless.
Rhonda
__________________
Rhonda
Dx 2/1/05, Stage 1, 0 nodes, Grade 3, ER/PR-, HER2+ (3.16 Fish)
2/7/05, Partial Mastectomy
5/18/05 Finished 6 rounds of dose dense TEC (Taxotere, Epirubicin and Cytoxan)
8/1/05 Finished 33 rads
8/18/05 Started Herceptin, every 3 weeks for a year (last one 8/10/06)
2/1/13...8 year Cancerversary and I am "perfect" (at least where cancer is concerned;)
" And in the end, it's not the years in your life that count. It's the life in your years."- Abraham Lincoln
|
|
|
|
|
12-26-2006, 08:50 PM
|
#3
|
|
Senior Member
Join Date: Sep 2005
Location: Newton, MA
Posts: 951
|
Have fun!!
Hi Sandy,
Your plan sounds wonderful!!!! It will be great to be in the warm weather. We'll enjoy hearing from you when you are settled again.
Best wishes,
Barbara H.
|
|
|
|
|
12-26-2006, 09:20 PM
|
#4
|
|
Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
|
Sandy, Hope you have a wonderful time!
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
|
|
|
|
|
12-27-2006, 03:45 PM
|
#5
|
|
Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
|
Fun in the Sun for Sandy the Snowbird!
OH! Sandy!
I am so happy for you that you, hubby and pup are able to go for a nice long getaway like that. What a blessing Tykerb has been for you that you can be freed up from the other treatments and be a little footloose.
Life is good these days - after all the years of tough fight you have had with those devilish skin mets.
Let us know what you are doing to amuse yourself and what you see along the way, OK?
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
|
|
|
|
|
12-27-2006, 04:12 PM
|
#6
|
|
Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
|
Thanks Steph, I will keep everyone posted. We decided to leave tomorrow instead of yesterday, I was just too tired to pack. Today, was a much better day and I think I am ready. Yes, Tykerb has given me my life back for a while. I just want to get on the road and be there!! hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
|
|
|
|
|
12-27-2006, 05:13 PM
|
#7
|
|
Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
|
I understand that "Snowbirds have more fun"! Destin is beautiful! Have an awesome time in the sunshine state! You've earned it!! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
|
|
|
|
|
12-27-2006, 06:12 PM
|
#8
|
|
Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
|
Dear Sandy, i know the Destin area well and I know you will have a lovely,serene time there.
FYI I evacuated from Biloxi to the Panama city beach area for two months after hurricane Katrina. I had to stay there as I could not recieve my infusions back home. In any event I saw a terrific Onc. in Panama City (not far from Destin) who took me in sight unseen and continued my treatments without skipping a beat. Just in case you need someone else his name is Dr John Nanfro at Northwest Florida Hematology Oncology,P.A. If you need more info please send me a message!
Have a great time!
Marcia
PS We have had some rather cold weather recently so make sure to pack some warm things!
|
|
|
|
|
12-27-2006, 07:13 PM
|
#9
|
|
Senior Member
Join Date: Feb 2005
Location: Norridgewock, Maine
Posts: 778
|
Thanks Marcia, I had to go to a facility that had the Tykerb/Xeloda trial and was able to get into Fort Walton area. I am looking forward to a nice time. hugs, Sandy
__________________
Dx. 03/01, Rt. IBC
AC/Taxatere
Rt. MRM-with graft Lt. simple
5 rads-skin mets
Herceptin, taxol, carboplatin (taxol seem to be the magic drug)
Navelbine & xeloda (did not work)
topical miltex for skin mets
Tykerb/xeloda
thoracentesis x 2 left lung fluid shows cancer cells
Port removal (4 years) with power port replacement
Doxil
Updated 05-07 Scans show no bone or organ involvement we shall see!
I shall not pass this way again. Any good I can do or any kindness that I can show let me not defer or neglect it for I shall not pass this way again.
|
|
|
|
|
12-28-2006, 10:20 PM
|
#10
|
|
Senior Member
Join Date: Sep 2006
Location: Houston, Texas
Posts: 624
|
Have a great trip!!
|
|
|
|
|
12-28-2006, 11:07 PM
|
#11
|
|
Senior Member
Join Date: Nov 2004
Location: Streetsboro, Ohio
Posts: 365
|
Have a wonderfull time, Sandy, you deserve it. Love and Happy New Year. Lu Ann
|
|
|
|
|
01-04-2007, 01:28 PM
|
#12
|
|
Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
|
Sandy have a terrific time in Florida. I just returned from an 8 night cruise and 3 nights in Boca Raton. It was great to be away from the docs and cancer stuff for a while. Safe travel and hope the weather is as good to you as it was to me.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
|
|
|
|
|
01-04-2007, 07:09 PM
|
#13
|
|
Senior Member
Join Date: Sep 2005
Location: South Dakota.
Posts: 621
|
At-a-girl, Sandy! You three have a wonderful, warm, relaxing, time! Someday I would love to winter in Florida, too. (South Dakota is not exactly balmy during the winter months.) Keep us posted.....
__________________
Blessings and Peace,
Barbara
DX Oct 02 @ age 52 Stage 2B Grade 3 Mastectomy
"at least" 4.5 cm IDC 1+node ER+61% /PR-
Assiciated Intraductual component with Comedo Necrosis
Her2+ FISH8.6 IHC 2+
5 1/2 CEF Arimidex
Celebrex 400mg daily for 13 months
Prophylactic mastectomy
Estradiol #: 13
PTEN positive, "late" Herceptin (26 months after chemo)
Oct 05: Actonel for osteopenia from Arimidex.
May 08: Replaced Actonel with Zometa . Taking every 6
months.
Accepting the gift of life, I give thanks for it and live it in fullness.
|
|
|
|
|
01-04-2007, 11:04 PM
|
#14
|
|
Senior Member
Join Date: Sep 2005
Posts: 26
|
Have A Great Time.....lots Of Fun...
|
|
|
|
Posting Rules
|
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
HTML code is Off
|
|
|
All times are GMT -7. The time now is 07:46 PM.
|
Linear Mode
