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It's Back - I'm Back
Hello Amazing Group,
I made it 11 years and 11 months NED. I found a lump in the same breast from my previous cancer mid April. it was easy to find having lost so much tissue from my lumpecotmy and I knew what to do and moved through the steps to surgery on the 30th. Having had radiation previously my only option was for a mastectomy. So far, so normal for a recurrence, but here's the kicker:
- it switched types, no longer Her2 positive -
I had been on Femara for 10 years, stopped taking it and had this happen 1 year later. My oncologist says it would be likely to assume the Femara was no longer working as this new type I have is a very slow grower.
I am on Faslodex now since the AI apparently gave out, but it is hard to find info on my use of it since until recently it was only given for metastatic recurrence and mine was Stage 1, not metasticising.
Is anyone else here in roughly similar circumstances or taking Faslodex or know where to direct me to begin looking for info on something other than metastatic use?
Thanks - and I wish each and every one of you great days!
Donna
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Donna in the Sierra Foothills of California
Diagnosed 6/7/06 invasive ductal carcinoma/ductal carcinoma in situ
Lumpectomy 6/21/06
Pathology: Er 99% Pr 10% Her2/neu 3+
DNA Index 1.0
S-Phase 3/High
Primary Tumor 2.4 cm Sentinel Node Tumor 2.1cm
A/C/T+ Herceptin + rads + Arimidex
stopped Herceptin after 7 mos. due to low MUGA
Surgery for thickened uterine tissue May 2008 - conclusion: side effect of Arimidex
Switched from Arimidex to Femara - joint/tendon problems significantly better!
2 year mark Pet scan and Echo shows all clear!
5 year mammogram with ultrasound shows no sign of cancer - yay!
11 years, 11 months new breast cancer - found lump
Mastectomy 4/30/2018
Pathology: Er99%, PR 28%, Her2 negative! (new type)
Faslodex
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