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01-17-2013, 01:45 PM
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#21
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Senior Member
Join Date: Mar 2010
Location: Thornhill Ontario
Canada
Posts: 266
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Re: Hospital AGAIN! But you'll never guess why!
Hi Denise sorry to hear about these new problems. The ladies are correct that witch will get hers at some point. Hope your pain is kept under control. You really have had your share of crap, time for this to let up. When are they doing surgery.
__________________
August 2008
Lumpectomy left breast
1 tumour 0.9 cm
Her2 negative
lymph nodes negative
venous/lymphatic invasion absent
ER+PR-
Stage I Grade 2
Radiation and Femara
November 2008
Lumpectomy right breast
2 tumours .03 cm and .05 cm and extensive DCIS
.05 tumour Her2+
lymph node negative
venous/lymphatic invasion "indeterminate"
ER+PR low postive
Stage 1 Grade 2
January 2009
bilateral mastectomy
chemotherapy taxotere
Herceptin one year
Femara
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01-17-2013, 03:29 PM
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#22
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Senior Member
Join Date: Apr 2012
Posts: 183
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Re: Hospital AGAIN! But you'll never guess why!
Hello Denise,
I have friends who are teachers and my understanding, at least in Indiana, is that teachers have a union. Perhaps your union rep should have a conversation with your HR drone. It does sound like she is violating your rights under the ADA provision. I would hope that your Principal would go to bat for you as well especially if you have worked in that district for awhile. You strike me as a teacher who would be beloved by her students and parents. Wonder what the parents would say/do if they found out you were being treated this way? Would be interesting if this somehow leaked out. Take good care of yourself during this time. And let's hope your state has a teacher's union.
Take care,
Jackie
__________________
10/11 IBC Stage IV; 1 liver met 4.6 cm.
10/11-2/12 TCH for 6 rounds
3/12 Right MRM
5/12-7/12 33 Radiation treatments
8/1/12 Started Perjeta along with the Herceptin
10/12 Scans said NED for first time
5/15 UWSeattle Vaccine Trial 3 months
12/16 Scans still show NED. Herceptin and Perjeta continue indef.
8/17 Taken off Perjeta;staying on Herceptin. Still NEAD.
3/18 Still NEAD
8/19 Now on Subcutaneous Herceptin
10/21 Remain on Subcutaneous Herceptin (Hylecta)
11/21 CT showed possible lung mets. Was told to wait and see until scan
1/22 CT shows continued growth
03/22 Lung Biopsy said sample was too small but nodules keep growing and IR is convinced that it is indeed cancer
04/22 Oncologist referred for consult for a transbronchial biopsy. This does not sound pleasant
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01-17-2013, 05:15 PM
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#23
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Senior Member
Join Date: May 2006
Posts: 3,142
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Re: Hospital AGAIN! But you'll never guess why!
So sorry Denise. I hope you will be on the mend soon.
Actually it sounds like something I would do. I am still on the mend from compression fractures in my back in July 2012. Be sure to get some good PT after you recover from surgery. Let's hope the rest of the year will be problem free as far as our health goes.
Take good care of yourself.
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01-17-2013, 06:24 PM
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#24
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Senior Member
Join Date: Jan 2007
Location: UK
Posts: 617
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Re: Hospital AGAIN! But you'll never guess why!
Oh Denise so sorry to hear that sounds excrutiating hang on in there. I know it is hard to think straight when you are in pain.
KK1 sounds like she knows a trick or two regarding how to bust Satan's spawn! So I hope that she is right and that you can take few more sick days without having to leave the school.
Sending love from accross the pond
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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01-17-2013, 06:33 PM
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#25
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Senior Member
Join Date: Aug 2010
Location: New York, New York
Posts: 1,580
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Re: Hospital AGAIN! But you'll never guess why!
Denise,
Oh, I just can't believe it!
Well, I am burning mad and I'd look for a Title 7/9 attorney so that your (female???) superior stays in line. Go with kk1. I love lawyers and their ability to shape people up.
Feel good, love
Karen
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01-17-2013, 09:12 PM
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#26
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Senior Member
Join Date: Sep 2005
Location: Mountains of Virginia
Posts: 2,267
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Re: Hospital AGAIN! But you'll never guess why!
Denise,
http://patientadvocate.org/
Try this link to Patient Advocate.org. They may have info or be able to offer assistance in your case. I have not worked with them but they are one of the resources Joe wanted included on our Financial and Legal Resource page.
Good luck and it is TOTALLY unfair you have yet another issue to deal with!
__________________
Rhonda (Sassy)
dx age 45
DX 2/15/05 Stage IIb (at surgery)restaged IIIa
Left mast .9cm tumor 5 of 14 nodes
Triple Positive
4 DD A/C
12 Taxol/Herceptin
33Rads
Strange infect mast site one year aft surg, hosp 1 wk
Herceptin for total of 18 months
Lupron Monthly 4 yrs
Neurontin for aches, pains and hot flashes(It works!)
Ovaries removed 11/09 stop Lupron and Neurontin
Arimidex 6 yrs (tried Femara, no SE improvement)
Tried Exemestane-hips got so bad could hardly walk
Back to Arimidex for year seven
Zometa 2X Annual for 7years, Lasix
Stop Arimidex 5/13
Stop Zometa 7/13-Bi-lateral Stress Fractures in Femurs from Zometa
5/14 Start Tamoxifen
3/15 Stem cell transplant to stimulate femur bone growth/healing
5/15 Complete fracture of right femur/Titanium rods both femurs
9/16 Start Evista stopTamoxifen
3/17 Stop Evista--unwelcome side effects!
NED and no meds.......
14 YEARS NED!
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01-17-2013, 09:19 PM
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#27
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Senior Member
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
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Re: Hospital AGAIN! But you'll never guess why!
Denise,
This is another group dedicated to helping cancer patients with a myriad of legal issues. Ive had contact with them and they are excellent! Pro bono of course 
Im so sorry youre in so much pain and hope that at the very least it will be gone..soon!
Marcia
https://www.disabilityrightslegalcen...alresource.cfm |
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01-18-2013, 09:34 AM
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#28
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Hospital AGAIN! But you'll never guess why!
I cannot believe they would rather force you into the long term disability situation rather than a few extra days leave for medical care. How does that benefit anyone at all, including them? I'm with KDR in that I would get an attorney to write up a letter. Those well placed letters do wonders. You didn't mention if they have been able to get your pain under control. Is it feeling any better? Sending lots of prayers and positive energy and white light to getting that pain under control.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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01-18-2013, 01:48 PM
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#29
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Senior Member
Join Date: May 2006
Location: Haarlem, the Netherlands
Posts: 835
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Re: Hospital AGAIN! But you'll never guess why!
Hi Denise,
I know a recently retired lawyer who had breastcancer herself. Could I forward your story to her and ask her for her advice?
In a hurry, but no less concerned about your present predicament. Hope the pain will be gone soon!
Love
Jacqueline
__________________
Diagnosed age 44, January 2004, 0.7 cm IDC & DCIS. Stage 1, grade 3, ER/PR pos. HER2 pos. clear margins, no nodes. SNB. 35 rads. On Zoladex and Armidex since Dec. 2004. Stopped Zoladex/Arimidex sept 2009 Still taking mistletoe shots (CAM therapy) Doing fine.
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01-18-2013, 02:44 PM
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#30
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Senior Member
Join Date: Jul 2011
Location: Melbourne, Australia
Posts: 432
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Re: Hospital AGAIN! But you'll never guess why!
Oh no! Thinking of you.xxxx
__________________
Amanda xx
40 year old Mum to three gorgeous kids - son 5 and daughters 8 and 11
Wife to my wonderfully supportive husband of 17 years!
22 February 2011 - Diagnosed Early Breast Cancer IDBC Stage2b (ER/PR -ve, Her2+ve +++) - 38 years old
(L) skin sparing mastectomy with tissue expander, axilla clearance (2/14 affected) clear margins.
Fec*3, Taxotere and herceptin*2 - stopped due to secondary diagnosis
June 24 2011 Stage IV - Skin met, axilla node, multiple lung lesions
Bolero3 trial - Navelbine, Hereptin weekly, daily Everolimus/Placebo
February 2012 - July 2012 Tykerb and Xeloda - skin mets resolved, Lungs initially dramatically reduced but growing again
August 2012 (turn 40!) tykerb and herceptin (denied compassionate use of TDM1) while holidaying in Italy!
September 2012 - January 2013 TDM1 as part of the Th3resa trial - lymph nodes resolved, lungs slowly progressing.
January 2013 - herceptin, carboplatin and Perjeta (compassionate access)
April 2013 - Some progression in lungs and lymph nodes - Abraxane, Herceptin and Perjeta
July 2013 - mixed response - dramatic reduction of most lung disease, progression of smaller lung nodules and cervical and hilar nodes - ? Add avastin.
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01-19-2013, 01:32 AM
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#31
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Hospital AGAIN! But you'll never guess why!
Jimney Crickets! Denise I'm so sorry you are in so much pain. I pray the surgery will go well and you will be soon rid of the aweful pain.
I don't know if this will help you so here it goes anyway. I once worked in a class room as a parapro for three months for a teacher who broke her arm and she couldn't do any of the phisical part of the job. She had used up her days and couldn't afford not to work. So with a dr. note saying she could go back to work if she had help the district had to give her a para. for 3 months. she literally and figuretively sat in a big chair and never got up. I did everything. I am not qualified in any way shape or form to teach a class. I do not have a degree in teaching. There I was teaching a class. I sure hope and pray God opens another window for you soon. You know you and your family are always in my prayers. Gods blessings to you my friend. Nancy
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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01-19-2013, 04:58 PM
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#32
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Hospital AGAIN! But you'll never guess why!
Okay,
So first, thanks for all your support! You guys are my rocks! And thanks for agreeing with me that I'm being unfairly and quite frankly hatefully, by my HR dept. That helps make it hurt a little less,
And thanks to all of you who have sent links to legal resources . I know it will likely cost me a fortune to fight all of this...just what my family doesn't need just now, with the 90 unpaid days hanging over me like a blade. But if I don't fight it, my family won't be taken care of when someday - a long, long, time from now - I'm not around to do it. I just hope I can find the BEST, most informed, and RUTHLESS cancer advocate/employment attorney in the Delaware Valley. I don't just want to win this for me and my family, I want to make a big enough splash that no one else around here ever has to spend a day crying over this crap...when they need all their energy to beat cancer...and in my case the ailment du jour! I wasted hours stressing about this yesterday. Literally, hours. When I should have been focused on the first surgery and recovering from that so I can have the next one in a week or so.
The HR director will not respond to my emails except to give me her cell number and ask me to "call her". We are NOT friends. The only time she has ever insisted we talk, rather than communicate in writing is when she's up to something and doesn't want a paper trail. Again, I say...what a %&*&$!!
Sorry, friends I'm rambling again.
Keep praying for healing and calm, please. (and a resolution that allows my children to eat more elaborate meals that macaroni and hotdogs till they reach adulthood and can pay their own way!)
Love to all of you!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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01-21-2013, 05:08 AM
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#33
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Senior Member
Join Date: Aug 2011
Location: Philly Suburbs
Posts: 1,709
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Re: Hospital AGAIN! But you'll never guess why!
Okay,
So a quick update. Leaving this hospital sometime today. Hoping to get in to see a back specialist at Penn sometime today or tomorrow.
If it could be someone who's professional goal is to get into the Guinness Book for fastest, most pain-free repair of lumbar disks...well...so much the better for me!!
Please, keep praying friends...I'm so scared that when I leave the hospital, the pain will rush back in like a tsunami. I'm not sure how much of that "quality" of pain a person can handle without going round the bend.
Love and hugs to all!
Denise
__________________
1/11-needle biopsy
2/11-Lumpectomy/axillary node dissection - Stage 3c, ER/PR-14/17 nodes
3/11 - Post-op staph infection,cellulitis, lymphedema,seroma,ARRRGH!
4/12/11-A/C x 4, then T/H x 4, H only,Q3 weeks
8/26/11 finished Taxol!!!
10/7/11 mastectomy/DIEP recon
11/11 radiation x28
1/12/12 1st CANCER-VERSARY!
1/12 Low EF/Herceptin "Holiday" :(
2/12 EF up - Back on Herceptin, heart meds
4/2/1212 surgery to repair separated incision from DIEP recon
6/8/12 Return to work :)
6/17/12 Fall, shatter wrist,surgery to repair/insert plate :(
7/10/12 last Herceptin
7/23/12 Brain Mets %$&#! 3cm and 1cm
8/10/12 Gamma knife surgery, LOTS of steroids;start H/Tykerb
8/23/12 Back to work
12/20/12 Injure back-3 weeks in wheel chair
1/12/13 2nd CANCER-VERSARY!
1/14/13 herniate disk in back - surgery to repair
1/27/13 Radiation necrosis - edema in brain - back on steroids - but not back to work - off balance, poor cordination in right arm
5/3/13 Start Avastin to shrink necrosis
5/10/13 begin weaning steroids
6/18/13 Brain MRI - Avastin seems to be working!
6/20/13 quarterly CT - chest, abdomen, pelvis - All Clear!
7/5/13 finally off steroids!!
7/7/13 joined the ranks of the CHEMO NINJAS I am now Tekuto Ki Ariku cancer assassin!
7/13/13 Symptoms return - back on steroids
7/26/13 Back on Avastin - try again!
8/26/13 Not ready to return to classroom yet :( But I CAN walk without holding onto things! :)
9/9/13 Brain MRI - fingers crossed
“ Life is a grindstone, and whether it grinds you down or polishes you up is for you, and you alone, to decide. ” – Cavett Robert
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01-21-2013, 10:46 AM
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#34
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Senior Member
Join Date: Dec 2011
Posts: 585
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Re: Hospital AGAIN! But you'll never guess why!
Lots of prayers headed your way. Yay for leaving the hospital. Keep up on the pain medication. It is so much easier to keep the pain under control than get it back under control. Calm, serene and peaceful thoughts headed your way.
__________________
Diagnosed in October 2011 Stage IV with metastasis to liver.
January 2012 after double mastectomy, started taxotere, carboplatin and herceptin.
Clear.
December 2012 was diagnosed with five brain mets, and had whole brain radiation.
Around July 2014 two mets in brain, one a residual spot and one new one growing in size. Received Cyberknife on both areas
Clear/NED
April 2015 remain NED
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01-21-2013, 11:31 AM
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#35
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Senior Member
Join Date: Aug 2011
Posts: 271
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Re: Hospital AGAIN! But you'll never guess why!
Denise,
I am thinking about you and praying for a great result for your back. I understand the crazy pain of a disk crashing down on a nerve. Worst pain I ever experienced in my life...and us BC survivors have been through our share of pain. Keep the faith...your such a strong lady and have your beautiful family to pull you through this. As you are recovering from your surgery...go get em! Pursue all avenues for a resolution to this human resource nightmare you are experiencing. Love and hugs to you and your family as you once again face this challenge.
__________________
DX November 2010
Brain MRI, CT of lung, liver, bone, all clear
Double Mastectomy w/expanders December 1, 2010
ER- PR- Her2+++, grade 3, 12 positive nodes out of 15
Stage IIIc
Started TCH/Chemo December 31, 2010
6 rounds TCH
Herceptin every 3 weeks for a year
33 rounds of TomoTube radiation, to chest wall, neck, skin and lymph area
September, 2011, MRI to lower spine, hips, DX bulging disk, L4 & L5, pain not from cancer
Expanders removed, implants in Dec 1, 2011
Finished Herceptin, December 21, 2011
August 2012, CT of chest and abdomen, all ok
Enrolled in MC1136 Phase I Peptide Vaccine Trial at Mayo Clinic, Rochester, Minnesota
March 2013, First Vaccine
April 2013, 2nd Vaccine
May 2013, 3rd Vaccine
June 2013, 4th Vaccine
July 2013, 5th Vaccine
August 2013, 6th Vaccine Done!
September 2013, Mayo visit, Echo results 68, vaccine did not effect my heart! Blood work normal.
January 31, 2013, Mayo visit, Echo normal
February 23, 2014, Numb lips on right side, Brain MRI, normal!
June, 2015, Finished the trial at Mayo Clinic. Feels good!
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01-21-2013, 12:45 PM
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#36
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Senior Member
Join Date: Nov 2004
Location: Misty woods of WA State
Posts: 4,128
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Re: Hospital AGAIN! But you'll never guess why!
Oh - so glad you are able to move to the next step of getting on with a neurosurgeon/spine specialist. I was SO GLAD to improve enough to leave the hospital, so know your relief.
You have a diagnosis, so there should be no time wasted getting you on a top surgeon's schedule. For me, the surgery was the LEAST painful, or even bothersome compared to the initial blast of crippling pain. My wish for you is that your surgery will be a breeze, and you will have a smooth recovery.
Wanted to let you know that my surgeon was being very careful with me to avoid reherniating, which the nurses said happens often. With that warning, and my surgeon saying that I could not start physical therapy until after my SIX WEEK checkup, I took care to follow the post-op instructions.
Love and soft hugs!
__________________
"When I hear music, I fear no danger. I am invulnerable. I see no foe. I am related to the earliest times, and to the latest." H.D. Thoreau
Live in the moment.
MY STORY SO FAR ~~~~
Found suspicious lump 9/2000
Lumpectomy, then node dissection and port placement
Stage IIB, 8 pos nodes of 18, Grade 3, ER & PR -
Adriamycin 12 weekly, taxotere 4 rounds
36 rads - very little burning
3 mos after rads liver full of tumors, Stage IV Jan 2002, one spot on sternum
Weekly Taxol, Navelbine, Herceptin for 27 rounds to NED!
2003 & 2004 no active disease - 3 weekly Herceptin + Zometa
Jan 2005 two mets to brain - Gamma Knife on Jan 18
All clear until treated cerebellum spot showing activity on Jan 2006 brain MRI & brain PET
Brain surgery on Feb 9, 2006 - no cancer, 100% radiation necrosis - tumor was still dying
Continue as NED while on Herceptin & quarterly Zometa
Fall-2006 - off Zometa - watching one small brain spot (scar?)
2007 - spot/scar in brain stable - finished anticoagulation therapy for clot along my port-a-catheter - 3 angioplasties to unblock vena cava
2008 - Brain and body still NED! Port removed and scans in Dec.
Dec 2008 - stop Herceptin - Vaccine Trial at U of W begun in Oct. of 2011
STILL NED everywhere in Feb 2014 - on wing & prayer
7/14 - Started twice yearly Zometa for my bones
Jan. 2015 checkup still shows NED
2015 Neuropathy in feet - otherwise all OK - still NED.
Same news for 2016 and all of 2017.
Nov of 2017 - had small skin cancer removed from my face. Will have Zometa end of Jan. 2018.
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01-21-2013, 06:25 PM
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#37
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Senior Member
Join Date: May 2008
Location: Hershey, PA. Live The Sweet Life!
Posts: 2,005
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Re: Hospital AGAIN! But you'll never guess why!
Denise,
Does that HR gal-pal know that here in PA we cling to our guns and religion? Grrrrrrrrrrrrrrrrrrrrrrrrr!
Glad to hear you are headed home. You have been in my prayers. Hope your own bed will be a welcomed comfort.
__________________
Smile On!
Laurel
Dx'd w/multifocal DCIS/IDS 3/08
7mm invasive component
Partial mast. 5/08
Stage 1b, ER 80%, PR 90%, HER-2 6.9 on FISH
0/5 nodes
4 AC, 4 TH finished 9/08
Herceptin every 3 weeks. Finished 7/09
Tamoxifen 10/08. Switched to Femara 8/09
Bilat SPM w/reconstruction 10/08
Clinical Trial w/Clondronate 12/08
Stopped Clondronate--too hard on my gizzard!
Switched back to Tamoxifen due to tendon pain from Femara
15 Years NED
I think I just might hang around awhile....
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01-21-2013, 11:03 PM
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#38
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Senior Member
Join Date: Apr 2011
Location: Michigan
Posts: 1,173
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Re: Hospital AGAIN! But you'll never guess why!
I'm so glad your back with your family in your own home. Gods blessings my friend!
__________________
dx 11/12/09 IDCI
Stage 3a
ER 98% PR 80%
Her2 +3
4/12 nodes
6 rounds TCH
Herceptin 12 months 3weeks
Rad. 30 tx
Tamoxifin 6 months stopped
Arimedex stopped 9/12 (side effects)
Aromasin 10/12
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01-21-2013, 11:18 PM
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#39
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Senior Member
Join Date: Apr 2012
Location: Melbourne, Australia
Posts: 494
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Re: Hospital AGAIN! But you'll never guess why!
Oh Denise - such rotten luck! I am glad you are back home and that things are moving in regard to your back. Hope the pain doesn't return in full force, that your HR person gets her comeuppance and that you can swap the hot dogs for fillet steak in the near future.
Best wishes.... Pam
__________________
Diagnosed 2004: Lumpectomy - 2 tumours, both grade 1 infiltrating duct carcinoma, about 12mm. ER+,
C-erbB-2 status 3+.
Clear margins, no nodal involvement.
Radiotherapy, i year Tamoxifen, 4 years Arimidex.
Rediagnosed 2012: Multiple bone metastases.
3/12: began on Marianne trial - T-DM1 + Pertuzamab/Placebo.
5/12:Unexpected development of numerous bilateral liver mets. Came off trial.
Started Docetaxol/ Herceptin + Zometa.
8/12:Bones stable +major regression in liver (!)
9/12:Can't take any more Docetaxol! Start on Herceptin and Tamoxifen. Cross fingers!
Changed to Denosumab.
11/12: Scan shows stable - yay!
11/13: Still stable :-) !!!
1/16: All stable, but lowered calcium, so switched to Zometa 3 monthly.
2/19: Happily still stable on Herceptin, Letrozole and 3 monthly Zometa.
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