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Old 10-27-2007, 06:24 AM   #1
caligal
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Question port/herceptin questions

HI,

DX on 9/18. surgery on oct 9th. Quick question. How do they put the port in for chemo? Is it surgery like a lumpectomy where you are completely knocked out or what?

Also,

Is herceptin administered thru a port or in pill form or both?

Thanks from a nervous newbie
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Old 10-27-2007, 07:14 AM   #2
jones7676
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I do not know about all kinds of ports, but I was awake and "very relaxed" by medication when my port was inserted. To the best of my knowledge Herceptin is only available through an IV or port. I have not heard of Herceptin pills. Good luck!
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10/03 Radical Mastectomy 3 cm tumor - 1/17 Nodes Stage II B, Her 2 +++ ER-/PR- 11/03 4 AC 4 Taxol 12/05 Stage IV - Lung met , Bone mets - Carbo, Taxotere, Herceptin 9/06 - 2 cm brain tumor 10/06 - Tumor removal surgery - Herceptin Halted 12/06 gamma knife tumor base.1/07 Navelbine/Herceptin 4/07 Rads to R femur 5/07 Stereotactic - new 2 cm brain tumor 4/07 Start Xeloda 5/07 Tykerb added 7/07 Brain MRI clean 10/07 .055 cm brain met found. 12/07 Stereotactic -1 cm brain tumor Start Tykerb 11/07 Abraxane/Herceptin 5/08 Cisplatin, Gemcitabine/Herceptin 6/08 Stereotactic to 1cm 9/08 Stereotactic repeat (growth). 11/08 Pet Scan Good but new tiny met on L lung/dead Brain surgery (no cancer cells found/scar tissue) 1/09 Chemo restarted 2/09 Pet Scan Bad - R larger very active/active L active lymph nodes both sides of chest MRI- mets slight increase 2/09 Start Doxil/Tykerb Treatment
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Old 10-27-2007, 07:17 AM   #3
doh2pa
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Hi,
My port was put in at the outpatient surgery center. They do knock you out but it is a very short surgery. My port has worked flawlessly for 2 years and it's wonderful to not have them digging for veins.

Herceptin is administered IV (not available in pill form). It can be administered once a week or once every three weeks (discuss the best schedule for you with your onc). Some feel that side effects are less with weekly since you are getting a lower dose, but I had it every three weeks and besides a constantly runny nose, had very little side effects.

Good luck. We are all here for you if you have any other questions.
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Diagnosed 2/04 - Invasive ductal - no clean margins
node negative - er+pr+, her2++
Mastectomy 4/04 - 4 rounds AC
9/05 - mets to liver treated with carbo/ixabipelone/herceptin
3/06 - complete remission
9/06 - new liver mets, starting Taxotere/Herceptin
1/07 -Liver mets stable, staying on Herceptin
5/07 - Liver, lung progression - starting T/X
12/07 - Liver, lung progression - starting weekly Navilbene/Herceptin
4/08 - Liver progression - started Abraxane, Carbo, Tykerb and Herceptin
7/08 - Liver Progression - started Gemzar, Avastin and Tykerb
10/08 - Liver progression - starting Doxil
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Old 10-27-2007, 09:48 AM   #4
Brenda_D
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They put me in "twilight sleep" for my port insertion. I don't remember a thing. My port area was sore for awhile and still gets sore sometimes after an infusion, but I'm glad to have it. I used it for my chemo and now Herceptin. I just used it yesterday to be put under for a colonoscopy.
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12/12/06- IDC Stage III, 4x A/C, 35 rads, Herceptin 1 year
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Old 10-27-2007, 10:45 AM   #5
hutchibk
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My port was put in in the hospital day surgery center. It was a very easy and short surgery. I was very mildly put asleep (being 'half beer brenda' it doesn't take much for me to fall asleep), and then I was awake within moments after we were done. The whole thing from check-in to check-out took me only about 3 hours if I remember correctly. Port insertion only took about 20 minutes. Your port can be used usually within hours of insertion if necessary. Mine healed very quickly, within several days. Herceptin is infusion only. Best of luck!
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NOV 2012 - 9 yr anniversary
JULY 2012 - 7 yr anniversary stage IV (of 50...)

Nov'03~ dX stage 2B
Dec'03~
Rt side mastectomy, Her2+, ER/PR+, 10 nodes out, one node positive
Jan'04~
Taxotere/Adria/Cytoxan x 6, NED, no Rads, Tamox. 1 year, Arimadex 3 mo., NED 14 mo.
Sept'05~
micro mets lungs/chest nodes/underarm node, Switched to Aromasin, T/C/H x 7, NED 6 months - Herceptin only
Aug'06~
micro mets chest nodes, & bone spot @ C3 neck, Added Taxol to Herceptin
Feb'07~ Genetic testing, BRCA 1&2 neg

Apr'07~
MRI - two 9mm brain mets & 5 punctates, new left chest met, & small increase of bone spot C3 neck, Stopped Aromasin
May'07~
Started Tykerb/Xeloda, no WBR for now
June'07~
MRI - stable brain mets, no new mets, 9mm spots less enhanced, CA15.3 down 45.5 to 9.3 in 10 wks, Ty/Xel working magic!
Aug'07~
MRI - brain mets shrunk half, NO NEW BRAIN METS!!, TMs stable @ 9.2
Oct'07~
PET/CT & MRI show NED
Apr'08~
scans still show NED in the head, small bone spot on right iliac crest (rear pelvic bone)
Sept'08~
MRI shows activity in brain mets, completed 5 fractions/5 consecutive days of IMRT to zap the pesky buggers
Oct'08~
dropped Xeloda, switched to tri-weekly Herceptin in combo with Tykerb, extend to tri-monthly Zometa infusion
Dec'08~
Brain MRI- 4 spots reduced to punctate size, large spot shrunk by 3mm, CT of torso clear/pelvis spot stable
June'09~
new 3-4mm left cerrebellar spot zapped with IMRT targeted rads
Sept'09~
new 6mm & 1 cm spots in pituitary/optic chiasm area. Rx= 25 days of 3D conformal fractionated targeted IMRT to the tumors.
Oct'09~
25 days of low dose 3D conformal fractionated targeted IMRT to the bone mets spot on rt. iliac crest that have been watching for 2 years. Added daily Aromasin back into treatment regimen.
Apr'10~ Brain MRI clear! But, see new small spot on adrenal gland. Change from Aromasin back to Tamoxifen.
June'10~ Tumor markers (CA15.3) dropped from 37 to 23 after one month on Tamoxifen. Continue to monitor adrenal gland spot. Remain on Tykerb/Herceptin/Tamoxifen.
Nov'10~ Radiate positive mediastinal node that was pressing on recurrent laryngeal nerve, causing paralyzed larynx and a funny voice.
Jan'11~ MRI shows possible activity or perhaps just scar tissue/necrotic increase on 3 previously treated brain spots and a pituitary spot. 5 days of IMRT on 4 spots.
Feb'11~ Enrolled in T-DM1 EAP in Denver, first treatment March 25, 2011.
Mar'11~ Finally started T-DM1 EAP in Denver at Rocky Mountain Cancer Center/Rose on Mar. 25... hallelujah.

"I would rather be anecdotally alive than statistically dead."
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Old 10-28-2007, 06:05 PM   #6
weezie1053
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Caligal,

I had my port installed at UVA which is a teaching hospital. I woke up with a double port. Being a newbie, I didn't questioned why I had a double port for several months. A double port is, of course, slightly larger. When I finally asked why I, unlike the majority of the patients, have a double port, I was told "Oh, it is probably what they were teaching that day." I wish I knew that was the plan as my port is slightly larger, and I would have preferred a single port. I may have been one out of 100, who knows, but if I had to do it all over again, I'd make sure I was getting the single unless my Onc had a reason for it. So ask...

Louise
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  • Diagnosis 06/06 - Stage II-A BC; BC was 2.5 cm, grade 2; ER/PR negative & HER-2/neu positive;
  • Mastectomy w/ reconstruction (implant) in 09/06;lymph nodes - negative;
  • AC/Cytoxin combo - 4 treatments (dose dense);
  • Taxol/Herceptin combo- 12 weekly treatments;
  • Completed chemo - 2/07; completed restruction 02/07; reduction of left breast.
  • BRCA 1 and 2 negative - 6/15/07;DX high risk for distant recurrence
  • MRI, 08/02/07 - NED
  • 1 year Anniversary - 09/07; completed Herceptin 11/07.
  • Mammo 02/14/08 - NED; MRI - 08/2008 - NED
  • 2 year Anniversary - 09/08
  • Mammo 02/09 - NED; MRI - 08/09 - NED
  • 3rd year Anniversary - 09/09
  • 5th Annivery - 09/2011 - NED
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