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01-23-2009, 11:09 AM
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#1
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Senior Member
Join Date: Dec 2006
Posts: 415
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100th Chemo infusion today...
Yes, really... 100!!
I don't know if this is something to "celebrate" per se, but it's definitely a significant event that deserves to be acknowledged!
I've ordered a GIANT cake with "100" on it to bring to infusion center to share w/the nurses & staff. Some might find that a little odd, but what I found "odd" was the other day when they were singing & clapping to another patient who finishing up treatment & having her last dose of chemo...and that was #6 for her!
Now, as a (almost)7 yr Stage IV'er, I know there may never be a "last dose" for me, but don't I deserve a song too when I get my 100th dose?
Many have asked if I've ever heard of anyone having so much chemo...Truth be told, I don't know, nor do I want to know!
1dose, 10 doses or 100 doses, we do what we have to survive, endure & thrive in the face of this disease!
I have much to celebrate - the return of NED, my 100th dose w/only 5 more to go, then back to Herceptin solo. (hmm...don't even know how many rounds of Herceptin I've had...certainly 100+, but who's counting?) and all of you!
Keep the Faith, ladies (& gents)~
We are changing the face of the Stage IV Survivor!
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01-23-2009, 12:29 PM
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#2
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Senior Member
Join Date: Feb 2008
Location: Georgia
Posts: 1,486
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Its strange you brought this up. I thought the same thing the other day when I was having my Herceptin infusion. Like you, I will have to continue with the Herceptin for a while.
Amelia
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01-23-2009, 01:53 PM
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#3
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Senior Member
Join Date: Feb 2008
Location: Bayarea,CA
Posts: 679
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Wow! Hats off to you! Your positive spirit and intention to win comes shining through this post! This is so inspiring and motivating for me since it is hardly been a year since my fight began and every ache or pain makes me worry and wonder if it is back.
But again, your post is inspiring that life can go on even with Stage IV and human endurance is tremendous!
Lots of love,
shobha
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DX: 06-30-2007 - left breast -stage IIIB, Her2/Neu 3+++, ER weakly positive, PR-
Taxol+herceptin weekly for 3 months
FEC+herceptin every 3 weeks for 3 months
BRCA 1 and 2 - Negative
Jan 2008 - Bilateral mastectomy, prophylactic Rt. side.
Radiation for 5 weeks
Completed my yr of herceptin on 07-14-2008
Brain MRI - 3/2/09 Clean
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01-23-2009, 04:23 PM
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#4
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Senior Member
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
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 Party Time for sure!
Of course you deserve a celebration!
I'm cheering! ma
__________________
MA in TX.
Grateful for each and every day....
Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
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01-23-2009, 04:24 PM
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#5
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Senior Member
Join Date: Sep 2005
Location: Central Coast, CA
Posts: 3,207
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Right on!
You definitely deserve the celebration - having the resolve to go sit in that chair again..and again...and again...as many times as it takes is a challenge in itself. My question is, how in the world did you actually count it all?
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Chris in Scotts Valley
June 2002 extensive hi grade DCIS (pre-cancer-stage 0, clean sentinal node) Mastectomy/implant - no chemo, rads. "cured?"
9/2004 Diag: Stage IV extensive liver mets (!) ER/PR- Her2+++
10/04-3/05 Weekly Taxol/Carboplatin/Herceptin , complete response!
04/05 - 4/07 Herception every 3 wks, Continue NED
04/07 - recurrence to liver - 2 spots, starting tykerb/avastin trial
06/07 8/07 10/07 Scans show stable, continue on Tykerb/Avastin
01/08 Progression in liver
02/08 Begin (TDM1) trial
08/08 NED! It's Working! Continue on TDM1
02/09 Continue NED
02/10 Continue NED. 5/10 9/10 Scans NED 10/10 Scans NED
12/10 Scans not clear....4/11 Scans suggest progression 6/11 progression confirmed in liver
07/11 - 11/11 Herceptin/Xeloda -not working:(
12/11 Begin MM302 Phase I trial - bust:(
03/12 3rd times the charm? AKT trial
5/12 Scan shows reduction! 7/12 More reduction!!!!
8/12 Whoops...progression...trying for Perjeta/Herceptin (plus some more nasty chemo!)
9/12 Start Perjeta/Herceptin, chemo on hold due to infection/wound in leg, added on cycle 2 &3
11/12 Poops! progression in liver, Stop Perjeta/Taxo/Herc
11/12 Navelbine/Herce[ptin - try for a 3 cycles, no go.
2/13 Gemzar/Carbo/Herceptin - no go.
3/13 TACE procedure
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01-23-2009, 04:36 PM
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#6
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Senior Member
Join Date: Jul 2007
Location: Northern California
Posts: 764
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Wow, you are amazing. I love your spirit and your determination. Congratulation on being NED. Here's to NED for a long, long time (or lets just say forever).
Tonya
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DX 02/01/07
2.5 cm, Er/Pr-, Her2+++
18/20 Nodes
03/07 CT & Bone scan - Clear
AC x 4, Taxol x 4, Added Herceptin
Radiation until 09/07
Herceptin every 3 weeks until 06/08
01/10/08 local recurrence -IBC
01/28/08 CT & Brain MRI - clear
02/08 - Navelbine & Herceptin
05/08 -MRM
05/08 - Gemzar & Herceptin - didn't work
09/08 - Hyperthermia rads
03/09 - Tykerb/Xeloda
05/10 - Tram flap to fix wound
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01-23-2009, 06:44 PM
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#7
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Senior Member
Join Date: Sep 2005
Location: St. George, UT
Posts: 582
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You certainly do deserve a party! You are an amazing warrior! How did your party turn out? I wish I could have been there to celebrate with you. My spirits are lifted just by reading your post. Thank you for sharing with us, and for being such an inspiration. Hugs, TriciaK
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01-23-2009, 09:08 PM
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#8
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Senior Member
Join Date: Jul 2008
Location: New Boston, NH
Posts: 275
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I believe you have EVERY right to celebrate. You are one amazing person and deserve to sing and be proud of how far you have come. I'm celebrating with you (cyber hugs).
Carpe Diem!
__________________
-Sarah-
Jan '07 felt lump (PCP "thought" it was a cyst)
Nov '07 "bloody nipple discharge" (OB-GYN "thought" I had fibrocystic breasts and told me to take 400 IU's of Vitamin E)
Note: Mother was dx w/BC in 2004 (ER/PR+ & HER2+) & mets to brain April 2007 (she passed away June 17, 2008)
2/1/08: Biopsy Dx: DCIS (age 34)
2/22/08: Surgery R-side Mast
2/28/08: 1st Path Rpt Dx: IDC 1.8cm tumor & DCIS 2.1cm
2nd Path Rep DFCI - IDC (0.9cm) & DCIS (2.1cm)
Stage 1b/Gr 3; ER+(5%), PR+(2%), HER-2+++
5/5 nodes NEG; Clear Margins
Chemo: AC 4 rnds (1st one 3/31/08) finished 6/2/08
TH (Taxol/Hercepin) 12 weeks (1st one 6/25/08) finished 9/8/08
Herceptin 9 mos (every 3 weeks) finished 6/8/09
BRCA 1/2 NEG
Bio: Age 39, married to James 1999, 2 boys 12 & 10 yo
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01-24-2009, 01:56 AM
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#9
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Senior Member
Join Date: Jul 2008
Posts: 96
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wow!!!!!!!!! and all this time i was thinking if i have to go through another chemo,(god forbid, if there is a recurrence) i would never do it (i have finished all my 8 chemos)but after hearing from you , i now feel that we must never give up, and do whatever we can to fight this nasty cancer. Thanks for making me more brave. God bless you
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01-24-2009, 05:45 PM
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#10
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Member
Join Date: Sep 2007
Location: Birmingham, Alabama
Posts: 21
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No question that you deserve a party!!!!!! I hope it was a wonderful party!!! You have an amazing spirit and are an inspiration to us all.
Regards- Suzanne
__________________
Dx 8-24-2007
Stage IV with mets to liver
ER +/PR- HER2 +++
10 months TCH completed 5-08
Ooph 1-08
Bilateral Mastectomy 07-08
Currently on Herceptin and Aromasin
NED since 1-08
UW Vaccine Trial completed 5-09
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01-24-2009, 08:34 PM
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#11
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Senior Member
Join Date: May 2006
Posts: 3,142
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100th Chemo infusion today...
Congratulations !! Party time. Keep going !!
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