Hi girls, haven't been here for some time.
To recap briefly, 2001 Stage 3 bilateral mastectomy with 18 (11 infected) lymph + others removed. AC, radiotherapy, CMF. Remission for 18mths. 2003 Mets to bone, radiotherapy, 5mths taxotere and Herceptin. Everything stable for 2yrs.
I have been on Herceptin since
October 2003 and apart from fairly severe peripheral neuropathy (from too much Taxotere) and fatigue problems, am pretty good for an old girl!
My oncologist is asking if I have considered coming off Herceptin. My family is not keen on the idea as they feel like me, it has kept the cancer under control. I know Herceptin can stay in the body for many weeks now, but indefinitely or is the cancer gone - who knows?
I remember reading last year of ladies in the US who have been on it for several years and I was wondering how they are nowadays, have they come off it for any period of time, would they consider coming off it and if they did, what kind of monitoring are they getting.
Looking forward to hearing from you
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