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Old 03-04-2016, 02:06 PM   #1
v-ness
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Location: western ma
Posts: 280
Re: Majority of breast cancer patients develop symptoms of PTSD

what do you mean by 'scaring women into self exams'? i am confused. cancer is scary, no matter how you try to reason with women to perform self exams at any age, it will come off as 'scaring' because of that. we *should* be doing self exams! we should be taking that responsibility and being pro-active instead of complaining about the medical community. i did a speech last year and 'scared' some young women present by telling them they should start self exams now, no time is too young. breast cancer diagnoses are happening younger and younger all the time. i have a friend whose daughter was diagnosed in her 20's. the majority of my friends in my online support groups were under 40. my niece died of it at age 39. if people need to be scared straight, in my opinion, they should be scared into taking care of themselves too. it may not stop them from getting cancer, but it can sure make a difference in when it's discovered, especially when you have tools of early diagnosis. my boyfriend skipped his 10 yr colonoscopy. at 12 yrs, he was diagnosed stage 4 colon cancer. i wish i'd scared him into getting his colonoscopy 2 yrs earlier. it could have made all the difference in the world.

i'm not sure i have PTSD from having breast cancer myself, but i certainly have it from watching my husband and mom die of cancer and fretting over my boyfriend's cancer and my newly diagnosed friend. i found it a lot easier to have it myself than to watch those around me suffer from it and worry who's next. i hear people say that women are 'made' to get mammograms they don't really need and i just want to scream at the ignorance. mammograms and self exams are exactly how most of my friends (including myself) discovered our breast cancers.
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8/09 - IDC 1.8 cm triple positive, lumpectomy left breast
10/09 began chemo (taxotere & carboplatin) and weekly herceptin.
1/21/10 finished chemo, continued on herceptin every 3 weeks until 10/2010.
2/10 began 7 wks of radiation
6/10 mom dies of primary peritoneal ovarian cancer
8/10 got my last remaining ovary out
10/10 mammogram all clear
3/11 MRI shows 5 'spots' in right breast, largest 1 cm unidentifiable on US
needle biopsy proved the largest to be old inflamed cyst -phew!
7/10 switched to Arimidex
8/9 switched to Femara - allergic to arimidex
Femara made me lose hair quickly so switched to Aromasin
Aromasin made my hair fall out too and the bone pain was too much.
back on Tamoxifen 1/2013.
blood clot from trains and planes 5/2014 so on coumadin per onco for as long as i am on tamoxifen
tamoxifen was supposed to be up with my 5 yrs in may but my boyfriend was diagnosed with stage 4 colon cancer so i am staying on tamoxifen indefinitely because i want some ammo against BC, given the stress. lost my husband in only 10 wks in 2007 to stage 4 esophageal cancer.
cancer's screwing with another man i love
2/2016 - 6yrs in remission, off tamoxifen and off coumadin - yay!
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Old 03-04-2016, 02:28 PM   #2
Hopeful
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Re: Majority of breast cancer patients develop symptoms of PTSD

I understand that your experience and mine are different, as are the way we view this issue. I can respect your opinion, and ask you to do the same for mine.

Hopeful
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Old 03-04-2016, 04:39 PM   #3
StephN
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Location: Misty woods of WA State
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Re: Majority of breast cancer patients develop symptoms of PTSD

My stage IV diagnosis and prediction of less than a year to live is what haunts me. I am still here and NED, but sometimes still have a hard time believing that I can plan a trip in the near future or look forward to an event. Those are the easy things.

Valerie, glad you get the chance to speak to a group and tell things from your viewpoint. All the best for your boyfriend to overcome his fight!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.

MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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