HonCode

Go Back   HER2 Support Group Forums > her2group
Register Gallery FAQ Members List Calendar Today's Posts

Reply
 
Thread Tools Display Modes
Old 01-19-2007, 03:22 PM   #1
Heart Sutra
Senior Member
 
Heart Sutra's Avatar
 
Join Date: Nov 2006
Location: The Hudson Valley, New York
Posts: 124
Chemo sucks

what else is there to say?
2 down, 2 to go for AC... then TH time.

Hope TH isn't as much of a drag. Even the 3-4 days out of 2 weeks feeling like this just sucks.

Did I mention it sucks?

Sue
__________________
---Kevin and Sue---

Dx'd 10/06 IDC grade III/III
Er- pr- HER2 3+
MRM right breast 12/5/06
nodes negative
same day reconstruction started
(implants)
Stage II (2.2 cm tumor)
fairly extensive DCIS
Ct and Bone scans clean
Port placement 12/26/06
AC (4 cycles DD)to begin 1/2/07
Taxol/Taxotere (4 cycles DD)
Herceptin for one year

"There is no distinction between the one who gives, the one who receives, and the gift itself."- Hahn
Heart Sutra is offline   Reply With Quote
Old 01-19-2007, 03:41 PM   #2
Becky
Senior Member
 
Becky's Avatar
 
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
I agree and I haven't had chemo for 2 years. Actually, cancer is what really sucks because otherwise, no chemo (which is a great risk reducer - keep thinking that - "this is greatly reducing my risk for recurrence, this is greatly reducing my risk for recurrence")


You are 50% done with AC and 25% done with the chemo aspect (Taxol is not as bad. You might get some numbness in the fingers and toes but it is not like AC). Relax and have a nice weekend.
__________________
Kind regards

Becky

Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia

NED 18 years!

Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
Becky is offline   Reply With Quote
Old 01-19-2007, 04:03 PM   #3
Karen W
Senior Member
 
Join Date: Sep 2005
Posts: 232
While I was going throug AC I would always joke and say, "feeling good just in time to feel bad again". I would start feeling good about 3 days before my next infusion. It will pass and I must say, Taxol and Herceptin, for me, was a lot easier.

Hugs,
Karen
Karen W is offline   Reply With Quote
Old 01-19-2007, 04:12 PM   #4
MGordon
Senior Member
 
MGordon's Avatar
 
Join Date: Nov 2004
Location: Colorado
Posts: 131
Almost there...

I know he probably alreadsy is, but...

Lean more on Kevin! You need the rest and he needs to help you!

Hang in there - better days are just around the corner.

Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
MGordon is offline   Reply With Quote
Old 01-19-2007, 05:12 PM   #5
Mary Anne in TX
Senior Member
 
Mary Anne in TX's Avatar
 
Join Date: Jun 2006
Location: San Antonio, TX
Posts: 2,357
Yes, it does suck! Absolutely!

But you can do it! It's like crossing off days getting to the finish line! Just cross off those days and find a few treats to celebrate the days as you finish them! I picked Vernors (drink) one week, bad for you cheese dip, hot fudge sundae, etc. I just focused on getting to that treat at the end of the week! I will admit that sometimes I didn't even enjoy the treat, but I got to it!

You can do this! When you think you can't do another day, just get mad at the cancer and declare victory against it!

I had Taxol, carboplatin, and Herceptin and then Navelbine and herceptin (8 times each). And they were a breeze after the "killer" one! You can do it!

I'll be thinking good thoughts for you,
mary anne
__________________
MA in TX.
Grateful for each and every day....

Diag. 12/05 at age 60
Stage II, Grade 3, 4.5 cm primary tumor
ER/PR- Her2 +3 strongly positive
Her2 by FISH 7.7 amplified
vascular invasion
Ki67 20% borderline
Jan - March '06 Taxotere/Adriamycin X 3 to try to shrink tumor - it grew
April '06 Rt Modified Radical Mas, 7 of 9 nodes positive
April - Aug. '06 Herceptin/Taxol/Carboplatin X 8 (dose dense)
Sept - Dec. '06 Navelbine/Herceptin x 8 (dose dense)
Radiation & Herceptin Jan. 22 - March 1, 2007
Finished Herceptin Dec. 10 '08! One extra year.
Port removed August, 2012.
8 1/2 years since diagnosis! 5 1/2 Years NED!
Mary Anne in TX is offline   Reply With Quote
Old 01-19-2007, 07:12 PM   #6
Louise O'Brien
Senior Member
 
Join Date: Oct 2006
Posts: 75
It will get better...

Heart Sutra - I know where you're coming from. It does suck. But I can't begin to tell you how exilerated you will feel as you finish each treatment - and realize how much closer you are to the end - when you can soon begin to see the light at the end of the tunnel. And you will.

I made a deliberate choice not to cancel treatment between Christmas & New Years - knowing I would screw up New Year's Day. I just wanted to hit that half way mark - so I could say "three down, three to go" before the year ended.

This week on Wednesday, I finished treatment number four and I'm now on Docetaxel. It's good to hear that this drug is easier to tolerate. At least I'm not nauseus. But the fatigue has finally hit me. And now that I'm off the steroids, I'm waiting for the other shoe to drop. If it does.

But I'm not down or depressed. When we walked out of the clinic on Wednesday, I almost cried saying to my husband - just two more to go. The relief was incredible. Two isn't bad - I'll be ecstatic when I can finally say - just one left. And before long on Feb. 28 - I'm done. Of course there's still a year of Herceptin - and it's also reassuring to know that too will be easier.

So we all have these markers that we have to cross off - but you will get through it and it will be over soon. Honest. Hang in there.

Rent your favourite movies; get some light reading that makes you laugh and spoil yourself.
Louise O'Brien is offline   Reply With Quote
Old 01-19-2007, 08:31 PM   #7
rinaina
Senior Member
 
rinaina's Avatar
 
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
Images: 2
Yes Sue, chemo sucks but you must hang in there. Karen W you are so right about what you said, I too had 3-4 good days the week I was due to get chemo again. Now that sucked and made it hard to want to go back for another treatment. But I did because I am a fighter and I wanted to do everything I could to get rid of this dreadful disease. Becky you are right too when you say cancer sucks cause if you didn't have it you wouldn't need the chemo. Amen to all everyone has said but bottom line Sue, hang in and fight this with all you have available to you. Before you know it, it will be over and you will return to feeling much better. It isn't easy but nothing worth fighting for ever is. Just write if you need us to help you again or give you the encouragement you need to continue. I sympathize with you having been there.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
rinaina is offline   Reply With Quote
Old 01-19-2007, 08:34 PM   #8
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Sue,

Hang in your halfway there, I think the halfway mark can be the worst because your really tired and fed up with it all and know you have a bit more to complete. Focus on the fact that your halfway done.....done....done....
just a little more to go. Wishing you positive thoughts and strength.

Warmly,
Jean

PS It will be much easier with the TH.....
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Jean is offline   Reply With Quote
Old 01-19-2007, 08:35 PM   #9
Jean
Senior Member
 
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
Wink

Dear Louise,

Good Luck to you as you round the bend to the finish line.

Sending you all good wishes,

Jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
Jean is offline   Reply With Quote
Old 01-19-2007, 09:50 PM   #10
Bev
Senior Member
 
Join Date: Dec 2005
Location: Alexandria, VA
Posts: 1,055
It's unanimous. Chemo and cancer sucks. I definitely remember thinking I was living in suck world or suck zone. I would think the last two treatments won't be any worse than the first two. More of the same. It's hard. Just look forward to all the good days ahead. When you get a great MRI or mammo, you will be thrilled. When the haze of chemo wears off, you'll be delighted you can think again. Work is even fun. There's more.

I would have rather not done this. Your choices are limited and with consequences. I guess you know that. It's a long road but if we can do it so can you. Best Wishes, BB
Bev is offline   Reply With Quote
Old 01-20-2007, 05:48 AM   #11
kimber
Senior Member
 
kimber's Avatar
 
Join Date: Sep 2005
Location: Minneapolis, Minnesota
Posts: 127
Sue - Yes chemo SUCKS!!!!! I hated every single second of it. I never realized that you could feel so rotten (physically and emotionally) and still be alive.

AC is the worst. I ended up doing the weekly taxol instead of the every other week. It was easier to tolerate after the AC kicked my ass. I ended up in the hospital for the weekend after my first dose dense Taxol. Keep the weekly option open. I actually felt pretty good on the weekly HT. My hair started growing back, etc.

You are half way done with the AC!!!! You hang in there!!!! And yes, lean on your hubby. It will help him too to know that he can help his wife, his love in her fight for her life.

Much love - kim
kimber is offline   Reply With Quote
Old 01-20-2007, 05:56 AM   #12
Joannie
Senior Member
 
Join Date: Oct 2005
Location: Beavercreek, Ohio
Posts: 67
It looks like we are all in agreement! Cancer/chemo sucks. I tried to not think of chemo as the enemy, though that was hard to do as bad as it makes you feel. My support group told me one time to think of it as liquid gold. I tried to visualize that is it would go into my veins.

Hang in there, and remember, take one day at a time. The end of chemo will come quicker if you take one day at a time vs. trying to think about how many more you have to endure.

Joannie
Joannie is offline   Reply With Quote
Old 01-20-2007, 10:22 AM   #13
tricia keegan
Senior Member
 
tricia keegan's Avatar
 
Join Date: Nov 2005
Location: Ireland
Posts: 3,463
Red face

Hi as everyone else has said you're halfway there already.

The TH was soo much easier to tolerate for me than a/c and my hair began to grow back,although I did lose my lashes and brows!!
Good luck,take it easy and look forward to that finish line which is creeping ever closer!
Tricia
__________________
Tricia
Dx July '05 IDC 1.9cm Triple positive 3/9 nodes positive
A/C X 4 ..Taxol/Herceptin x 12 wks then herceptin 1 yr
Rads x 36 ..oophorectomy August '06
Currently taking Arimidex..
June 2011 osteopenia/ zometa x1 yearly- stopped Zometa 2015 as Dexa show normal bone density.
Stopped Arimidex July 2014- Restarted Arimidex 2015 for a further two years on the advice of my Onc.
2014 Normal Dexa scan
2018 Mammo all clear, still NED!
tricia keegan is offline   Reply With Quote
Old 01-21-2007, 05:17 PM   #14
KRISS
Senior Member
 
KRISS's Avatar
 
Join Date: Dec 2006
Location: WHITESTOWN IN
Posts: 148
Sorry you are having such a hard time Sue. I'm dreading my second tomorrow. But we can and will get through all this ^%$#@&%&%. We have to. We are women! Kriss
__________________
DX IDC AT 42 12/7/06
2.2CM STAGE I GRADE 2
NODE NEG
PARTIAL 12/18/06
HER2+ /ER+(75%) PR+(5%)
4 DD AC CHEMO STARTING 1/10/07
4 DD Taxol Starting 3/5/07
1year weekly Herceptin starting 3/5/07
finished 2/18/08
changed to every 3 weeks 4/23/07
completed 33 radiation treatments 7/6/07
TAH and BSO 9/24/07
start Femarra 10/8/07
Started Neritinib trial 12/14/09
KRISS is offline   Reply With Quote
Old 01-21-2007, 05:47 PM   #15
tousled1
Senior Member
 
tousled1's Avatar
 
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
Yes, A/C does suck! I remember thinking I'm half way finished and that seemed to help. Don't despair, things will get better. Be tough and hang in there.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
tousled1 is offline   Reply With Quote
Old 01-21-2007, 10:32 PM   #16
Catherine
Senior Member
 
Catherine's Avatar
 
Join Date: Dec 2006
Location: Oregon
Posts: 715
Red face

Keep your boots on and keep trucking. It really does suck, but you can get thru it. I have to admit that before my 3rd A/C, I sat at the kitchen counter and cried. I said I do not want to go for treatment today. Told my husband he would have to drag me to the car. After a good 10 minute cry and lots of hugs and reassurance, I got in the car without being dragged. I have mentioned it before, but I believe in the help drugs. I started taking an antidepressant after my DX. Then took Ativan on and off before I went to Chemo. Ativan helped me calm down and helped me sleep. Even when I felt crappy, I got up every two hours and walked around the house once or twice. And always keep chugging WATER. Rinse your mouth with baking soda water. Let your husband and friends wait on you.

It will be over, just keep marking off the days.
We will continue to be here for you,
Catherine in Oregon
__________________
Catherine


Found my own lump in the shower
April 2006 at the age of 58
Stage IIB, ER- PR- HER2+++ multi focal tumors, largest 2.3cm
Chemo first: AC/Taxol over 16 weeks
Bilateral mastectomy Sep 06
33 rads after the surgery
1 year of Herceptin completed Dec 07
15 years and no recurrence as of April 2021
Catherine is offline   Reply With Quote
Old 01-21-2007, 10:43 PM   #17
Lolly
Senior Member
 
Lolly's Avatar
 
Join Date: Aug 2001
Location: Oregon
Posts: 1,756
I remember my onc saying to me "I'm sorry we have to make you sick to make you well"...that just about sums it up. It's a necessary evil, but you WILL be WELL again.
Hang in there.

<3 Lolly
__________________
Sept.'99 - Dx.Stage IIIB, IDC ER/PR-, HER2+++ by IHC, confirmed '04 by FISH. Left MRM, AC x's 4, Taxol x's 4, 33 Rads, finishing Tx May 2000. Jan.'01 - local/regional recurrence, Stage IV. Herceptin/Navelbine weekly till NED August 2001, then maintenance Herceptin. Right Mast. April 2002. Local/Regional recurrence April '04, Herceptin plus/minus chemo until May '07. Gemzar added from Feb.'07-April '07; Tykerb/Abraxane until August '07, back on Herceptin plus Taxotere and Xeloda Sept. '07. Stopped T/X Nov. '07, stopped Herceptin Dec. '07, started Avastin/Taxol/Carboplatin Dec. '07. Progression in chest skin, stopped TAC March '03, started radiation.

Herceptin has served as the "Backbone" of my treatment strategy for over 6 years, giving me great quality of life. In 2005, I was privileged to participate in the University of Washington/Seattle HER2 Vaccine Trial.
Lolly is offline   Reply With Quote
Old 01-22-2007, 01:46 PM   #18
Stephanie B.
Senior Member
 
Stephanie B.'s Avatar
 
Join Date: Nov 2006
Location: Bakersfield, CA
Posts: 66
Talking

Hang in there it does get better. I found that if I made myself get up and move around and didn't just lay around all day it helped. I got my treatments on Monday and went back to work Thurs or Fri. If you tell yourself you won't get sick it doesn't seem as bad. Good luck and keep drinking water to keep those mouth sores away!!!
Stephanie B. is offline   Reply With Quote
Old 01-22-2007, 04:28 PM   #19
SusanV
Senior Member
 
SusanV's Avatar
 
Join Date: Aug 2006
Location: PA
Posts: 188
Sue,


Yes, it really sucks BAD ! You can do it though....you have to get through some more feeling crappy to get out to the other side. Hang in there and on days you feel well enough go for a little walk and "suck" in some fresh air. Sending tons of well wishes your way.
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
SusanV is offline   Reply With Quote
Old 01-22-2007, 09:01 PM   #20
Soccermom
Senior Member
 
Soccermom's Avatar
 
Join Date: Jun 2006
Location: Bradenton,FL
Posts: 977
Ditto,ditto,ditto!!!

A good friend sent me a pink and white tie-dyed baseball cap that states..."CANCER SUCKS" in BIG black letters...I alternated that hat w/ "Haircut by Taxol"...STILL wear them both altho I get some funny looks!
Hang in there kiddo, "halfway" definitely counts in this game!

Cheering for you!
Marcia
Soccermom is offline   Reply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Forum Jump


All times are GMT -7. The time now is 01:03 PM.


Powered by vBulletin® Version 3.8.7
Copyright ©2000 - 2024, vBulletin Solutions, Inc.
Copyright HER2 Support Group 2007 - 2021
free webpage hit counter