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03-01-2007, 09:46 PM
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#1
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Please send those positive thoughts....
...my way as I have my first mammogram tomorrow since being diagnosed almost a year ago I was suppose to have my appointment with my surgeon after and receive the results, however, they called to cancel the appointment with him two days ago so now I don't know if I will get the results the same day which really bums me out, especially since he is the one who requested me to set it up this way. I will ask if the radiologist can read it and give me at least a preliminary report on the spot but who knows if that will happen. If not, then I probably will have to go through the weekend without knowing anything and that is upsetting. I love my surgeon, however, this is not the first time they have cancelled an appointment I have had with him. He is an incredible doctor and surgeon clinically and also has a fabulous bedside manner which isn't usually the case with surgeons, but he is also very involved with high positions in major cancer organizations and the head of oncology at the hospital. He was very difficult to get in with at the time I was diagnosed but luckily I knew someone who could get me in....his top surgical nurse. (Pays to have connections, not what you know but who you know)! The only thing is, he is so busy and things like this happen as a result. Anyway, please send all your positive thoughts and prayers my way for a good and unremarkable mammogram. Thanking you in advance.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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03-01-2007, 10:08 PM
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#2
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Senior Member
Join Date: Nov 2005
Location: Northern Calif.
Posts: 981
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Sending benign prayers your way!! The waiting is the pits!! I hope you receive your "unremarkable" news soon!
Hugs and Prayers,
Lexi
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03-01-2007, 10:12 PM
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#3
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Hi rinaina,
sending good thoughts your way from snowy Toronto Canada - major snow and freezing rain/ice storm today - bet you had it in Chicago too.
All the best
Caya
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03-01-2007, 11:10 PM
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#4
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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had the freezing rain and snow but higher temps so lots of melting and flood watch in effect. Thanks Caya and Lexigirl for the good thoughts
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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03-01-2007, 11:16 PM
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#5
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Senior Member
Join Date: Jan 2007
Location: Adelaide, South Australia, Australia
Posts: 144
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Rinaina - good luck hon - it's a pain to have to wait a few days for your results (if the radiologist won't read them). Sending calm and reassuring thoughts your way - Belindax
__________________
Belinda
- Diagnosed 3 Jan 2007, Stage IIb, Mastectomy and axillary clearance 10 Jan 07, 6 of 19 nodes affected, multi-focal cancer, HER2 positive. Second mastectomy (prophylactic). Chemo - AC 3 months, Taxol 3 months - then radiation 5 weeks.
- Aug 2011 - Diagnosed with Stage IV mets to lung, sternum and 12 or so thoracic nodes - Rads to Sternum, then weekly abraxane and herceptin for 12 weeks.
- May 2012- good scans - all nodes still about normal size, hole in sternum repairing, lung tumour 'obliterated'.
Ongoing herceptin every 3 weeks. Bloods still all good! Life good!
- March 2013 - recurrence - tumours in lungs and mediastinum (coughing up blood) - immediate radiation treatment to right lung and mediastinum, still on Herceptin, and 3 months of Vinoralbine - stable for a little while!
- Coughing and breathlessness started again September 2013, treated as radiation-induced fibrosis (which can be seen on scans - albeit stable). ie puffers, steroids
- January 2014 - cough becomes bloody again, scans show big mediastinal tumour wrapped around and choking the life out of my right main bronchus, radiation deemed off limits as my lungs are hypersensitive to radiation (measured by existing damage from 2013) .....................- ie I am in the 5% of people likely to suffer severe radiation damage to the lungs that they warn you about before starting treatment! (so special! :) )
- Started chemo Feb 2014 - continuing Herceptin (continuous since Aug 2011), with Carboplatin and Gemcitabine. Discontinued Gemcitabine because of se's. Starting cycle 5 Herc/Carbo 5 May 2014.
- Meantime.....coughing and breathlessness increased to SCARY levels with racing heartbeat that won't slow down, breath that won't come back, even just walking to the bathroom or up 3 or 4 steps.
- ICU from May 5 2014, collapsed right lung due to tumour, small pulmonary embolism (left), tumours growing in mediastinum left and right, dvt lower right leg
- Plan seems to be bronchoscope next week to see if tumour can be lasered and stent inserted in right bronchus to reopen air access to lower parts of right lung. If that is successful might be able to have brachytherapy to worst tumour, otherwise no more options for external radiotherapy.
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03-01-2007, 11:21 PM
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#6
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Sure do appreciate your calm and reassuring thoughts Belinda. Thank you. Can anyone tell me if my breast will be more tender during this mammogram due to the surgery it had? (Lumpectomy).
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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03-01-2007, 11:36 PM
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#7
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Senior Member
Join Date: Nov 2004
Location: Colorado
Posts: 131
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Prayer frenzy has begun...
Good luck and God Bless!
Love and Light
Mel
__________________
Mel Gordon, Husband of Lisa Lowe - Queen of Love and Light and the bravest person I know!
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03-01-2007, 11:53 PM
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#8
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Senior Member
Join Date: Feb 2006
Location: Southern, CA
Posts: 2,511
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Back in Dec. I had my yearly mammo and they made me wait eight days till I got a letter in the mail. So I can relate to that waiting. That is such a shame your surgeon canceled the appt...but I just know your mammo is going to be fine. Sending positive thoughts & benign findings your way. Hang in there.
Chelee
__________________
DX: 12-20-05 - Stage IIIA, Her2/Neu, 3+++,Er & Pr weakly positive, 5 of 16 pos nodes.
Rt. MRM on 1-3-06 -- No Rads due to compromised lungs.
Chemo started 2-7-06 -- TCH - - Finished 6-12-06
Finished yr of wkly herceptin 3-19-07
3-15-07 Lt side prophylactic simple mastectomy. -- Ooph 4-05-07
9-21-09 PET/CT "Recurrence" to Rt. axllia, Rt. femur, ilium. Possible Sacrum & liver? Now stage IV.
9-28-09 Loading dose of Herceptin & started Zometa
9-29-09 Power Port Placement
10-24-09 Mass 6.4 x 4.7 cm on Rt. femur head.
11-19-09 RT. Femur surgery - Rod placed
12-7-09 Navelbine added to Herceptin/Zometa.
3-23-10 Ten days of rads to RT femur. Completed.
4-05-10 Quit Navelbine--Herceptin/Zometa alone.
5-4-10 Appt. with Dr. Slamon to see what is next? Waiting on FISH results from femur biopsy.
Results to FISH was unsuccessful--this happens less then 2% of the time.
7-7-10 Recurrence to RT axilla again. Back to UCLA for options.
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03-02-2007, 06:39 AM
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#9
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Senior Member
Join Date: Aug 2003
Location: Morris, IL
Posts: 3,507
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Rinaiana
Good luck on the mammo...I hate the fact you have to wait....I never leave the hospital until it is read, although back in January I had to have 2 ultrasounds with it...better to be safe! You will be in my thoughts and prayers for a perfect outcome. Then enjoy one of those martinis!
__________________
"Be kinder than necessary, for everyone you meet is fighting some kind of battle."
Hugs & Blessings
Sheila
Diagnosed at age 49.99999 2/21/2002 via Mammography (Calcifications)
Core Biopsy 2/22/02
L. Mastectomy 2/25/2002
Stage 1, 0.7cm IDC, Node Neg from 19 nodes Her2+++ ER PR Neg
6/2003 Reconstruction W/ Tissue Expander, Silicone Implant
9/2003 Stage IV with Mets to Supraclavicular nodes
9/2003 Began Herceptin every 3 weeks
3/2006 Xeloda 2500mg/Herceptin for recurrence to neck nodes
3/2007 Added back the Xeloda with Herceptin for continued mets to nodes
5/2007 Taken Off Xeloda, no longer working
6/14/07 Taxol/Herceptin/Avastin
3/26 - 5/28/08 Taxol Holiday Whopeeeeeeeee
5/29 2008 Back on Taxol w Herceptin q 2 weeks
4/2009 Progression on Taxol & Paralyzed L Vocal Cord from Nodes Pressing on Nerve
5/2009 Begin Rx with Navelbine/Herceptin
11/09 Progression on Navelbine
Fought for and started Tykerb/Herceptin...nodes are melting!!!!!
2/2010 Back to Avastin/Herceptin
5/2010 Switched to Metronomic Chemo with Herceptin...Cytoxan and Methotrexate
Pericardial Window Surgery to Drain Pericardial Effusion
7/2010 Back to walking a mile a day...YEAH!!!!
9/2010 Nodes are back with a vengence in neck
Qualified for TDM-1 EAP
10/6/10 Begin my miracle drug, TDM-1
Mixed response, shrinking internal nodes, progression skin mets after 3 treatments
12/6/10 Started Halaven (Eribulen) /Herceptin excellent results in 2 treatments
2/2011 I CELEBRATE my 9 YEAR MARK!!!!!!!!!!!!!
7/5/11 begin Gemzar /Herceptin for node progression
2/8/2012 Gemzar stopped, Continue Herceptin
2/20/2012 Begin Tomo Radiation to Neck Nodes
2/21/2012 I CELEBRATE 10 YEARS
5/12/2012 BeganTaxotere/ Herceptin is my next miracle for new node progression
6/28/12 Stopped Taxotere due to pregression, Started Perjeta/Herceptin
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03-02-2007, 07:25 AM
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#10
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Senior Member
Join Date: Aug 2006
Posts: 3,380
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Rinaiana,
I am sending good thoughts your way, as I will be in your shoes in about 7 weeks. The way my timing works out, my 6 month post rx mammo was due one month prior to my annual screening. Both my surgeon and my radiation onc told me to have my regular screening one month early. Long story short, there is no way such a thing flies with my HMO - I either need to have two appointments (one dx, one screening) one month apart, or wait the extra month. I chose the latter. I know I will not get results the same day, because I am going on a Saturday morning when there are no docs around. However, I wanted the appointment on a non-work day (or evening) because I still have a lot of tenderness on the lumpectomy side and want to take one of my left-over Tylenol 3's (from my surgery) an hour before I go, as I don't know how I will get through the compression without it. You might want to check out some pre-mammo pain meds, if you can manage it.
Hopeful
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03-02-2007, 07:32 AM
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#11
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Senior Member
Join Date: Mar 2006
Location: IOWA
Posts: 243
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Rinaina - I am sending good thoughts your way. The waiting is difinitely tough, I have a hard time getting through the day when I take the test in the morning and see the doc in the afternoon (I'm not very patient with things like that). Regarding the mammo - I had my first one post surgery last year and was so worried about how it would hurt because I have been tender in that breast ever since my surgery. I explained my concerns to the technician and she was very gentle in running the test, even the tight "smashes" didn't feel too bad, hopefully the same will be true for you.
__________________
Andi
-- ------------------------
Stage IIIC, 17 of 20 Nodes +, E+, Her2+++
Diagnosed 6/30/05
Lumpectomy 7/13/05
Dose Dense A/C x 4
Weekly Taxol + Herceptin x 12
Remainder of year Herceptin Every 3 weeks (completes 9/13/06)
Radiation completed 2/28/06
Currently on Tamoxifen
Dec 06 - Pleural effusion treated with pleurodesis
Now er/pr-, her2++
1/07 started weekly Navelbine plus Herceptin
Discontinued Tamoxifen
4/27/07 CTshowed progression
5/01/07 Began Tykerb/Xeloda + Zometa
5/22/07 Stopped treatment due to great progression
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03-02-2007, 08:53 AM
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#12
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Senior Member
Join Date: Sep 2005
Location: Stockton, NJ
Posts: 4,179
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My first mammo which was about 8 months post surgery and about 2 months post radiation was fine. It hurt alittle more because they wanted to really compress more that I ever had before and I told them to "go to it" as I wanted the best view possible. It was fine and so have all the others (every 6 months for the first 3 yrs according to my surgeon. June is my last every 6 monther and then I am back to a once per year schedule).
Someone suggested some Tylenol beforehand which could be a good suggestion.
I will be thinking of you but it will be fine and so will the results!
__________________
Kind regards
Becky
Found lump via BSE
Diagnosed 8/04 at age 45
1.9cm tumor, ER+PR-, Her2 3+(rt side)
2 micromets to sentinel node
Stage 2A
left 3mm DCIS - low grade ER+PR+Her2 neg
lumpectomies 9/7/04
4DD AC followed by 4 DD taxol
Used Leukine instead of Neulasta
35 rads on right side only
4/05 started Tamoxifen
Started Herceptin 4 months after last Taxol due to
trial results and 2005 ASCO meeting & recommendations
Oophorectomy 8/05
Started Arimidex 9/05
Finished Herceptin (16 months) 9/06
Arimidex Only
Prolia every 6 months for osteopenia
NED 18 years!
Said Christopher Robin to Pooh: "You must remember this: You're braver than you believe and stronger than you seem and smarter than you think"
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03-02-2007, 10:51 AM
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#13
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Senior Member
Join Date: Jun 2006
Location: san luis obispo, ca
Posts: 1,150
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Rinaiana, Sending Positive, Calming, Loving Thoughts Your Way. Let's Hope That Mamo Comes Back Clean. My Best To You Today, Vickie
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03-02-2007, 10:56 AM
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#14
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Senior Member
Join Date: May 2006
Location: northshore suburb of chicago
Posts: 1,093
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Great news everyone. My mammo results are in and all is fine. No findings thank goodness. I am so relieved. Next one in 1 year. Not sure why some of you have them more often then that. Thank you for all your good thoughts and prayers...they helped. So happy I found out so quickly. Will see the surgeon next Wednesday and see what he has to say. Yippppeeee. Here's to a good report and wishing the same for everyone else.
__________________
~Rina~
Dx:3/06 had a lumpectomy April 19, 2006
Her2+ er/pr- Stage I Grade 3 tumor size 1.4 cm, node negative
AC 4 dense doses
34 radiation treatments including booster doses
receiving herceptin every 3 weeks since late August 2006 for 12 months
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03-02-2007, 11:45 AM
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#15
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Senior Member
Join Date: Jan 2007
Location: Thornhill, Ontario
Canada
Posts: 2,320
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Thrilled for you Rinaina - now go buy yourself some fancy soothing bath salts and have a nice fragrant soak.
Best regards,
Caya
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03-02-2007, 11:51 AM
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#16
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Senior Member
Join Date: Sep 2005
Location: Naples FL
Posts: 1,744
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hooray for your great news!!!
__________________
 Suzan W.
age 54 at diagnosis
5/05 suspicious mammogram-left breast
5/05 biopsy-invasive lobular carcinoma with LCIS,8mm tumor,stage 1 grade 2, ER+ PR+ Her2+++
6/14/05 bilateral mastectomy, node neg. all scans neg.
Oncotype DX-high risk
8/05-10/05 4 rounds A/C
10/05 -10/06 1 yr. herceptin
arimidex-5 years
2/14/08 started daily self administered injections..FORTEO for severe osteoporosis
7/28/09 BRCA 1 negative BRCA2 POSITIVE
8/17/09 prophylactic salpingo-oophorectomy
10/15/10 last FORTEOinjection
RECLAST infusion(ostoeporosis)
6/14/10 5 year cancerversary!
8/2010-18%increase in bone density!
no further treatments
Oncologist says, "Go do the Happy Dance"
I say,"What a long strange trip its been"
'One day at a time'
6-14-2015. 10 YEAR CANCERVERSARY!
7-16 to 9-16. Extensive (and expensive) dental work done to save teeth. Damage from osteoporosis and chemo and long term bisphosphonate use
6-14-16. 11 YEAR CANCERVERSARY!!
7-20-16 Prolia injection for severe osteoporosis
2 days later, massive hive outbreak. This led to an eventual dx of Chronic Ideopathic Urticaria, an auto-immune disease from HELL.
6-14-17 12 YEAR CANCERVERSARY!!
still suffering from CIU. 4 hospitilizations in the past year
as of today, 10-31-17 in remission from CIU and still, CANCER FREE!!!
6-14-18 13 YEAR CANCERVERSARY!! NED!!
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03-02-2007, 12:29 PM
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#17
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Senior Member
Join Date: Aug 2006
Location: PA
Posts: 188
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Happy...happy and more happy for you !!
__________________
Susan V - Pittsburgh PA
DX Age 37 on August 3, 2006
Stage 1 Grade 3
ER/PR + (Highly Positive)
Her 2 +++
1.3 & 1.2 tumors right breast
node negative
lumpectomy 8-15-06
A/C Began 9-5-06 Finished A/C 11/6/06
Port Placement 9-15-06
Negative Test for BRAC1 & BRAC2 10-25-06
Began Tamoxofin November 21, 2006
First Herceptin November 27, 2006 Continues every 3 Weeks
First Radiation Treatment December 11, 2006
35 Rads Completed
Final Herceptin Treatment November 12, 2007
Port Removal November 19, 2007
Living Life to the Fullest !!
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03-02-2007, 12:59 PM
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#18
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Senior Member
Join Date: Oct 2005
Location: New Jersey
Posts: 3,154
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Great Great and Great again...
Rinaina,
Love hearing your great news! Now you can relax and enjoy your weekend.
God Bless,
jean
__________________
Stage 1, Grade 1, 3/30/05
Lumpectomy 4/15/05 - 6MM IDC
Node Neg. (Sentinel node)
ER+ 90% / PR-, Her2+++ by FISH
Ki-67 40%
Arimidex 5/05
Radiation 32 trt, 5/30/05
Oncotype DX test 4/17/06, 31% high risk
TOPO 11 neg. 4/06
Stopped Arimidex 5/06
TCH 5/06, 6 treatments
Herceptin 5/06 - for 1 yr.
9/06 Completed chemo
Started Femara Sept. 2006
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03-02-2007, 02:02 PM
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#19
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Senior Member
Join Date: Jul 2005
Location: Ft. Collins, Colorado
Posts: 546
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Such Happy News
I hope you have celebrations planned! These kind of results are a BIG deal and I am so happy for you! Thanks for lifting up our day.
Hey, I don't know if I shared this before (can't remember jack these days), but I'm from St. Charles, IL west of Chicago. My sister was just there for a trade show and met Mike Ditka at his restaurant. She was kind of excited about that.
Anyway-celebrate!
__________________
with love and gratitude,
joy
dx stage I 2/2000*er/pr+; her- per IHC*lumpectomy*4 rounds A/C*30 rads*tamoxifen*dx stage 4 5/2002*huge mets to liver*tiny mets to lungs*stopped tamoxifen*5/02 taxotere/xeloda*her 2 checked with FiSH-her2+++herceptin *2/03 stopped chemo femara w/herceptin*zolodex*04 switched to aromasin w/herceptin*05 high estrogen tx*11/05taxol/carbo*7/06 stopped chemo; megace/herceptin*9/06navelbine/herceptin*5/07tykerb/xeloda great response*4/08 progression in liver; ooph/ faslodex /herceptin
6/08 began Herceptin DM-1
9/08 progression
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03-02-2007, 02:23 PM
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#20
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Senior Member
Join Date: Feb 2006
Location: Acworth, GA
Posts: 2,104
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Glad to hear that you got the results of your mammo right away. The worst thing is the waiting and not knowing.
__________________
Kate
Stage IIIC Diagnosed Oct 25, 2005 (age 58)
ER/PR-, HER2+++, grade 3, Ploidy/DNA index: Aneuploid/1.61, S-phase: 24.2%
Neoadjunct chemo: 4 A/C; 4 Taxatore
Bilateral mastectomy June 8, 2006
14 of 26 nodes positive
Herceptin June 22, 2006 - April 20, 2007
Radiation (X35) July 24-September 11, 2006
BRCA1/BRCA2 negative
Stage IV lung mets July 13, 2007 - TCH
Single brain met - August 6, 2007 -CyberKnife
Oct 2007 - clear brain MRI and lung mets shrinking.
March 2008 lung met progression, brain still clear - begin Tykerb/Xeloda/Ixempra
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