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Old 08-06-2008, 08:32 PM   #1
KathyH
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Join Date: Jul 2006
Location: Memphis, Tennessee
Posts: 35
questions about brca1

Can anyone suggest a place to find information about the implications of being BRCA1 positive?

Thanks, Kathy H
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Kathy H
Diagnosed July 05 age 39
right side - stage 3c grade 3 occult BC, her2++, er/pr -
left side - likely stage 1 her2 -, er/pr+
4 A/C
Nov 05 - complete clinical remission
4 Taxotere/Herceptin
Surgery Feb 06 - pathologic complete remission
9 months of Herceptin
36 rad on right
Tamoxifen - 5yrs
NED!
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Old 08-07-2008, 10:46 AM   #2
AlaskaAngel
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Location: Alaska
Posts: 2,018
Post BRCA1 info

Hi KathyH

Here is one link that might help:

http://www.mayoclinic.com/health/gen...esting/BR00014

AlaskaAngel

P.S. A good site for info is facingourrisk:

http://www.facingourrisk.org/

Last edited by AlaskaAngel; 08-07-2008 at 10:57 AM.. Reason: to add better site for someone who already has a dx of bc
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Old 08-07-2008, 11:26 AM   #3
KathyH
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Join Date: Jul 2006
Location: Memphis, Tennessee
Posts: 35
Thanks!

Thank you, Alaska Angel!!

The information was so helpful. The sites that I had found were either sketchy or scientifically too deep for me.
Blessings, Kathy H
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Kathy H
Diagnosed July 05 age 39
right side - stage 3c grade 3 occult BC, her2++, er/pr -
left side - likely stage 1 her2 -, er/pr+
4 A/C
Nov 05 - complete clinical remission
4 Taxotere/Herceptin
Surgery Feb 06 - pathologic complete remission
9 months of Herceptin
36 rad on right
Tamoxifen - 5yrs
NED!
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Old 08-10-2008, 08:21 PM   #4
harrie
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Location: Hilo, Hawaii
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Yes, facingourrisk.org. And Soccermom is very active in this organization.
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*** MARYANNE *** aka HARRIECANARIE

1993: right side DCIS, lumpectomy, rads
1999: left side DCIS, lumpectomy, rads, tamoxifen

2006:
BRCA 2 positive
Stage I, invasive DCIS (6mm x 5mm)
Grade: intermediate
sentinal node biopsy: neg
HER2/neu amplified 4.7
ER+/PR+
TOPO II neg
Oncotype dx 20
Bilat mastectomy with DIEP flap reconstruction
oophorectomy

2007:
6 cycles TCH (taxotere, carboplatin, herceptin)
finished 1 yr herceptin 05/07
Arimidex, stopped after almost 1 yr
Femara
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