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Re: Not good news..
thanks friends
Well i am writing to you from the hospital after I nearly suffocated after my first dose of navelbine +h. I was put on high O2. I have stopped oxigen now but I am very breathless when I have to move. cant walk much.
I have been suffering from spike in temperature for 6 weeks which makes my quality of life very poor.
I was not accepted on the trial around where i live and they took 5 weeks to look at my case and wasted my time.
Scan show progession to new places: neck and liver in 8 weeks.
I am a mess after navelbine chemo, my lung hurts and cant manage to get any sleep at the hospital 4 days. I have decided to go home tomorrow whatever.
I have won many many battles, endured many treatments. No one can say that I have not turned every stones and fighted every corners kicking and scratching. But I am now showing the white flag.
For the first time I am happy that I don't have a family, because thinking of not seeing my dog in the future is soooo painful already. do you know when I cough she comes and lick my neck she is amazing and so sweet. I have found her a lovely god mother who has a dog already and the dogs play so well together so I know she will be happy.
I know that I will not be accept in any trials in my state and chemo sent me to hospital. And cant travel any more for a trial anyway. If you have any idea let me know
not good news indeed
All love
__________________
35 y/o
June 06: BC stage I
Grade 3; ER/PR neg
Her-2+++; lumpectomies
Aug 06: Stage IV
liver mets: 6 tumours
July 06 to Jan 07: 2*FEC+6*Taxotere; 3*TACE; LITT
March 07- Sept 07: Vaccination trial (phase 2, peptide based) at the UW (Seattle).
Herceptin since 2006
NED til Oct 09
Recurrence Oct 2009: to internal mammary gland since October 2009 missed on Oct and March 2010 scan.. palpable nodes in May 2010 when I realised..
Nov 2011:7 mets to lungs progressing fast failed hercp/tykerb/xeloda combo..
superior vena cava blocked: stent but face remains puffy
April 2012: Teresa Trial, randomised to TDM1
Nov 2012 progressing on TDM1
Dec 2012 blockage of my airways by tumours, obliteration of these blocking tumours breathing better but hoping for more- at mo too many tumours to count in the lungs and nodes.
Dec 2012 Starting new trial S-222611 phase 1b dual egfr her2+ inhibitor.
'Under no circumstances should you lose hope..' Dalai Lama
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