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Re: Working thread - what do you think the HER2+ standard of care should be really?
Just a quick one re brain scans and lymph node involvement... I did not have cnfirmed lymph node involvement (the tisseu thatvwas taken out as sentinel turned out to not be a lymph node at all). It is unclear why / how - theory is that my tumor may have been connected to lymph nodes under the sternum, even though it was located "at the top of" the breast - basically across above the nipple. However, none of those was ever abnormal in any of my CT scans since diagnosis.
Nevertheless here I am with numerous brain mets not even 2 years after MBC diagnosis de novo. I say: You HER2+? Get brain scans. Regularly.
Then again: this topic is now near and dear to my heart...
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Annette
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03/2014: Diagnosed with ER/PR-, HER2+++ MBC (bone mets, oligometastatic)
04/2014: Started 6 cycles of "PHD" (Perjeta, Herceptin, Docetaxol)
07/2014: Finished 6 cycles of PHD; restaging; 2 bone mets are sclerotic - looks like Herceptin and Perjeta is working
10/2014: STABLE!
01/2015: STABLE!
04/2015: STABLE!
08/2015: STABLE!
12/2015: BRAIN METS. BODY STABLE.
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